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Fibromyalgia Action UK
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Has anyone had this happen

I went away at the end of July with my church to new wine if you watch songs of praise it was on there Sunday just gone.

I volunteered while I was there, on the Tuesday night I was exhausted, so I went to bed and the next thing I remember is my team leader, village host, 3 paramedics and a doctor in my tent trying to wake me up. Me and my hubby call them ultra crashes, he says it's like trying to wake someone from a coma. For me, I can hear and feel everything that's going on around me and I'm trying to speak and open my eyes but I can't nothing happens. It's not the first time it's happened but it's the first time it's happened while I've been away from home. While all this was happening I heard one of the paramedics say to the doctor "I think this is by choice " all I wanted to do was shout no it's not I was enjoying myself feeling normal and helping other people. Please I would really like to know if anyone else has this happen, I also have EDS, chronic fatigue, sleep apnea and yes I had my cpap on and a constant electric supply.

4 Replies
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Horrible experience for you. the only time i had something similar happen was when i had a deep vein thrombosis happen. i looked as though i was out cold and wasn't moving with eyes closed' i could not even twitch a muscle but could clearly hear what people were saying never want it to happen again.x

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Chronic fatigue can build up to the point overtime where it knocks Who out. Your body just shuts down from exhaustion and you go into a somber sleep. I experience this after taking stimulants for a year so I could function and then abruptly quitting them so I could be a normal person again. I would fall asleep driving my car and that is the truth. I fell asleep several times sitting straight up at a desk at work… Thank God I work at home but it was very scary because I was out for like an hour.

Your body likely is just over exhausted from all the problems that you have and needs good rest with REM sleep for many nights. Do you have trouble sleeping? I did insomnia for years and to add to it to stimulants so I was up most every night and every day so I could function and work like a normal person with no pain (right)

Now take 300 to 500 mg of Seroquil which knocks me out sleep wise for eight hours my body is rejuvenated and I don't fall asleep driving my car or sitting at my desk or worse than that while talking to someone in the grocery store standing up. Yes I have all the sleep standing up before due to chronic fatigue

I hope you find your solution… Sleeping well and I name with our EM will does wonders to fight chronic fatigue

I have mostly story about how I'm not to do things. That is my life I can share what you should not do and how it harmed me trying to become a normal person that could function. Taking stimulants when your body is already deprived is not the right thing to d

I had severe sleep apnea for years and no longer suffer from that he just want to way when my anxiety started to go away. It's amazing how those two are linked

Reply

Chronic fatigue can build up to the point overtime where it knocks Who out. Your body just shuts down from exhaustion and you go into a somber sleep. I experience this after taking stimulants for a year so I could function and then abruptly quitting them so I could be a normal person again. I would fall asleep driving my car and that is the truth. I fell asleep several times sitting straight up at a desk at work… Thank God I work at home but it was very scary because I was out for like an hour.

Your body likely is just over exhausted from all the problems that you have and needs good rest with REM sleep for many nights. Do you have trouble sleeping? I did insomnia for years and to add to it to stimulants so I was up most every night and every day so I could function and work like a normal person with no pain (right)

Now take 300 to 500 mg of Seroquil which knocks me out sleep wise for eight hours my body is rejuvenated and I don't fall asleep driving my car or sitting at my desk or worse than that while talking to someone in the grocery store standing up. Yes I have all the sleep standing up before due to chronic fatigue

I hope you find your solution… Sleeping well and I name with our EM will does wonders to fight chronic fatigue

I have mostly story about how I'm not to do things. That is my life I can share what you should not do and how it harmed me trying to become a normal person that could function. Taking stimulants when your body is already deprived is not the right thing to d

I had severe sleep apnea for years and no longer suffer from that he just want to way when my anxiety started to go away. It's amazing how those two are linked

Reply

Thank you for replying I have only had the ultra crash as I call it a few times what surprised me was the paramedic thinking I was faking it have any of you had that happen to you.

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