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Fibromyalgia Action UK

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Scarlets profile image
14 Replies

Have noticed symptoms like fibromyalgia for years been getting similar side effects in various parts of body pulling of stomach front passage, teeth bad, gums headaches pain seems to be on left side of body were I done myself a muscle injury over 32 years ago while exercising felt something snap left of stomach and then it went right through me & my back passage, also noticed a swelling of the stomach like a lump sticking out of me.

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Scarlets profile image
Scarlets
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14 Replies
tulips123 profile image
tulips123

Hi Scarlets, welcome :) Did you see a Dr. at the time, or since, is it still there? Wondering whether the lump could be a hernia? Have you spoken to anyone about your other symptoms? :) Tulip

Scarlets profile image
Scarlets in reply to tulips123

Been seeing doctors for years not one gives a straight answer myself reckon they can't be bothered no comeback on themselves,

Scarlets profile image
Scarlets

Got no faith in doctors/hospitals they tell you what they want you to know phoned surgery today had blood test results back normal was the reply I received

Scarlets profile image
Scarlets in reply to Scarlets

Got no faith in doctors/hospitals

Scarlets profile image
Scarlets

Does anybody out there tried probiotics went to the doctor last week told to try it been taking medication all my life for epilepsy was told when I had brain scan years ago there was no sign of epilepsy.

Janet28 profile image
Janet28

Hi Scarlets and welcome to our wonderful forum ☺ I'm sure you will come to find the forum invaluable in chatting to others who are going through the same experience as you, talking to others at different stages of their lives with Fibro and learning from their experiences.

It does help with the whole process and I wish I had found the site years ago. I have had Fibro for nearly 30 yrs and I'm still learning about it, like we all are.

Have you spoken to your doctor about your symptoms ? We are not doctors but from past experiences, it sounds very much like symptoms of a hernia,as tulips123 has already mentioned. My advise to you would be to write a list of all your symptoms and go armed to your gp with it.

Please do go look at the mother site where you will find all the information you need and compare Fibro symptoms to your own. There are lots of useful links on Fibro and I look forward to chatting to you on the forum.

fmauk.org

Peace, luv n light

Jan ☺

PS. I advise you to lock your post to keep info safe from internet. Pls. follow this link to simple instructions .You will get more replies on a locked post too.

healthunlocked.com/fibromya...

Scarlets profile image
Scarlets in reply to Janet28

Suggested this when I exercised on the bench 22 years ago & when I mentioned the weight I had lost had come back on 3stone need too loose weight was the reply I had so I have no faith in Drs hospitals rather figure it out myself.

tulips123 profile image
tulips123 in reply to Scarlets

Many people struggle for years with FMS symptoms. They trouble is there is still so much they dont know about this condition. Frustrating, especially when you feel a sense of nobody is listening, or cares. Perhaps starting over with a new GP and change of tactics would help. A lot of members have had the same response, over many years! Learn as much as you can find online, perhaps a new GP, and go with informed questions and without getting up anyone's backs - not easy! There is no effective treatment for this condition but it helps to have these problems explained a little bit. Also helps to feel you are being treated seriously! I wish you luck! :) xx

Janet28 profile image
Janet28 in reply to Scarlets

Generally A hernia is very easy to diagnose, even more so if it happened doing strenuous excersize. More often than not, it can be seen, as you say, poking out. It can actually go back in when you lay down, It can be serious and sometimes surgery is required but you need to have a diagnosis. There are different types of hernias but if you suffer with sudden severe pain the nhs advise to go to A&E.

I do completely understand you not having much faith in doc's or hospitals but there are some good ones still and i hope you find one.

Going back to Fibro, it does take a while to diagnose because fibromyalgia symptoms mimic so many other things, so it normally entails lots of blood tests and if they come back clear & your symptoms persist, your gp should then refer you to a Rhuematologist (you can request this). There are medications that do help and i wish you well & pls do keep us informed of any progress with it my friend.

Peace, luv n light

Jan x

Festa profile image
Festa in reply to Janet28

I agree with Janet, I have had a whole string of tests and scans, most of which were about eliminating some of the conditions FMS mimics. I now have a firm diagnosis and whilst it's not exactly pleasant to go though all the 'Piercing and Poking' its good to get a diagnosis so that you can move on.

Good luck

TheAuthor profile image
TheAuthor

Hi Scarlets

Welcome to the forum and it is wonderful to make your acquaintance. I am so genuinely sorry to read this and *FMA UK can send (anonymously) and information pack about Fibro to your doctor if you wish? I have pasted a link to this below:

*FMA UK - GP medical Pack

fmauk.org/information-packs...

I want to genuinely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

bluebell99 profile image
bluebell99

Welcome to our friendly fibro forum Scarlets .

You have been given some good advice, I do hope you will point this out to your GP next time you see him.

Hope to see you around the forum.

Kay

Scarlets profile image
Scarlets in reply to bluebell99

Seen your message now there's no point going to GP the GPs in my surgery are all trainees your lucky to see the same one twice

Scarlets profile image
Scarlets in reply to Scarlets

Have tried answering you don't know if you got my reply but I keep getting message failed

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