Hi everybody, I haven't been on here recently, but I read other people's posts with interest. I'm still finding it hard to accept how this condition is affecting me. Which ever medical person told me that this is not progressive is a liar. I still get very tired and find the fatigue is the worst part of this condition. I am due my three monthly dose of B12 soon so that should help. I am finding that In am resting more lately and the settee I sit on is not very good. When I stand up from the settee I am very stiff and have pain in my back and hips. What sort of chair do others prefer for longer periods of rest.
David
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Golfer15
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Fibro is not progressive as defined by medical terminology ... however this is often different to how many people see fibro ...in as much as their symptoms have got worse or they have new symptoms
Regarding chairs ... I have a wooden rocker nursing chair that I find comfortable to sit in ... it's cushioned and I also have a Backfriend back support seat on it xxx
Hi, I sit and sleep on my sofa. My sofa is the big over stuffed type. I find that lying flat on my bed makes me stiff and is painful on my hips and shoulders. I also need a few pillows to prop me up and tuck here and there. Nite🌛. Chris
Sitting is painful so it is loafing propped up on the sofa for me. I'd love a new one too. Maybe a nice recliner sort to be able to keep changing position to stop me getting set on one position. Gonna go check the garden again to see if there is a magic money tree growing there yet. Keep hoping a little sapling might jump the hedge from the neighbours place!
I know that technically it isn't progressive; however I can definitely say that my Fibro has got worse and worse and is now the worst it's ever been! Accepting it takes a long time and you do through a mourning period; so don't be too hard on yourself for not being there yet! I have brought a new bed which is memory foam, with an additional memory foam topper and we got a new leather sofa which I tested multiple times in the shop before purchase and that has an additional pillow support where my back is as my most pain is pelvis, back and legs!
Morning David yes it's hard I'm still struggling to come to terms at the moment we have a reclining leather chair that's very comfy invested in a good one but works brill also next to the radiator a bonus x
Hi David, I know what you mean about discomfort sitting, I recently had a recliner built by a High St furniture shop its 3 inches higher off the floor than the current styles today, I also find sitting in a dining chair more comfortable sometimes, a high back type that makes you sit up straight, if you are using the pc/keyboard, pull the keyboard off the edge of the table so you dont lunge forward - if you use a laptop maybe go to the table with it and avoid knee and leaning forward posture-(Nurse Gladys was the best at doing this then moaning of the consequences) seriosuly its posture my friend. Keep having the B12 as often as the Doc will give it, I find it gives me a lift. In the dining chair try a few gentle leg and arm excercises lifting a leg up half way and point and straighten your toes, arms across chest one at a time and pull at your elbow with the other to stretch upper arm muscles,, you can do this in the bath with more vigour because you cant feel anything. I hope you feel better soon. xxx
Know your strife & agree with all the above. I bought a new mattress. Cost was high,but with an easy payment scheme, I would strongly recommend. Mine doesn't have memory foam,but instead is firm made from hemp,silk,wool & bamboo. I believe that even the fillings of our mattresses are just as important,so as to allow the body to breath better while asleep or resting. As for chairs. I recently bought my partner a Herman Miller chair because he is a musician with COPD & does a lot of work on a mixing desk. I bought it second hand. Cost £250- New they cost up to around £2000- you can get foot rests & a neck attachment. I have 'Loss of Cervical Lordosis of the spine', (just another added physical dilemma,which I have noticed is becoming an increasing problem in the medical world,partially due to the way we use our bodies ergonomically, ie: sitting in chairs at computers or on mobile phones,which can also cause 'Carpel Tunnel').
Herman Miller make office desks too which rise up so that you don't have to sit down all the time.
As for Sofa's.... My sofa is crap & am presently looking for a new one . In the time being I use a pressure cushion. Not very attractive, but cover it with fabric & use pillows, a travelling neck cushion & pillows as props.
The British Heart foundation & the homeless charity Emmaus do furniture. But totally understand how visiting these places could be problematic.
Hi I have bought a Sherman chair I used my back dated pip to buy it , it is an investment it's the only way I can be comfortable, I also bought a automatic raise and recliner bed , they are the places I spend most of my time ,even my wheelchair has a recliner position.
On the topic of it doesn't get worse I think if you ignore your symptoms and work through them you do get worse , it's a mater of respecting your body's messages , I didn't believe in fibro I went from riding bikes and flying kites and being worked into the ground by my employers team leader , to not being able to carry a bag of sugar !
Listen to your body take care of it ,it's not easy I now have most of what I need with equipment so am able to have a fortnightly aromatherapy massage it helps , I have been on pain and fatigue clinics , driving test fir NHS a wheelchair , I am having my garden landscaped . I couldn't of survived all this without the help of my daughter Abby and my best friends on here TheAuthor , fenbadger , rosewine , Hidden , Hidden ,in the early days a lady called judith and another called Betty , of course dear ginns and J sorry can't remember your avatar names ☹️ And Emma and Janet on benifits help .without support were lost .my day to day support fell by the wayside the worse I got ,because I couldn't go out I got forgot about they were able bodied and life goes on ,it's how it is .
I listen to my doctors and I remember my spoons as much as possible,I do which is my undoing get stressed with what I can't do and trying to get others to move at my pace in my head which is what I used to do I was a whirlwind, don't push yourself," be kind and gentle to yourself " which is easy to say but hard to practice as I have discovered most fibro suffers are. "Givers "not "takers "
Gentle hugs
Shadow x
Ps
If I forgot any of my friends here sorry ! Xx
Hi David, so sorry you are still struggling with the fatigue. I hope your B12 helps you. I find lots of cushions to help my back and try and snuggle in them to help. Take care
I have ME and Fibromyalgia. I find as part of my ME that I suffer from OI orthostatic intolerance, which means it is difficult to remain in an upright position, and that can be either standing or sitting.
As a consequence I find it necessary to have good back support available at the drop of a hat or I will crash. An overly soft chair or one that only provides a small amount of support to say just lower back is, for me, as bad as sitting on a hard chair. Just not possible. I have an electric reclining armchair that has a good high back. I put on it a back support pillow (not the delta wing ones but the ones shaped like an A, sorry can't remember the name). I also pile up various other cushions and sit on a coccyx cushion as being seated a long time can cause a lot of pain in that area!
I have a similar set up in bed too. An electric bed with a multitude of cushions and pillows to choose from depending on what pains I am experiencing and how I need supporting. I've even started using a coccyx cushion in bed too as I have been bedbound for about 6 weeks now and am even finding that an issue in bed. Ugghh! 😩
Unfortunately, like you I find I have a lot of pain when I do manage to stand or get out of chair or bed. The ME makes it difficult to be active, but the Fibro means it is best to remain as active as possible. Bit of a catch 22. Are you able to just simply stand occasionally when you are trying to rest. I know it sounds odd but keeping limbs gentle stretched and flexed can help Fibro.
You have just reassured me unintentionally, I am not on my own , I too have been diagnosed for many years with FM and like you have found it to be progressive . The fatigue is dreadful all I want to do is rest nowadays I'm so exhausted. Like you we have a lovely settee in the lounge but I always lay on my bed because its easier to relax and position myself on than the settee or the recliner. Despite medications I still experience pain and stiffness ,I have resigned myself to putting up with it all. Thank you for sharing
I did reply before,but was I with a friend at the weekend who has a spinal injury,& had recently bought a massage chair. It's heated and swivels. I don't really like the massage function on chairs that I tried in the past as I too have a spinal problem. However,I found the chair incredibly comfortable. The heat was so soothing & it also had a foot rest. I've looked on-line & there are quite a few out there. So well worth investigating. Try before you buy though.
Hi . I’m sorry to hear about your pain . I have recently been diagnosed with fibromyalgia. I also find that my sofa is not very comfortable. It’s only 2 years old so it’s me not the sofa! I find that when I go to my mums a more upright sofa and her chair with more neck support helps me . You could invest in a nice fire side chair perhaps? Eyres is a good retailer and also HSL . I’ve got to save up for one for myself . I think it really makes a major difference when you can rest comfortably . I’ve never done so much resting in my life . 😊
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Does anyone else have a memory foam mattress?
Newbie to site needing help on how to get into support group
Amitriptyline and fatigue 
who sleeps on thier own.
