Mary newly diagnosed requires advise

[Duncansyard]

Hi all I have recently Bern diagnosed with chronic fatigue finding it hard to rehabilitate and get energy levels up and advise gratefully recieved

[Annmurry]

I think you need to research the illness and try and come to terms with being diagnosed. I haven't come to terms with it yet. I've been diagnosed with fibro and chronic pain syndrome and also hypomobility. I'm grieving my previous self and finding it difficult but I'm looking at all the things that will help and researching things that may help. Any other information, questions you have just ask us. We all know what it's like to feel like this so we can get through it together

[Duncansyard in reply to Annmurry]

Can you recommend any books websites etc lovely to meet u good luck with your recovery

[Patdoyle in reply to Annmurry]

Good advice

[M0AL61 Moderator Volunteer]

I have been diagnosed with both FM and Chronic Fatigue. I find the fatigue much harder to deal with than the FM, and I find it so hard to deal with, but I have realised over the years that the only thing I can do is give in to it.

[Georgi13]

Hi I've recently been diagnosed with CF and I think the coming to terms and accepting it is the hardest but also for me knowing when to give in and what the right thing to do is. I have awful memory and concentration problems and recently a lot of pain and weakness in my hands more like being clumpsy! I said to my therapist today is this just mainly in my mind? I still think I lack understanding about the illness and why this has happened to me. It's good on here to speak to others who do understand how you feel as it can be pretty lonely out there when no one can see or think what your actually feeling when your unsure yourself too.

[Annmurry]

I can't recommend anything at the moment. But on here is very helpful for me. Because hearing similar things make it less lonely

[Mdaisy]

Hi Duncansyard

Welcome to the community! I have recently been diagnosed with M.E as well as Fibromyalgia and I'm finding the fatigue hard to manage. With Fibromyalgia I was able to use different approaches to rehab up to an optimum level of health for me - not healthy at all but a reasonable quality of life! This included Gentle Exercise, ME seems to be a whle new ball game, as I don't seem to be able to any exercise without going two steps forward and 6 back at the moment! But I'm still working on it.....

I think many people with ME use many different sites for their information, one of them is the ME Association meassociation.org.uk/ - it seems many people talk about Dr Myhill and her book Diagnosis and Treatment of Chronic Fatigue Syndrome and Myalgic Encephalitis Second Edition : it's mitochondria, not hypchondria! as a helpful resource too.

I would say there is so much information about ME that may help reduce the symptoms therefore improving quality of life, however to me it seems you need to find the things that help you personally which may work for some and not others - I may be wrong. Also, I've seen people mention the Medical Medium book .... I don't know if any of these resources will help for you or not but they might be worth investigating.

I notice your post isn't locked to this community, with means it can be found via search engines. Information about how to lock your post can be found in the post below;

healthunlocked.com/fibromya...

Hope this is of interest to you

All the best

Emma