Does anyone have cmt

[Misty09]

I was jus diagnosed with Charlotte Marie tooth disease also known as cmt. Does anyone have this

[rosewine]

I had to look it up as I had not heard of it before. Reading the symptoms I am wondering whether this is what a close friend has.x

[Misty09 in reply to rosewine]

How does she do it. Are her symptoms bad. I've got so many questions and want to talk to someone who has this. By the way my name is Misty and I stay in Mississippi

[rosewine in reply to Misty09]

She has never been diagnosed with it but having read some of the symptoms they seem to be the same as some she has had. I know she has always had problems with her feet getting shoes to fit her. She has had an operation for claw toes on her one foot but had complications so decided to just put up with things on her other foot. Her ankles seem weak as she has gone over on them so many times. She has had problems with her wrists, back pain etc and her posture is poor so she wears a back brace. I know all those symptoms could be out down to others things she has but it has got me wondering. I will certainly be asking her some questions. Hope someone else comes on the forum to help you.x

[hebden]

Ive been looking at this condition also. I have terrible pains in my feet and my toes are starting to claw. My feet are also twisting outwards and get very cold. I use crutches to walk but this is getting more difficult. I do have ruptured achilles but I recently remembered something said to me about CMT around 25 years ago when we were trying to get a mortgage. I was sent for a medical and the doctor (who was an older lady dressed in tweed) asked if I ever had pains in my feet because I have extremely high insteps. I told her I did get pain and she mentioned this condition. I don't think I took a lot of notice at the time (too worried about buying a house) and there wasn't the access to computers there is now so I didn't look into it or question her thoughts further. Remembering back there are a few things that seem to link to health issues I have now. I had what my Mum called rheumatism in my shoulders when I was only 8 years old. Mum just put deep heat on me and even though this didn't work it wasn't questioned. I do wonder if this was the start of fibromyalgia or something else like RA (which I was diagnosed with 3 years ago but then told I didn't have it). I hope you get some answers. Hugs Joolz.x

[TheAuthor]

Hi Misty09

I am so genuinely osrry to read this my friend and it is not something that I have come across previously. The *NHS Choices cache says:

*Charcot-Marie-Tooth disease (CMT) is a group of inherited conditions that damage the peripheral nerves. It's also known as hereditary motor and sensory neuropathy (HMSN). ... People with CMT may have: muscle weakness in the feet, ankles, legs and hands.

I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you

Ken

[everlife]

I have peripheral neuropathy caused by chemo when I was,having treatment for breast cancer. I take GABAPENTON it helps a bit good luck!

[Misty09 in reply to everlife]

You are truly a strong woman.

[Misty09 in reply to everlife]

Ty for responding.. I'm on nurotiñ now. Is that the same