Oh well, now I have osteoporosis - Fibromyalgia Acti...

Fibromyalgia Action UK

59,300 members66,356 posts

Oh well, now I have osteoporosis

slomotion profile image
14 Replies

Apparently Im about to snap at any moment!! Not really - but if I take the meds I may in a few years time. The stuff sets calcuim in the bones but there is added risk of instant fractures of the femur or spine - these are without warning. So how does this affect the fibro? Well I am supposed to do weight bearing exercise to increase muscles and bone structure. Fat chance of that. If I so much as look at the hoover Im in agony and I have not had a brisk walk for a year now. Tomorrow I will be joining an exercise class for 'osteo's' and expect my pain level to be off the scale for some time. Will let you all know how I get on. Wishing you all a pain free time. Helen X

Written by
slomotion profile image
slomotion
To view profiles and participate in discussions please or .
Read more about...
14 Replies

Sorry to hear this Helen, don't over do it x.

Ramjets profile image
Ramjets

Good luck with your exercise class and don't overdo it. x

slomotion profile image
slomotion

Hi Mydexter, sorry you are having a rough time. Take care not to do everything they tell you is good for you!!! A bit naughty I know but it is how I have survived up to now. Have fun and hope you keep as painfree as pos. Helen X

Rose54 profile image
Rose54

Ask your GP about Calcium and vit D

They often don't tell about taking this along side Aldronic Acid important to follow instructions on taking .

Rose

BlueMermaid3 profile image
BlueMermaid3

Oh Helen I am so sorry :(

Good luck with your exercise class tomorrow.

Lu xx

Janet28 profile image
Janet28

Oh I am sorry my friend, what a blow for you. Hydrotherapy is best way to built muscle up but gently because not so much strain on your joints. Any swimming as long as water not to cold. Yoga or pilates is also good & not so hard on joints and you can do it at your own pace. Don't be doing anything that's going to be to difficult for you and make you in agony afterwards. They should be taking into account you have Fibro & if they don't, make sure you tell them. Look after yourself and i hope it helps, I know it probably won't to start with but the more mobile you are with arthritis the better it will be for you.

Luv Jan xx

Rosepetal60 profile image
Rosepetal60

At the exersises class, tell the person in charge you may have to opt out some of the exersises and have a sit down due to other health issues. And be very careful not to do too much, easier said than done sometimes. I've had osteoporosis for many years and it's been several years since I took drugs for it due to the side effects. But I do take the vit D and calcium tablets. And most of the time I forget I have osteoporosis due to various chronic pains elsewhere in body that seem to take priority !

Em08 profile image
Em08

Hi I agree with others please don't over do it. I had to learn how to pace myself so I can manage the day. It's hard I know. Take care xx

deejames profile image
deejames

Weight bearing exercise can be as simple as kneeling on all fours, gentle walking, using tiny weights. I am sure you will find out at the class. It really is worth while going through extra discomfort now to avoid the much greater pain of snapped bones.

It's not a good diagnosis to get but give it your best shot.

Dee

Hi hun take it easy if it hurts STOP it will take time and you will hurt after but do try it. I know how you feel about another ailment 🙁🙁 as I am in same boat Had spondylitis for years HBP - asthma - I have just got on with it - then last year wham Bam thank you mam - Fibro - hyperthyroid - low vitD so fed up with it - more tabs to take etc - but it's one of those I've got it so nowt I can do but accept it for what it is - peeps out there have got far worse off than me. Hugsnkisses on their way to you. 😘😘😘😘🤗🤗🤗🤗

Ronniec67 profile image
Ronniec67

Hi I'm waiting on results from Dexa scan (feb) and more recently mri (head) due back for the mri at neurology early april and rheumotolgy end of March .

Hydrotherapy was helpful for excersise when well enough to go I also have the D3 calcium chews(chalk)and was advised of the various benefits of adding plenty food based calcium for greater absortion .My mum had quite a rotten time with the Aldronic Acid after an op so now yearly goes for an infusion which seems to suit her better.Oh joy and I hit 50 in days nowt like feeling old before your time.

Only ever do what you can manage all the little bits we do can make a difference .Be kind to yourself Xx

slomotion profile image
slomotion in reply to Ronniec67

Thanks for the advice Ronnie. I have not taken the Aldronic Acid yet, much to my Dr's disgust. Have changed my diet, again. Sick of salmon etc! Waiting for an appointment at the dental hospital for investigations regarding jaw problems. I do not wish to risk necrosis of the jaw due to taking the acid meds. Feel like I am caught between a rock and a hard place. I will try and be kind to myself but sometimes the effort is too much. Hope you have a great painfree day. Helen X

Ronniec67 profile image
Ronniec67 in reply to slomotion

Thanks @ slowmotion my jaw cracks and locks on me sometimes trying to eat is very difficult was told 30yrs ago althoufgh too young that i had osteoparosis or osteoarthritis .was given a melt tablet but over the years stopped stupidly as it came back with avengence .The Aldronic acid all the sit straight etc etc Mum at 84 is due for her 3rd yearly infusion and doing fab. Good luck hope all goes well for you Xx

slomotion profile image
slomotion

What do I eat? Well, at least 'five a day'. I enjoy one glass of red wine in the evening, no more, my dad was an alcoholic and I am very wary of too much booze. Baked beans are too sweet for me - if I have them it is my own version - a can or plain beans, a little tom puree and some herbs. Dont like yogurt so dont eat that either. I was always under the impression that an adult needs no more than 4oz of first class protein a day. Dont know if this is the current thinking. Have changed my diet to include more oily fish and nuts and fermented cheeses. Make my own bread and lots of other stuff I am experimenting with. Really enjoying it. There is lots of info out there - the trick is to find the food that is right for you - this is not always the diets which are recommended. Helen X

You may also like...

Oh dear, in a panic now

terrible pain with newly diagnosed blood pressure, arthritis in knees and hips, on top of Fibro,...

Is it true doctors make you well? I have fibromyalgia

connection to arthritis, she then went on about how I'm being a bit forceful I said I'm sorry but I...

WELL I AM NOW GOING OFF TO RELAX :)

Ok my friends I have realised I need new glasses well having terrible problems so

I have just been officially diagnosed with Fibromyalgia, what now?

piss off and get on with it\\". I'm entirely unsure how to proceed and what this even means for me....