getting over to others what i want to... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,987 members67,154 posts

getting over to others what i want to say !!

kaymayes profile image
15 Replies

i have meetings or just get together with friends and during the chat i just cant seem to find a way to say what it is i mean (i know the word or words i need to use but its as if my brain and mouth are not connected) this can be very ambarassing.anyone else have this problem it often happens in times of extreem tiredness which dosnt help.

Written by
kaymayes profile image
kaymayes
To view profiles and participate in discussions please or .
15 Replies

Hi kaymayes, I think a lot of us have this fibro fog, it's been mentioned a lot on here.

As you say, it can be very embarrassing :(

DeeG profile image
DeeG

Before I took ill-health retirement, I used to go through this with my Law students. They got very used to alternative methods of recalling facts - charades; find the missing word; be the barrister and ask the right questions. There's more than one way to skin a four-legged creature that sometimes sits on your lap!!!

its very embarressing I struggle to find the words , even writin g this Im struggling to find the correct words

I think we all know how that feels i tell my friends that my fileing cabinet drawer in my brain is stuck they know what i mean.

VonnyM profile image
VonnyM

even writing sometimes I read back and its jumbled. the more you panic or get upset the worse it gets. just give yourself time and be patient

jazher profile image
jazher

Hi,

It happens all the time to me, even phoning a takeaway i need to write down what i want to say, i have real trouble.

kel xxx

Spirit profile image
Spirit

I'll be honest and say I worry myself stupid that i'm suffering from alzheimers sometimes - forget what i was going to say seconds before, or doing, or going... It can take me a good while to track through the house to reform the though pattern sometimes to get to *where* I was.

I have a notepad I take round with me everywhere. Comes to bed with me as well. If I could just remember to use it....

Hugs

Spirit x x x

LindseyMid profile image
LindseyMid

Totally normal with Fibro. If you're with friends or family, it can be helpful to explain that concentration, memory and speech problems are a part of Fibro and that you're struggling because you're tired. Most people can sympathise with that and either wait for you to finish or help you to find the words!

trisha64 profile image
trisha64

i get that a lot i also feel really panicky if ore than one person talks to me at a time ,, sounds stupid but before today its left me in tears coz i cant focus

kaymayes profile image
kaymayes in reply totrisha64

no its not stupid im like that aswell and if the t v is on and someone wants to talk to me at the same time im very grumpy xx

kaymayes profile image
kaymayes in reply totrisha64

ditto! ditto! and ditto fybros a bitch sometimes thinking of you tho :)x kay

daffodilhappy profile image
daffodilhappy

I find this quite frightening my GP told me that It will go away from my brain.I am sleeping really well with the help of medication but I still am so tied.At times people look at you strange and I just want to disappear and be left alone.People laugh sometimes at what you forget so easily but its not at all funny It just seems to get worse and worse.Sorry feel moany today and low,

Sometimes....explain that you are really tired. They should be more understanding then xx

All the time! Can be embarrassing, especially as I've always been articulate in communicating. Was worried I was getting dementia for a while but now realise it''s the fibro. Strangely, doesn't happen when writing.

KeepSmiling17 profile image
KeepSmiling17

All the time...it drives me (especially as I’m an English and German teacher) and my husband crazy! We recently rowed because his huffing in the midst of a sentence I was struggling over got to me the other day. The problem is most of my datt ur s seem to be tired days.

Not what you're looking for?

You may also like...

Stopping by to say 'Hi' and to meet others

Hello all, I am new to this site. Thought that I would take up the advice of my doctors to find...
Amandaok1 profile image

What do you say?

When I try to explain a little bit of what my illness is like, I always get; "Oh I ache too", "oh...
Dee_L24 profile image

I want it to stop.......

I do not no what to do this any more, so sore and tierd and stiff i just want it to stop, just...
ellie10 profile image

just want to say ty xx

hi i would just like to take the time to say tyvm to everyone on this site, although i dont always...
sparkydawl34 profile image

How do I expalin Fibromyalgia to others?

I have just been diagnosed and I am new to this forum. Already I am finding myself playing it down...
marzy profile image

Moderation team

See all
Hazel_Angelstar profile image
Hazel_AngelstarAdministrator
Lynda_FMA_UK profile image
Lynda_FMA_UKModerator
Sarah_fmauk profile image
Sarah_fmaukModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.