Fibro fog

[Hhhhuiuikki]

Just wondering who here suffers from fibro fog? What symptoms to they get? How do you manage to cope with it? I am on amitriptyline and getting a lot of fibro fog.

Thanks Sue xx

[rosewine]

Commiserations. When I am tire with battling the fibro especially first thing and last thing in the day I either use the wrong word or start mispronuncing words. I've done it about 5 times in half an hour. Actually sometimes it mm us quite funny but anyone not knowing I was ill would certainly think Ihad been in the pop.

I also have to write things I have to do on a skate in the kitchen and in a permanently open large diary. I also have and Medtronic diary on my Hudl tablet. You would think I would remember things with three sets of promoting but I am afraid that doesn't always work. On Christmas day even though I had written a list of things I had to cook we sat down to dinner, OH had cooked the turkey so I was just in charge of everything else (very nice it was) thinking the food on the plate looked a trifle sparse. Well sitting in the fridge were the 🐖🐷in blankets and the Yorkshire puddings, lol.x

[Jan247 in reply to rosewine]

Lol I forgot to take me roast potatoes out the oven, burnt the onion sauce 😆

[Hazel_Angelstar Administrator FMA UK Staff]

I struggle with fog on a daily basis ... worse when my pain or fatigue is bad. I need to put reminders on my phone: Write everything down etc. Have my phone diary and a written one ... plus I bought a write on notice board to put weekly appointments on which I havn't started to use yet x

[Hhhhuiuikki]

Thank you. Those are all very good suggestions. Xx

[jimmyshoes in reply to Hhhhuiuikki]

same as above .I cannot cope without note books , a small one for hndbag a large one for the house and message alerts on phone for appointments. I always say a middle of a sentence and don't realise I have said the start in my head and have done this for a long time not realising it was part of this fibro. Christmas cards . well some friends got 2 and some got none haha because I was unable to do this in one hit and only used address book an not a tick list. I look at things and cant remember the name at all or who things work and that is stuff Ive used for ages. I try not to stress about it and spend time with mini projects that don't need lots of thought processes such as clearing a drawer out or organising cloethes in my wardrobe.it sounds daft but if it takes me a week on any bit it doesn't matter as there is no time limit. At work I have 2 notepads as trying to go back as best as i can manage. i book for list of to dos and one for wrting words down i have forgotten or a name etc of a person I'm speaking to as don't want this for eyes to see .I always take a notebook whenever i talk to a collegue or anyone as have forgotten by the time i go back to my desk. it does help. post it notes didn't as always flew away or got stuck somewhere never to be seen but with a book i can put a line through or tick. it sounds ridiculous as i am even writing this but it is that bad for me. i even zone out on a conversation even when i concentrate so hard but what can you do ? At least i know it is not an age thing or that i am going mad.It is one of my quirks that makes me memorable . My text messages apparently are funny and this is by default ...

[YASMINTINA FMA UK Volunteer]

All the time doing dinners often left out something out ive prepared, not turning off saucepans and oven my hubbie is now checking on me more now , I'll write a list then cannot find it grrrr foggy fog xxx

[notmebutme]

Ah the lovely fibro fog! My biggest issue is names ... I cannot remember names of people, names of celebs, names of things - eg. the slow cooker became the hot tub. If it has a name I'll forget it and give it a new one - I renamed 3 of my niece's kids over the holidays ... Appointments go on a calendar and on my phone. I have a note app on my phone also so I can jot things down as needed. I also set reminders to do things like take my meds or start cooking dinner now. AND I've found I can't multi task - particularly when cooking, or when about to dish up. If someone starts talking to me my mind goes blank and I can't do the next thing that needs doing - have to send them away so I can reboot my brain.

[Shazzzy]

Hi there, amitriptyline also adds to the confusion. I was on gabapentin for a few years really helped with the pain but stopped it as that two added to the confusion. I find it particularly hard talking to people who don't know me as I don't know what I'm saying half the time. Words elude me but my family and friends can normally figure out what I mean, thankfully

[ruthphoenix]

my fibro fog is either making myself a drink or something and then going in to the living room and forgetting ive made it or forgetting things like bus pass or bag if iim going out or the best is finding my purse or something in the fridge and my milk in the cuboardor going iinto a room and forgetting what i went in for its awesome fybro fog i hate it and then its funny sommetimes if ive got vistors as i stand there looking puzzlled leaning on the door frame with my cane wondering what ive either forgot or need x

[Unicorn52]

Hi, I get fibro fog when I'm asked questions, often can't find the word I'm trying to say, sometimes it takes several minutes before I get it, sometimes I can't fund it at all and find other ways to explain, it can be embarrassing, this part is making getting back to work a challenge as I need to answer phones and be quite sharp...

[Suziger in reply to Unicorn52]

I struggle at work especially, I have a fast paced job, and sometimes completely forget names of things. My colleagues are very helpful, if they see me struggling to talk to a customer they chip in and help out.

[grandmama16 in reply to Unicorn52]

Yep, to all of the examples of fibro fog and I'm pretty sure my family figures it's just age.

[motherconfessor]

I find I'm watching the TV and when the ads come on I have to ask my hubby what we're watching. I write lists and forget to look at them or take them with me. Forget what things are called and what I'm talking about mid sentence. I'm sure there are other things too but I cannot remember.

[robpw in reply to motherconfessor]

I often rewind things cause despite watching it I missed what’s going on .. or if I’m distracted I am completely oblivious to it

[Suziger in reply to motherconfessor]

I also have a problem with programmes, my son asks me what I thought about X and he has to describe what happened as just telling me the programme name leaves me looking very vacant. I can't remember character names either, even in EastEnders that I have watched from the day it started.

[Dinkie]

ahh the dreaded .....what was it?.......ah yes the fibro fog. Laughter is the best way of dealing with it. To be honest those who know me laugh with me and help me out those who don't know me, well if they think me an idiot who cares! It used to really upset me when I did stupid things but no point getting upset over something I can't change. Yes I write endless lists but end up leaving them somewhere I can't remember. Can't read complicated books anymore as end up having to write in the front who is who - same with films - have to watch in small bits or record and watch again on catch up so I can make sense of it. Could be worse the fog could be permanent which it isn't so just endure while it lasts and enjoy when it lifts. I can't blame any prescription meds for making it worse because I don't take any - so it's all my own work

[Albionrfx in reply to Dinkie]

Hi Dinkie, I’m sad to hear of your struggles but I’m also relieved that I’m not going crazy. I have a lot of the side effects of living with Fibro. But recently something new happened. I like watching police or medical film as in FBI or Csi and Chicago Med etc…. but now I can’t follow and I’m having to rewind the films constantly to try and understand the plot. My husband gets impatient with me doing that. I am also getting lots more headaches! I am trying to practice more mindfulness and breathing techniques/exercises to keep me calm and focus, not always easy. Take care, all the best,

Albionrfx

[michaelf43]

Fibro fog is a pain . I have to write everything I need to do and save in diary. I forget to turn taps of and cooker . I do have bouts of not pronouncing words right then my 6yr old correcting me which is a bit annoying and belittling but can't control it so what else can we do. Hope all have a great day

[Jan247]

😂😂😂 my first smile today, I find this fibro fog thingy highly irritating, makes me so frustrated, but I have give a few people some great laughs ,