Has anyone with fibromyalgia had soft tissue inflammation

I have inflammation onto collar bone area both side goes down whe resting but flares up when working or using my arms .. Had it in my feet months ago .. Have for scan booked tomw just to check it out but feels like someone is sat on my chest at times and. Giving me pins and needles in arms and hands .. Any advice please

15 Replies

  • Hi I have this on my hands and have had it for about 12 years now. My hands also swell quite bad too.

  • Hi Kes I have Fibro and a condition called Lymphoedema which causes my feet and legs to swell sometimes it's so bad I can't walk at all and I have had it in my arms so it might be worth mentioning it to your doctor incase it's that. There are two types, primary is the type I have which can be hereditary or secondary which can occur after treatment for cancer. Just thought it'd be worth checking out. Take care!


  • Forgot to say that my hands swell too which can happen with Fibro or lymphoedema.


  • I'm the same...I have primary lympho in both my legs and my right arm!! X

  • I noticed my right collarbone had started to swell and was very painful, had x rays ultrasound scan and MRI and was told I had soft tissue inflammation and some wear and tear, had blood tests to rule out RA and have now been diagnosed with FMS. I also suffer severe pain in my fingers, hands,feet, wrists, elbows, neck, back ,ribs etc etc etc I sympathise with you and hope you get some answers to your problem .

  • Starting to worry a bit now as found this after I came back from my scan today ...Enlarged lymph nodes above the collar bone (supraclavicular lymphadenopathy) are always considered to be abnormal. These generally suggest a cancer of or an infection in the region close by. Examples of these may include lung infection, lung cancer, lymphoma in the chest cavity, or breast cancer. Occasionally more distant cancers may seed these lymph nodes, such as genital cancers or colon cancer. Some inflammatory causes of the swollen lymph nodes above the collar bone (clavicle) can include tuberculosis or sarcoidosis..........

    The doctors are not telling me anything everyone just keeps saying can't see anything wrong .... Doing head in now

  • hi kes ,

    have you been back to the doctor to actually get the results read or did you read them yourself before seeing the doc ? .....good luck..lets know how you go

  • hi there sorry to hear that, I have swelling in both legs and thighs I cannot walk far with it but every time I go to see Drs all I get is its the fibro and get fobbed off all the time I also swell in my hands wrists and some times fingers. also they say its in my head a lot, hope you have better look then me

    just keep going in and bug them unill you get the help you need

  • hope you have sorted it all out now

  • Cant help but glad its not just me thought I was going mad.....Hope the scan reveals something...Take Care

  • I get that a lot, It goes away with rest & tramadol. Soft hugs.

  • I have had soft tissue inflammation in my shoulders, neck, lower arms and feet. After lots of investigations, it was put down to fibromyalgia, so try not to worry. It can be a bit like reading the leaflets that come with prescription drugs listing all the side effects. For most people the symptoms are not going to be the worst possible medical condition that is life threatening just as most people can take prescription drugs without the horrendous side effects.

  • Update of inflammation apart from my GP saying it was fatty tissue ... Cheeky cow .... It possibly is n inflammation of the membrane around the top of my lungs when I exert myself I get shortness breathe.. I have to have another scan . Dr said nowt to worry about . Not life threatening .. So what is it and why can I do to get rid of it ... Still no answers until scan ... Fed up now

  • Did you ever get to the bottom of this swelling please? Xx

  • Late response, but I get soft clavical swelling, on/off. Diagnosed FM/ME plus other health conditions.

    Finally seen a Rheumatologist whose done bloods, including bone bloods. Scary thing is she said no scans as had a few recently (not good for me) THEN today I've received an appointment for a full body nuclear medicine bone scan, not DEXTRA.

    I'm concerned.

    Anyone experienced similar?


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