New to site : Just been diagnosed with... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,987 members67,154 posts

New to site

Juneandgerry profile image
8 Replies

Just been diagnosed with fibromyalgia have suffered for over 20 years after a neck operation. I have osteoarthritis as well. Finding it difficult not being able to do daily tasks and not able to work. Any advice would be greatly appreciated.

Written by
Juneandgerry profile image
Juneandgerry
To view profiles and participate in discussions please or .
Read more about...
8 Replies
Lamby023 profile image
Lamby023

Hey,

I'm 22 and am awaiting diagnosis of fibromyalgia when I finally get a rheumatologist appointment! I find cutting gluten out the diet helps and definitely visiting a physiotherapist on a regular occasion to have your lymphs massages releases a lot of tension. I was just wondering if you've ever had any cognitive problems with your fibro? I'm suffering real bad at the moment with fog and panic attacks. Wondering if you've felt anything similar?

Hope you're well!

in reply toLamby023

When you see your Docter tell him the way it is and ask about the American 18 point test for fibro diegnnoses

Lamby023 profile image
Lamby023 in reply to

Hi Erny,

I'm aware of the 18 trigger points, I've applied pressure myself and have pain in my collar bone, neck, shoulders, elbows, knees and back all over. All of a sudden, I've been having severe neck stiffness which I guess is resulting in my head pressure. As a result of the pain I think my body is overreacting and causing me to have panic attacks, I've been clenching my jaw a lot too cause of the stress. Sometimes I feel my calves go numb which also causes me to panic resulting in brain fog and shortness of breath. This has gone on for 3 weeks now and have had vitals checked and all fine. Can only relate it to the fibromyalgia as my dad says he went through exactly the same thing with doctors from the NHS telling him there was "nothing wrong with him"

Thanks for your reply 🙂

in reply toLamby023

The 18 points test was a questioner about how your fibro is Its a yes or no thing so every answer is yes

Well your here now what help can we give you are all Fibromygia

suffers

What do you need to know Medication Pip information self massage just ask away we will help you

Littlestar82 profile image
Littlestar82

Really? That's interesting. I'm awaiting a diagnosis for either fibromyalgia or ME too. My issues started after a spinal (neck) fusion 2 year's ago.

TheAuthor profile image
TheAuthor

Hi Juneandgerry

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I have pasted for you below a link to our mother site, FMA UK which hosts loads of useful Fibro information:

fmauk.org/

I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you

Ken

Not what you're looking for?

You may also like...

New to site

Hi all, I'm new to this site and still not sure what I'm doing however I was diagnosed with...
debpatt29 profile image

New to site

Hello everyone, I have just joined this site, but have had Fibro for over 13 years. Recently I...
Titchyj profile image

new to site

hi there, just joined site to day and just wanted to say hi. i have not yet been diagnosed with...
dobie62 profile image

New to site

Hi, I have just been diagnosed with Fibromyalgia. I have all the usual symptoms and I am so glad...
annette64 profile image

Fibro flare new to this site

Hi I have had fibro for app 8yrs it was well controlled with medication but app 4 months ago I was...
Bracken1 profile image

Moderation team

See all
Hazel_Angelstar profile image
Hazel_AngelstarAdministrator
Lynda_FMA_UK profile image
Lynda_FMA_UKModerator
Sarah_fmauk profile image
Sarah_fmaukModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.