Physio , does anyone have this

[Michelleswshopping]

Has anyone having physio and it doesn't work or tried massage neither work any suggestion please . Trying to work has well is a struggle when in pain

[rosewine]

Massage actually gave me far more pain. I do exercises a physio gave me about 5 years back and they have helped with my walking but I did have to drop some of them as those specific exercises made the pain worse.

Have you tried acupuncture or hydrotherapy as both have helped me feel a little better.

Hope you soon find something that helps.x

[Michelleswshopping in reply to rosewine]

Or tHnks for feed back I've been going ayear Nd even tried acupunture and didn't work I finding the massage is making it worse myself and wanted to see if others wS doing it too do I give it up ? I want some natural remedy will work. and to pay rather than medication which they give for it is antidepresants which I no its suppose to relax nervous system.

[Aliceeliza in reply to Michelleswshopping]

I'm trying( not recommending) an osteopath who uses something called Perrins technique. You can google it. It is currently helping but I know it could just be the end of a flare coincidentally but I have cut down on painkillers and I feel able to walk further. I've also started an exercise class with Age uk but I find that hard

[Michelleswshopping in reply to Aliceeliza]

Thank u I will look into it . Many thanks for your help x

[rosewine in reply to Michelleswshopping]

I have had some help by using some of my PIP benefit to get private acupuncture as the sessions given by the NHS didn't work. He is versed in Chinese medicine as well and treats the whole person rather than just targeting a specific illness. He gave me valuable information about pacing, diet etc. He also seemed to be very versed in fibromyalgia and the affect it has on our body much more so than any medic I have seen.

It is amazing what he picks up on. During one visit he asked me if I felt ill in other ways eg a tight chest or fever and I said no and asked why. He said he was sensing that I had a serious chest infection starting. Within two days I had full blown symptoms. He has suggested certain natural remedies but unfortunately apart from the Coenzyme Q10 which has helped lessen so e of my muscle aches the others upset my IBS so I had to drop them. He is a big fan of Turmeric as an antiinflamamatory.

[Michelleswshopping in reply to rosewine]

Wow... how do I found about this o prefer natural remedies don't want medication realy . I prefer to no something is going to work first . He sounds amazing keeping going and hope it keeps helping . I've only just found out I have it so Ll new to me . And thank ux

[rosewine in reply to Michelleswshopping]

He is so amazing that he gave my husband several sessions for free when he was having treatment for cancer. I wish there were more people like him in the world it would be a better place.x

[JayCeon in reply to rosewine]

Similar here with my acupressurist: holistic, listens, thinks, suggests!

[Michelleswshopping in reply to rosewine]

What is his company. Anything to try xx

[rosewine in reply to Michelleswshopping]

Michelleswshopping He only operates around the Wolverhampton, Codsall and close surrounding areas which are based in the West Midlands. If you can take it he said Turmeric was a good supplement to take as it has anti-inflammatory properties. Gentle exercise and gentle stretching can help keep flexibility. He advises cutting out sugar as much as you can from your diet and caffeine which we know is in coffee but also drinks like Cola. It is best to eat a balanced diet with plenty of fruit and vegetables, meat is fine but preferably things like chicken. Wholemeal or seeded bread instead of white bread which I know can be difficult if you suffer from IBS. He also advises is at all possible to cut out fruit and vegetable which has had to be imported eg does not naturally grow in this country and acidic fruit such as oranges and tomatoes can make some people worse. If I think of anything else I will come back. Hope this helps.

[Jcwg]

Hi, I find a light massage with cream called celafen, is life changing regarding the pain. You buy it online at the skin shop.

[Michelleswshopping in reply to Jcwg]

I will give it a go thank ux

[UltimatelyMe]

HelloI do think physio is worth a try. I was convinced it wouldn’t help but I gave it a try and by strengthening my hip area the pain has definitely eased a lot. I can now stand on one foot for a minute!! Before I would topple over..my balance was worse. I do the exercises everyday regardless of the pain I am in and I believe it does help keep me moving. It isn’t the answer to everything though.

I am afraid massage is too painful for me. I do rub massage oils in to my skin gently but any more pressure is just too much. I struggle with laying money to be in agony!!!

Work is so hard. I feel your pain. I work 3 days now and being a single mum with the kids I am in my knees at times. I have a pacing diary I use to plan the week ( which I do with the kids giving them all tasks everyday) and I am fortunate that my work is v flexible and I can work mainly from home. The hours still have to get done though!

I also try and out in something everyday to make me laugh…crazy as it is I have to make sure I do it!!! You tube clips of funny animals, watching them with the kids..clips of my favourite comedian, a comedy on Netflix etc. Nice to have a giggle.

I wish you so much luck. This condition is definitely a journey…keep going though, there can be glimpses of a good life..

[Michelleswshopping in reply to UltimatelyMe]

Wow that's brilliant so pleased for u . I'm not sure physio is working for me . I've been the sma either maasge I. Now doing gentle massage and great u need something to make u happy has I'm always feeling down so that is good . I wish u look too . We will all be strong and fight this xx

[penny]

As someone who trained in massage and also does have massages from others from time-to-time I can honestly say that all masseuse are not created equal. I found very few who actually acted intuitively and were engaged with the client’s body rather than just following the routine. I cannot personally recommend Emmett or Bowen but this is very non-invasive and others do find the treatments useful. I do think that stretching is very effective and since doing a few exercises every morning (lying down) I have had fewer issues with a bad back (non skeletal) and my muscles are very, very gradually getting more elastic. Anyone tried Reiki?

[Michelleswshopping in reply to penny]

I might look into that thanks . Or I've been doing exercises for a long time bit makes 8t so hard at the moment . Hope I can do more soon once things come and find out more after I see my specialist xx

[JayCeon in reply to penny]

At least Reiki and similar non-touch things can't add to the hurt! I did a few sessions with a friend pre-fibro, which I found relaxing & comforting if nothing else, but haven't found it suitable enough now to try it again.

[penny in reply to JayCeon]

I have trained in Reiki but not yet finished my Reiki II qualification due to lockdowns. The only thing I use it for at the moment is for stopping hiccups, which it does very quickly.

[Midori]

I agree with you. I am a retired nurse with a massage qualification, and what you have said is correct. Some masseurs are 'deep massage' specialists, and they can really hurt a Fibro patient.

I used to warm the area I was about to work on to relax the muscles first, and keep the patient well covered otherwise. I would ask them first how much pressure they would like and keep checking if they showed discomfort.

Cheers, Midori

[brushstrokes46 in reply to Midori]

Hi I still do quite a lot of physical work and ache at the end of the day. Do you still do massage if so I would be interested to hear from you. Thank you Brushstrokes

[Midori in reply to brushstrokes46]

Sorry, I'm retired now and I live in Wales! Arthritis and Fibromyalgia have stopped me.

[brushstrokes46 in reply to brushstrokes46]

Thank you for your reply. Take care and best wishes. brushstrokes

[Michelleswshopping]

Or thank u so much that will help me to tell them what I might need to do instead .they only no so much about it and are rely good and understanding . This has rely helped with everyone with all this help and support .thank u xx

[JayCeon]

On a similar vein, I've found by revisiting that I'm oversensitive to all physio, so it needs to be gentle and any exercises & stretches, cold/heat (no electricity!) need to be much shorter than usual, even compared to other fibromites. So instead of normal physio or manual therapy: osteopathy, expert acupressure, probably chiropractice. Normal qigong/tai chi or yin yoga are much too slow and long for me, but if I use baby steps in my short but regular routines every day I can progress, often just 3' altogether, 20'' per exercises, but altogether >1h/d of various yoga, stretching & other specific exercises.

[KellyJoe36]

H, I was experiencing on/off depression when I was in excruciating pain from FM, and I would usually spend time in bed or sitting when this happened. I took a B12 supplement and ate vegan plant-based foods. I had three hypnotherapy sessions for pain management and used to meditate for about 15 minutes every day. I'm still perplexed as to why FM causes fatigue, especially when I do heavy work, but I can now tolerate the pain and fatigue better than when I was first diagnosed and felt completely helpless. My physiotherapist ( physioactive.ca ) advised me to exercise, but the irony is that we sometimes feel we can't lift a finger due to severe pain. Although I admit that if I force myself to get out of bed and do something or exercise, my pain is less severe than if I just sit or lie down the entire time. The primary goals of physiotherapy in the treatment of fibromyalgia are to reduce pain and stiffness through a variety of strategies. Aerobics were found to be far superior, even in patients with severe fibromyalgia. Begin your exercise programme with a low-impact cardiovascular exercise like walking. I hope this was helpful!