I feel lost: I feel like docs not... - Fibromyalgia Acti...

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I feel lost

Kez1975 profile image
6 Replies

I feel like docs not listening

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Kez1975 profile image
Kez1975
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6 Replies
TheAuthor profile image
TheAuthor

Hi Kez1975

Welcome to the forum and it is wonderful to make your acquaintance. I am so genuinely sorry to read that you feel that your doctor is not listening to you and I wonder if they simply do not understand the nature of Fibro? I have pasted you a link below whereby you can have a Fibro information pack sent anonymously to your doctor by FMA UK:

fmauk.org/information-packs...

I want to sincerely wish you all the best of luck my friend, and please take care of yourself.

All my hopes and dreams for you

Ken

Craftysue1956 profile image
Craftysue1956

Hi. I think a lot of us have been we're you are with Drs. A lot still don't understand fibromyalgia sadly. Keep going and may be change ur dr, see if there is one in your surg that may understand it better. This is a great forum to be on. Where people all suffer. I myself have had some fantastic advice and guide line from coming on here. Wish you all the best. Happy new year to you.take care. Sue

lynn17 profile image
lynn17

It was same for me when I was going through it and not knowing what was wrong with me. But now I have a fantastic GP who understand all about Fribo.

Big soft hugs hun.

Lynn x

Trikki profile image
Trikki

How horrid to be in your situation when the GP won't listen and understand! I suggest you write down all your symptoms and present it to your GP in a nice way asking him to read it..or go to another doctor if you can. You will find the answer so keep trying....Gentle hug xx

Nanny40 profile image
Nanny40

As above a lot of us have been where you are!! It took me 15 visits in agony over a 4 month period before they listened to me and looked back over 10 years of my records to finally piece it together!! I had to stop working as my muscles wouldn't allow me to do what i had to, it's so hard being in pain everyday and then not listening, that was 1 of the reasons i got so depressed, but don't let them fob you off, keep going back until they listen. "They have to in the end" big hugs and good luck on your next visit xx

Dizzytwo profile image
DizzytwoModerator

Sometimes I dont think its that the doctors won't listen.It's just that they know there is very little they can do to help us find the relief we are searching for.

Also the cost to the surgery to go through all the elimination tests in order to get a fibro diagnoses in this time of cut backs to the NHS some doctors may feel their surgery money could be put to better use by helping others who have life threatening illnesses. Sad I know but true.

This does not mean many doctors don't care imo its just that they have to prioritise where the money go's. Unfortunately Fibromyalgia sufferes seem to be at the bottom of the pecking order.

I am one of the lucky ones who does have a good doctor sadly when it comes to having fibro these can be like searching for that elusive pot of gold.

Mo

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