We always assume any symptom is fibr... - Fibromyalgia Acti...

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We always assume any symptom is fibro........but not always the case!

Lizzyear profile image
25 Replies

Hi,

Just thought I would share with you what happened to me over the last few days.

I walked into my doctors surgery last Thursday. To cut a long story short, my GP ( who is so supportive and helpful regarding my fibro), said she thought I looked a bad colour.

I said I had just been feeling really sick and very tired lately. She said she wanted bloods taken. The shorten the story. The hospital called me in and said I was VERY anaemic. So back to hospital tomorrow for blood transfusions and also iron infusion too.

Then exploratory investigations as to why I keep getting so anaemic..........apparently I will feel like a new woman tomorrow....................well looking forward to that!!! :-))

Anyway just thought its a good lesson to learn, not to put everything down to fibro, sometimes it is something else.

Hope you all get a good night sleep. Gentle hugs x

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Lizzyear profile image
Lizzyear
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25 Replies
bluebell10 profile image
bluebell10

hi lizzyear, you must of been feeling so drained! good that you have a good gp, i hope all goes well for you tomorrow

& may you be full of energy :) xx

Lizzyear profile image
Lizzyear

Thank you bluebell10.................can't sleep either?!!!!!Rubbish isn't it?

Yep re transfusion, looking forward to feeling more 'human' again, whatever that is to us fibro folk :-))

TheAuthor profile image
TheAuthor

Hi Lizzyear

I am so sorry to read that you are suffering from anaemia, and I genuinely hope that the blood and iron transfusion goes really well for you. Will they be giving you iron supplements to bring home? I remember when my wife was pregnant with our children it was standard practice to give pregnant women iron tablets.

You are right, we cannot always put everything down to Fibro!

Take care

Ken x

Lizzyear profile image
Lizzyear in reply toTheAuthor

Thank you Author for your reply. Apparently, they have found that there is no point giving people with fibromyalgia iron tablets, as we don't absorb them. My feritin was down to two and the blood consultant also said, that people with fibromyalgia tend to store feritin , so she said in truth I was running on empty. It takes a while for the iron infusion to make any impact, so I am waiting to feel all lively and bouncy!!

Can't fault the NHS, the Queen Elizabeth Hospital in Kings Lynn, they have been superb!

Hope you are as well as you can be and thank you for your reply.

TheAuthor profile image
TheAuthor in reply toLizzyear

Thank you so much for that, I hope that it all starts to work really soon for you.

Take care

Ken x

sophie22 profile image
sophie22

Good luck today with the new woman. Gentle hugs. xx

bbstport profile image
bbstport

hope you get it sorted and feel like that new woman soon

Lizzyear profile image
Lizzyear in reply tobbstport

Thank you. Looking forward to feeling like a new woman too!!! :-)))))

mgclassic profile image
mgclassic

Hi Lizzy hope everything goes ok and you get sorted. MGxx

Lizzyear profile image
Lizzyear in reply tomgclassic

Thank you MG :-))

denvajade profile image
denvajade

Hi Lizzy by the time you read this you would have had your treatment, hope all went well, I had an iron infusion about 8 years ago, it made a huge difference and put me in the position to be able to have a hysterectomy, all in all made life a lot better, wishing you well. Trish

Lizzyear profile image
Lizzyear in reply todenvajade

Thank you Trish, yep everyone says this so fingers crossed :-))

jillylin profile image
jillylin

Hugs, you must feel totally drained. Hope they sort it for you quickly.

Yes, we do have a tendency to put everything down to Fibro so this is a timely reminder.

Hugs

Jillyxx

wildwoman profile image
wildwoman

Hi Lizzy, hope you,re feeling a lot better. I think you made an important point, it's always a good idea to check out a worrying new symptom. You are lucky with your gp, I think fibro can be used as a useful umbrella for docs, and they don't always bother to look further. Xxx

anbuma profile image
anbuma in reply towildwoman

totally agree

mimiwen profile image
mimiwen

Hi Lizzy, do hope you're soon feeling much better, also that they find out why you're getting so anaemic and get that sorted out quickly. Take great care of yourself. Mim xx

fenbadger profile image
fenbadger

I feel like a new woman too, but can't get one.

That's a timely reminder to us all not to get complacent and/or jump to conclusions. I have IBS which can be linked to fibro - but I had IBS years before I had symptoms of fibro. So - did I have underlying fibro that wasn't showing itself. I had anaemia 20 years ago and was rushed in for infusion - so I can't give blood anymore. Turned out I had melaena which was difficult to trace as no scan showed it - and I had the lot - bloods, endoscopy, colonoscopy, barium "meal" no idea why they call it that.

I'm sure you will feel re invigorated :) :)

lucindajethol profile image
lucindajethol

Hi Lizzyyear

I have an underactive thyroid so do 2 of my sisters. To get to the point I am making both my father and my brother suffer with Pernicious Anaemia ( very tired and no energy ) for which when diagnosed, they had to have regular injections. I think the two conditions are related and I am very aware of that, so If I feel myself going in this direction I will be to the doctors straight away.

Lizzyear profile image
Lizzyear

Thank you kind fibro friends. It's so lovely to read replies that people have made the effort to write. Doesn't make you feel nearly so alone and you can't beat hearing other peoples experiences. So thank you so much.

Hope you are all feeling as well as you can.

nellyq profile image
nellyq

True. I have been putting up with a painful hand and finger for three years thinking it was FM. I've just had a cortisone injection as it is a wear and tear issue. I look forward to being able to use my hand properly soon. On a lighter note my Dr is highly amused that my middle finger is stuck in the air. He says it's cos I'm positive and sticking it up to life Ha!

anbuma profile image
anbuma

hi lizzyear

I think some of our gp s need to be aware of this .altho i have been diagnosed with fibro they also put it down to everything else ie thyroid symptoms even tho definitely not fibro symptoms.i feel the same that I am to weak to walk my dogs far and definitely cant manage hills .hope you feel better soon

nellyq profile image
nellyq

Yes Q E at KL is great. I show up RA in my blood perhaps that's an FM thing.

TheAuthor profile image
TheAuthor in reply tonellyq

I really love your picture nellyq, it so cute!

nellyq profile image
nellyq in reply toTheAuthor

My cute Ruby Roo. We foster little dogs too. Positive things and focusing out instead of in help with the ever challenging symptoms of FM.

freya19 profile image
freya19

Hi lizzyear. That is a very good lesson. Thank you for sharing. Hope you feel great when you get your transfusion and infusion. Stay well. Freya xx

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