Feeling sorry for myself

So I have been taking it mega easy, no exercise, better eatting/vegan which has worked wounders literally feeling normal, so I though I'd start doing more since last Wednesday. slowly the pains started to come back, but me being super fit before the problems started I ignored it. don't know why but that seems to be the time everything triggers off, the only way I can describe this pain as it feels like all my veins are very tight and sore, muscles are twiching like mad, left foot and left side of my stomach feel numb, with the base of my left foot feeling like iv stepped on million pins. All I can feel is the pulse pumping really hard, my right side of my face is also numb with pain under my ear and in my jaw, ears are popping and ringing which is slowly driving me insane. Iv got to be up early tomrrow and I can't get to sleep, feeling hungry but cant physically/mentally move from this spot! The pressure points in the back of my head is soo sore. Been reading a lot into Chinese medicine, food is medication and helps which i truely believe. has anybody Tried any concoctions which help with pain.

If so please message as would try anything right now!

14 Replies

  • It sounds to me as though you are going through a flare and it can affect every part of your body unfortunately. I was very active before this and it is so hard to try and slow down and accept a slower pace of life. If I fail against it all and try and be "normal" I have pay back big time.

    You are doing all the sensible things with food. I see a Chinese medicine acupuncturist who is very knowledgeable about fibro. He feels we are best eating food that would have suited genetically so if we were born in this country to eat foods that would have naturally occurred so fruit and veg that grow here not something like bananas or oranges that would be imported. He thinks that spices like Turmeric etc can help with the inflammation part of fibro. I have to say that after I have had one if his sessions I do feel that I have more energy and less pain for several weeks.

    I had a course of hydrotherapy on the NHS and found that extremely helpful in enabling me to be more flexible. It certainly helped my walking.

    I do hope that this pain lessens, please let us know how you are doing.x

  • The idea of only eating foods that grow naturally in the country we were born in can't possibly fit into our genetic profile. What about thoseof African origin who were born in London or Scots born in Australia?

    I was born in Austria but am from Scottish stock completely. Turnips, barley, kale, fish, oats are the staples with seasonal apples, plums, and soft fruit. I don't much fancy restricting my diet that way.


  • I think he was referring to those of caucasian origin. Sorry I should have explained myself better.x

  • Hi, could I ask what part if the country you live in? I live in North Lincolnshire. My Rheumatologist recommended Hydrotherapy , but said both local(one an hour away) had closed due to lack of funding Enquired with GP who just said Oh that's a shame. , tried pain clinic yesterday, that's another story) who have me a phone number for a school for disabled who have a pool, but can't get through on that . I just wondered what area you were in and how you oh about obtaining the sessions on N H S and how many you get Thankyou and I hope you have a pleasant pain free day, Regards Sandra x

  • Olive in the West Midlands Sandra a place near Wolverhampton which comes under the Dudley Borough. I went to see a physio about hip pain who was the one to refer me for hydrothereapy. Unfortunately we are only allowed 6 sessions which are weekly. The pool is within the local largest hospital. The physio who ran the classes and was fantastic said he would have been happy to give myself and another lady who had fibro more sessions but they only allow the 6. He also said he would have e been happy to out in more sessions each week as half the time the pool isn't used but the local NHS won't pay for them. It is all so shortsighted as the improvement in the 6 sessions was amazing. I am sure that I read that some forum members had been allowed use the hydro looks at a local MS centre.

    I used to live the other side of the borough which was right near the border with another area. They said I could use their pool at their leisure a centre fora small weekly fee but it was an open sessions and was either very early in the morning or late at night. Again might be worth a enquiring about. Good luck finding something.c

  • Hi Ant92

    I am so genuinely sorry to read of how you are suffering and struggling my friend and I sincerely hope that your pain eases soon for you. I agree with rosewine that it does sound like a flare. However, if this persists or gets any worse please talk to your doctor about how you are feeling just to have other medical conditions ruled out of the equation.

    When my pain becomes unbearable I use a TENS Machine to try and ease it. I have pasted you a link below to the NHS Choices cache on this:


    I want to sincerely wish you all the best of luck and please take care of yourself my friend.

    All my hopes and dreams for you


  • Sorry to hear you are suffering and it does sound like a typical flare up. Regardless of whether you have a chronic condition or not, a healthy diet will always make you feel better. You mention you are following a vegan diet (which I commend you for by the way) so I take it you are making sure you are getting all the nutrients you need? I am a vegetarian so I have to make a special effort to ensure I am getting sufficient amounts of protein, iron, vitamin B12 etc. as running low on these can add to your problems.

    I would personally avoid things like Chinese medicine but obviously it’s up to you if you want to go down that route. Unfortunately I don't have a magic concoction for pain relief however there are certain foods, herbs and spices that are deemed to have natural anti-inflammatory qualities, things like soy protein, cherries, strawberries, blueberries and oranges, sage, cayenne, ginger, cinnamon, cloves, turmeric, garlic, olive oil, green leafy vegetables, (spinach, kale, and collards), almonds and walnuts. I imagine you are already doing this but making soup and smoothies using these and drinking them regularly may have some benefit.

    It may also be worth doing a food intolerance test (if you have not done so already) to see if there are any foods that are having a detrimental effect on your body. Despite a lot of these being for sale there is no real test available for this and the best way is to keep a record of what you eat and how you feel. I would discuss it with your GP to see if he can offer any advice. You seem to be doing as much as you can to help yourself so keep doing it, but unfortunately there will be times when no matter what you do, a flare up will occur and you will be in pain. I wish you the best of luck, take care hun. xxx

  • I dunno - Chinese medicine is some of the oldest and most effective in the world. When I worked in San Francisco, they had China Town and some wonderful apothecaries. I wish there were some close to me now...

  • I'm not saying it doesn't work just that personally I wouldn't use it. I don't think it's as tried and tested in the UK and there is a risk of people taking advantage especially if doing things over the internet. I'm all for people looking for alternative ways to help themselves but I would be wary of mixing conventional medicine with any others and would always check it is safe do so. Hope you're having a good day. x

  • Oh yeah - Agreed - Everything needs to be coordinated. I just personally like Chinese Herbalism

  • I'm very sorry to hear about your pain, I know we all are suffering. I have always said I would not wish this on anyone. I have fibro.bone degeneration in my spine, nerve damage in legs and feet and migraines just to name a few. I have changed my mind I wish my boyfriend [ living together for over 12 years] I would love to give him all of this for a month so he would know how I feel every day. I weight 140 when all this started in 2008 they put me on steroids [ great ] another problem I am now over weight !!! I weigh 235 never been fat in my life. finally got thru to the doctors and they took me off steroids last month. I'm depressed and hate myself for being the fat worthless thing I have become. he doesn't get how every day is a challenge just to do the basics. he keeps saying I have to exercise ok and how do you think that's going? I have purchased several different machines and equipment only to find I can't do them. he says walk, ok so I was going out walking [it's a struggle to put one foot in front of the other ] what happened I fell. nice no one around so guess what I could not get up. I had to crawl home and into the house and to the dining room and use a chair to pull myself up, that was a real feat. I'm so sorry to go on but i'm just about ready to explode. tired of him expecting me to wait on him hand and foot and acting like i'm in perfect health. if anyone has a suggestion on how to get this weight off, please tell me. I eat fresh fruit and veggies salads yogurt and I don't eat very much at a time. Can someone PLEASE PLEASE help me if I don't get this weight off soon , well I just may hang it all up. I'm 64 will be 65 in oct. I alays looked young for my age and was the picture of health. Now I'm just a fat worthless bundle of pain. thanks for letting me vent. I pray for all of you that are suffering. GOD BLESS YOU ALL !!!!!! thanks JAN1022

  • Hi jan1022

    I have pasted below some ideas from two reputable websites on how to lose weight my friend. The *authoritynutrition website says:

    *Here are 10 more tips to lose weight even faster:

    1. Eat a high-protein breakfast. Eating a high-protein breakfast has been shown to reduce cravings and calorie intake throughout the day ).

    2. Avoid sugary drinks and fruit juice. These are the most fattening things you can put into your body, and avoiding them can help you lose weight.

    3. Drink water a half hour before meals. One study showed that drinking water a half hour before meals increased weight loss by 44% over 3 months.

    4. Choose weight loss-friendly foods (see list). Certain foods are very useful for losing fat. Here is a list of the 20 most weight loss-friendly foods on earth.

    5. Eat soluble fiber. Studies show that soluble fibers may reduce fat, especially in the belly area. Fiber supplements like glucomannan can also help'.

    6. Drink coffee or tea. If you’re a coffee or tea drinker, then drink as much as you want as the caffeine in them can boost your metabolism by 3-11%).

    7. Eat mostly whole, unprocessed foods. Base most of your diet on whole foods. They are healthier, more filling and much less likely to cause overeating.

    8. Eat your food slowly. Fast eaters gain more weight over time. Eating slowly makes you feel more full and boosts weight-reducing hormones.

    9. Use smaller plates. Studies show that people automatically eat less when they use smaller plates. Strange, but it works.

    10. Get a good night’s sleep, every night. Poor sleep is one of the strongest risk factors for weight gain, so taking care of your sleep is important.


    I have also pasted you a link to the NHS Choices guide entitled: 12 tips to help you lose weight on the 12-week plan


    I would also like to say to you that you are a wonderful and unique person who deserves love and respect just like everyone else. So, please, please do not be too hard on yourself my friend. I want to genuinely wish you all the best of luck with losing weight.

    All my hopes and dreams for you


  • if anyone can give me help to lose this weight then please send me a message via the PM system, thank you.

  • I'm so sorry ur feeling so unwell 🤒 I hope u start feeling better soon xx

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