I'm new to this feed but not to fibromyalgia. After years of pain, I was officially diagnosed around 4 years ago (aged 33) when I was lucky enough to finally find a doctor who didnt treat my condition purely as a mental illness. She referred me to a specialist and it was so wonderful to have that validation.
It was then that I chose to give my condition a name. I called her "phoebe". I know it sounds silly, but really, it's the best advice I could give you. Naming it gives it a personality, separates it from you, gives you something to fight.
Phoebe is a bully. At her worst, she's made me virtually housebound as I convulse with the pain. At her best, she is a constant ache and indescribable tiredness.
Medication and pain killers don't touch her. But excercise helps. Phoebe hates excercise. She'll do everything to convince me to sleep, to rest - but the more I rest the stronger she gets. So I get up, I walk, I climb, I do HIITS. I fight her.
Some days she wins.
Today she's winning.
So I came to you guys.
Phoebe wants me to feel alone and powerless. But reading your stories reminds me that's not true. Hopefully that'll give me strength, to get up, to walk, to climb...
Thank you for having me. ☺️
Written by
Gubzter
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Hi, wow that's a great way of looking at things, not silly at all, nothing is if it helps! I hope you give phoebe a big kick in the butt...lol and achieve everything you wish too!
You will find lots of lovely people and good advice on this forum. Sorry to hear about your suffering but you appear to have a good mindset which is half the battle. Saying that I think Pheobe's much too nice a name for this wicked condition, if I was to pick one it would be Cruella he he. Take care lovely x
Hi Gubzter welcome to our wonderful forum ☺ I'm sure you will come to find the forum invaluable in chatting to others who are going through the same experience as you, talking to others at different stages of their lives with Fibro and learning from their experiences.
It does help with the whole process and I wish I had found the site years ago. I have had Fibro for nearly 30 yrs and I'm still learning about it, like we all are.
Bless you, what a wonderful attitude you have my friend and I don't feel right saying I don't like Pheobe but she sounds a right horror lol.
I'm sorry you are not having to good a day today & your not on your own here honey.
Please do go look at the mother site where you will find all the information you need and lots of useful links on Fibro and I look forward to chatting to you on the forum.
Yes I feel the same drugging me makes me feel worse - so I concentrate on activities in short bouts ie walking , swimming, aqua, or even if its a little housework or tidying the garden or baking because every time I rest for a long period it beats me - but fibromyalgia wont beat us if it can't catch us - sitting feels like my enemy - good luck with phoebe I know you will triumph - Neese. x
That sounds like a good way to deal with it. I'm struggling today, and would normally be at a Yoga class. This morning after a bad night, the pain was just too much. So I'm doing some slow and steady housework, emptied the airing cupboard and doing laundry. Nothing too energetic.
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Panic!!
God , my head is done in!!
What next to give me pain......
can't stop crying 
My song ?
