I'm new here.

[sisterblue]

Hi, I have recently been having unusual sensations after I wake at night and sometimes after I have been to the bathroom. One is like someone has tapped the back of my head. The other is on my face, near my right eye/nose, and as though a small soft ball has been thrown at me. It usually happens only once in the night, and will be either one or the other of these, but not both. Does anyone else experience this?

[BlueMermaid3]

Hello Catherine

Welcome to our lovely Fibromyalgia forum

It's so strange that you should mention that feeling.

Apparently there is a condition called "Exploding Head Syndrome" and no I am not joking.

It happens to some people just as they are falling asleep.

The experts say that it is to do with the brain shutting down before we go to sleep.

One of our members posted about it recently and there was an article in my magazine this week about it.

I hope you enjoy being part of the forum

Wishing you a peaceful evening

Lu x

Administrator

[sisterblue in reply to BlueMermaid3]

Thanks Lu for your welcome, and your quick response. I have looked at Exploding Head Syndrome, and from what I can see it seems to be felt in the head rather than on it? I would like to look at the article, can you direct me to how to find it? Also, can you tell me if it is possible to change my profile name? I tried under "edit your profile" but couldn't see how to change the name.

Thank you so much, I am looking forward to being part of this community

Catherine x

[BlueMermaid3 in reply to sisterblue]

Hi Catherine

There wasn't a full article on the forum, although I can have a look and see if I can find the one in my magazine for you.

It was just one of our members (and I am really cross with myself cos I can't remember her user name!).

It will come to me honest!

Give me some time and I'll get back to you.

To change your username:

Click on your username at the top of your screen

Click on "account settings"

Scroll about three quarters of the way down the page and you can change your name there.

Don't forget to scroll right down to the bottom and "save" your changes.

If you get stuck come back to me.

Lu xx

PS Darn Fibro fog. I am sure it was Gina.

Someone help!! lol xx

[Ramjets in reply to BlueMermaid3]

It was - ginawen x

[BlueMermaid3 in reply to Ramjets]

Thanks my friend

How are you doing?

Hugs Lu xx

[Ramjets in reply to BlueMermaid3]

Not too bad today Lu thx, hope you're doing ok xxx

[BlueMermaid3 in reply to Ramjets]

Could be better - thanks for asking xx

[sisterblue in reply to BlueMermaid3]

Hi Lu,

I did a search on the site and came across the post. You're not far wrong, it's Gilly.

I found it really interesting, and it's made me decide to keep a diary of when it happens. The thing that doesn't seem to connect is that there's no loud sound goes with it. I did though relate to those who mentioned doorbell and phone ringing during the night.

I am so glad to have found this forum! It does seem wonderful, and so do the people I have met so far :)) And fun! xx

[Hidden in reply to BlueMermaid3]

Blue really how can the member have a piece full evening when the head could exsplode 😂😅😎

[BlueMermaid3 in reply to Hidden]

Lol 😀 xx

[sisterblue]

Thank you x

[BlueMermaid3]

Lol! xx

[BlueMermaid3]

He he xx

[tulips123]

Hi, welcome! Couple of things spring to mind. Sinuses and Neuralgia? Have you mentioned it to your Dr? One of the things about Fibromyalgia is it's more than just one thing lol! All sorts of other things seem put in an appearance too.

I'm sure you'll get a number of different suggestions! Good to hear from you. Dawn xx

[sisterblue in reply to tulips123]

Thank you Dawn and hi. I do have sinus problems frequently. Not neuralgia though as far as I know. I know what you mean about fibro! I hope you are keeping ok? Take care and thanks xxx

[tulips123 in reply to sisterblue]

Sounds like you need to talk to your GP.

You know how it does with FM. Up and down. Who knows what we're going to wake up to tomorrow. They say variety is the spice of life. Tone it down a bit tomorrow lol xx

[BlueMermaid3]

That's my girl lol xx

[BlueMermaid3]

Hi sisterblue

Here is a copy of Gina's post. Click on the blue line below:

healthunlocked.com/fibromya...

I will look for that magazine article for you tonight.

We do like to have a laugh. Life's too short not too

Lu xx

[Ramjets]

Welcome to the forum sisterblue, I am a fellow fibro and exploding head sufferer! This forum could get very messy with all these heads being blown up lol. I hope you enjoy being a member and find it as supportive and friendly as I do. Take care lovely xxx

[sisterblue in reply to Ramjets]

Thank you Ramjets. I am already enjoying being here, and learning I hope to lighten up a bit along with the rest of you. And yes, so supportive. Much thanks xxx

[Koomaroo2]

I'm new too just wanted to say hi

[sisterblue in reply to Koomaroo2]

Hi and welcome! You will find everyone friendly and helpful. Take care Kooramoo 2 xxx

[Koomaroo2 in reply to sisterblue]

Hi sisterblue,Yes I'm finding this a good place to be like you say friendly and helpful 😊.Takecare too xxx