Fibromyalgia Action UK
39,749 members51,873 posts

Getting the maximum help

There seems to be an ever present 'black hole' that we FM sufferers fall into of not being made aware by our GPs how we each as individuals can find the best treatment. I feel really angry with the patronising way I'm treated. There has to be a better way than being told next to nothing about how I can find even just a little extra pain relief.

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Hi I feel the same way. I keep being pushed morphine by my gp, who is usually one of the good guys. When I refuse he seems to be at a loss of what to do.

It is a bit of take it or leave it attitude which I find very unhelpful.

Today I went "Seniors" swimming in a warm uncrowded pool about 8 miles away. There are hoists if I need them and disabled changing rooms. I found this out by myself, why did my Health Centre not know about it when asked? Why did my physio not know?

It definitely proves my point that we have to be pro-active about our own health.

And yes, it does make me very cross.

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Yes there doesn't seem to be any 'joined up ' thinking with these people does there, 😟

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If people can get referred to a good Pain management course or similar often more help comes from that but it i s so hit and miss according to area and available resources. Also some Gps are so more proactive with some offering physio and acupuncture, etc as a matter of course and others like mine offering zilch. Makes us so angry.x

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Hi Bennett1943

I am so genuinely sorry to read that my friend and I have to agree with you. Many doctors do not have a good understanding of Fibro at all. FMA UK can send your GP an information pack anonymously if you wanted them too? I have pasted you a link to the relevant page below:

fmauk.org/information-packs...

I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you

Ken

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Thank you !

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I want to sincerely wish you all the best of luck and please take care of yourself my friend.

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