Fibromyalgia Action UK

Hello!

Hi, I'm new to the site, stumbled across it while looking for info online about help/benefits I'm eligible for etc. I've got Fibromyalgia and recently had to reduce my hours with work quote drastically after a period of several months off due to my condition. I'm already at the stage of appealing my PIP decision but not sure what else I may be missing. does anyone have any advice? TIA.

9 Replies
oldestnewest

Hello there l have the same . you may also be able to get E.S.A. but P.i P is not that easy to get u need help with the forms p.i.p is on how far u can walk ?

Reply

Welcome to the FMAUK Community Leeanne90 ! :)

We hope you find the community to be a great support network and full of advice plus do check out the FMAUK for a wealth of information a out Fibromyalgia. Here's the link; fmauk.org

I am sure many members will be able to share their experiences of the appeals process providing you with helpful ways to help with your claim. You may also wish to contact the FMAUK Benefits Advisor for further advice via the charity's helpline, all contact information plus other useful websites can be found within the link below

healthunlocked.com/fibromya...

As this is your first post I've noticed it is currently not locked to this community, so only FMAUK members can read it and to prevent it being found by search engines on the world wide web. Information how to lock this post and future ones can be found in the link below;

healthunlocked.com/fibromya...

I sincerely wish you the best if luck with your claim and hope you get the decision you deserve. I don't think they understand how stressful it can be and how it impacts on people's health.

If you need any further assistance regarding the community please do not hesitate to contact any member of the team plus you can reads useful 'pinned posts' that can be found to the right of the community.

Hope this helps :)

Emma :)

2 likes
Reply

Morning and welcome to our friendly forum hoping you will learn lots from fmauk.org , share tips and friendly advice from our members and find the forum a helpful place to come have a good day xxx

1 like
Reply

Hi welcome to site .the benefits is esa and pip.esa is not fit to work.and pip is for help and care wot you can't do...do go through with appeal all the way .it is hard to get on ladder .but if your entitled to it fight it...my advice to new claimants like yourself .is go try the pip and esa self test it is very usefull and helps you understand system and points and if your entitled to them.then get advice from cab or welfare rights to fill forms in..so Google pip self test benefits for work comes up.try the test you don't give name and it is not binding.it will give you decision and point and rates they say your entitled to.also ESA test.good luck.cab and welfare rights use this site as well and it is upto date with all the rulings. Finally you can lock your post to health unlocked only and not world web for anyone to see click community only when you post.

1 like
Reply

Hi, I believe I am having a flare which is currently surrounding my feet, They are so painful no pain killer seems to work. I am on 100MST twice a day Duoloxitine 60mg twice a day, Amyltripoline 30mg at night Oromorph for breakthrough pain. despite taking this I can still barely walk I am close to not being able to go out at all. So I may be bound by a wheel chair. Can anyone offer advice.

1 like
Reply

Hi sorry to hear .I would phone gp and ask for a home visit today.if gp says cannot come outI would say they should as home visits are for people like yourself.

1 like
Reply

I might add that this has lasted for at least 12 weeks now. I am not a wimp and have toughed it out for this length of time, but it has gone beyond a joke.

Reply

Hi LesJames

Sorry you are having a flare at the moment and it is getting you down. Did you mention your feet are in excruciating pain? If so, it might be unrelated to Fibro and actually be Plantar Fasciitis, link below;

nhs.uk/conditions/heel-pain...

I have had this too and many members report to have also has this diagnosis. The only think that worked for me personally was NSAIDS (anti-inflammatories like naproxen) and foot exercises with a tennis ball. It might be worth speaking with the GP about whether this is a possibility in your case maybe?

Regarding you Fibromyalgia medications I notice you are on many strong Opioids and whilst they seem to work initially, members do report that due to tolerance the pain is often not controlled and strong doses are prescribed. However, the risks and side effects of strong opioids do seem to outweigh the actual benefits .... sometimes asking for a referral to a Pain Clinic to assess your medications can help.

For more information about medications please see the NHS Choices website;

nhs.uk/conditions/fibromyal...

I sincerely hope your foot pain improves and you are able to get back out and about .....it can be difficult to be housebound and I understand how it can make us low in mood on occasion.

We are here to listen and hopefully help by sharing our own experiences.

Do keep us posted how you get on :)

Emma :)

Reply

Thanks Emma, I cannot take NSAIDS, because of my Hughes (APS). And my inflammation markers are not elevated. I cannot remember when they ever were!

Reply

You may also like...