Getting the maximum help: There seems... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Getting the maximum help

Bennett1943 profile image
5 Replies

There seems to be an ever present 'black hole' that we FM sufferers fall into of not being made aware by our GPs how we each as individuals can find the best treatment. I feel really angry with the patronising way I'm treated. There has to be a better way than being told next to nothing about how I can find even just a little extra pain relief.

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Bennett1943 profile image
Bennett1943
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5 Replies
bluebell99 profile image
bluebell99

Hi I feel the same way. I keep being pushed morphine by my gp, who is usually one of the good guys. When I refuse he seems to be at a loss of what to do.

It is a bit of take it or leave it attitude which I find very unhelpful.

Today I went "Seniors" swimming in a warm uncrowded pool about 8 miles away. There are hoists if I need them and disabled changing rooms. I found this out by myself, why did my Health Centre not know about it when asked? Why did my physio not know?

It definitely proves my point that we have to be pro-active about our own health.

And yes, it does make me very cross.

rosewine profile image
rosewine

If people can get referred to a good Pain management course or similar often more help comes from that but it i s so hit and miss according to area and available resources. Also some Gps are so more proactive with some offering physio and acupuncture, etc as a matter of course and others like mine offering zilch. Makes us so angry.x

TheAuthor profile image
TheAuthor

Hi Bennett1943

I am so genuinely sorry to read that my friend and I have to agree with you. Many doctors do not have a good understanding of Fibro at all. FMA UK can send your GP an information pack anonymously if you wanted them too? I have pasted you a link to the relevant page below:

fmauk.org/information-packs...

I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you

Ken

Bennett1943 profile image
Bennett1943 in reply toTheAuthor

Thank you !

TheAuthor profile image
TheAuthor in reply toBennett1943

I want to sincerely wish you all the best of luck and please take care of yourself my friend.

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