New to site : Just been diagnosed with... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,447 members66,491 posts

New to site

Juneandgerry profile image
8 Replies

Just been diagnosed with fibromyalgia have suffered for over 20 years after a neck operation. I have osteoarthritis as well. Finding it difficult not being able to do daily tasks and not able to work. Any advice would be greatly appreciated.

Written by
Juneandgerry profile image
Juneandgerry
To view profiles and participate in discussions please or .
Read more about...
8 Replies
Lamby023 profile image
Lamby023

Hey,

I'm 22 and am awaiting diagnosis of fibromyalgia when I finally get a rheumatologist appointment! I find cutting gluten out the diet helps and definitely visiting a physiotherapist on a regular occasion to have your lymphs massages releases a lot of tension. I was just wondering if you've ever had any cognitive problems with your fibro? I'm suffering real bad at the moment with fog and panic attacks. Wondering if you've felt anything similar?

Hope you're well!

in reply to Lamby023

When you see your Docter tell him the way it is and ask about the American 18 point test for fibro diegnnoses

Lamby023 profile image
Lamby023 in reply to

Hi Erny,

I'm aware of the 18 trigger points, I've applied pressure myself and have pain in my collar bone, neck, shoulders, elbows, knees and back all over. All of a sudden, I've been having severe neck stiffness which I guess is resulting in my head pressure. As a result of the pain I think my body is overreacting and causing me to have panic attacks, I've been clenching my jaw a lot too cause of the stress. Sometimes I feel my calves go numb which also causes me to panic resulting in brain fog and shortness of breath. This has gone on for 3 weeks now and have had vitals checked and all fine. Can only relate it to the fibromyalgia as my dad says he went through exactly the same thing with doctors from the NHS telling him there was "nothing wrong with him"

Thanks for your reply 🙂

in reply to Lamby023

The 18 points test was a questioner about how your fibro is Its a yes or no thing so every answer is yes

Well your here now what help can we give you are all Fibromygia

suffers

What do you need to know Medication Pip information self massage just ask away we will help you

Littlestar82 profile image
Littlestar82

Really? That's interesting. I'm awaiting a diagnosis for either fibromyalgia or ME too. My issues started after a spinal (neck) fusion 2 year's ago.

TheAuthor profile image
TheAuthor

Hi Juneandgerry

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I have pasted for you below a link to our mother site, FMA UK which hosts loads of useful Fibro information:

fmauk.org/

I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you

Ken

You may also like...

New to site, new to blogging

I have been following site and feel I know some of you already. I am 51 diagnosed with hyper...

new to this site, but not new to fibro!

told I have been taking them for too long and have to stop, thus bringing on a lovely bout of...

Hello im New to the site

11 minutes agoRow73 Hi I've just been told they think I have fibromyalgia too so I've tests and...

new to this condition and the site

indicated I am new to the site and although I have had Fm for 20 years i was treatedlike a mental...

New to the site but old to the complaint

time). I have friends and family who have been incredibly supportive in the past but I'm finding...