Fibromyalgia Action UK

Recently diagnosed with FM & Osteoarthritis.

Hi all, new to the site. I have recently been diagnosed with FM. Taken 18 months to get an answer from Dr's. Also have Osteoarthritis. I am finding it so so difficult to adjust and accept that the things that I used to do, I can no longer do. My mind still wants to but my body can't.

Does anyone know if FM is accelerated by stress?

Also, does anyone else get confused.... As in knowing what you want to say but have real difficulty getting the words out?

I haven't worked in 8 months due to pain.

Currently on Co-codamol, Oxyvodone, Oxynorm & Pregablin. Still doesn't get rid of all of my pain.

Sorry for all of the questions. Would just be nice to hear everyone else's opinions on what helps... What doesn't and if this is all normal OR I'm actually going mad.

9 Replies
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Hello there Amyhan good evening let wish you a very warm welcome to our group. Sorry you have this illness many of us also have a number of other health problems as well as fibro so your in good company my dear. If you would care to look at our mother site I am sure you will find a wealth of information you may find helpful. fmauk.org

There is also a wealth of experience and support right here amongst our members i am sure they will be only too happy to share with you. Please feel welcomed. xx

Mo

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Hi there

Welcome to the forum :)

Having a diagnosis of a chronic illness that is incurable does take a lot of coming to terms with.

The best thing you can do is to take some time out, in your head, to try to find some acceptance. Trying to fight it will just make things worse.

I have lived with Fibro & ME for 36 years and if I am completely honest I haven't really accepted it.

One of the worst things that aggravates Fibro symptoms is stress and trauma.

You are already on quite a few extremely strong pain killing meds. It may be that you need to have them reviewed by your GP.

One of the symptoms of Fibromyalgia is something called Fibro Fog. It's when you can't for the life of you think of a word in the middle of a sentence or you go into a room for something and can't remember what it was.

My daughter found my keys in the fridge recently! I know "normal" people do this, but Fibro Fog is a very real thing.

You may want to look into locking your posts. Unlocked posts can be seen by anyone on the internet, whereas locked posts stay within our forum.

If you click on the blue line below, an easy to follow guide on how to lock posts will pop up:

healthunlocked.com/fibromya...

If you'd like me to lock it for you, let me know and I will be happy to do it for you.

Once again a very warm welcome and I very much hope that you enjoy being here.

Wishing you a peaceful night.

Lu x

Administrator

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Hi Lu - One of my favorite sayings is "Some days I amaze myself, and other days I put my keys in the fridge"! Haven't done that yet, but I'm sure it is coming

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Hi Amyhan

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I am so truly sorry to read of how you are suffering and struggling, and as the others have said you are probably experiencing Fibro fog. I have pasted you the link below to the NHS Choices cache which explains all about this, and possible triggers which include stress and trauma:

nhs.uk/Conditions/Fibromyal...

I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you

Ken

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Hi Amyhan welcome to our wonderful forum ☺ I'm sure you will come to find the forum invaluable in chatting to others who are going through the same experience as you, talking to others at different stages of their lives with Fibro and learning from their experiences.

It does help with the whole process and I wish I had found the site years ago. I have had Fibro for nearly 30 yrs and I'm still learning about it, like we all are.

I see our lovely BlueMermaid3 has given you lots of info to be busy with so i won't add to that but I do look forward to chatting with you on the forum.

Peace, luv n light

Jan xx

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Hi Amyhan - I'm sorry for the diagnosis, but it good to have one, yes? Yes, Fibro is accelerated by several things - weather, stress, emotions, etc.

What you are describing in terms of memory is called a "fibro fog" and we all get it. I could remember yesterday what a sprinkler was called... My husband isn't sure if he should laugh or get frustrated with me. I asked him just to laugh =)

I'm sorry I can't help on the pain front... I haven't taken any of the things you mentioned. I'm sure others can help you there. I know that you need to keep moving. Rather like other autoimmune diseases, when you stop moving, you get stiff.

Are you mad? If you are like the rest of us, yes - mad meaning angry though, not crazy =)

Here's hoping you can get things under control soon.

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Hi, I'm sad not angry! I'm 45 but my body feels much older.

I've always been so independent and to see that slipping away is hard to accept.

I guess its the not knowing which bit of my body is going to start hurting next. I started with pain in my right heel which soon spread to my right knee, both hands then my right knee.

Now my shoulder has started to stiffen.

I sometimes can't turn over in bed without being in agony.

As for the fibro fog....I completely forgot how to turn off my hoover the other day. ( now is that normal? )

Thank you for everyone's kind words :-)

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Ha ha - I had to laugh. I couldn't remember how to get the tube back into the Dyson...

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I have both FIbro and OA along with multiple endocrine problems and AS. I've never put my keys in the fridge but yesterday I put my oven gloves on to take something out of the freezer - you've got to laugh 😀

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