At least now I know

Hi All,

I am new to this group. I only found out this week that I have fibromyalgia but have been suffering for years. At last I found a doctor that listened it has took a great weight off my shoulders. I'm not sure what I can do to help myself the pain most days is not good. I have other medical conditions as well. I don't sleep well which of late has got worse, so any advice is greatly received.

8 Replies

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  • Hello Sharron13

    Welcome to the forum :)

    I am sorry to hear that you have been diagnosed with Fibromyalgia, but very happy that you have found us!

    Your journey so far is very common amongst many of us here.

    As a starting point my personal advice to you would be to learn as much as you can about Fibromyalgia. If you have a look at our webiste you will find a wealth of information on there fmauk.org

    I would also suggest that you just take some time out to try to come to terms with the fact that you have a chronic illness for which there is no real help or cure.

    Many people think that getting a diagnosis is where their journey ends, as it were. Unfortunately it is just the beginning.

    There are a wealth of things that your GP can refer you for, some of them being Pain Clinics, Physio and CBT (Cognitive Behaviour Therapy).

    Have you started any medications yet? If not, it may be a good idea to make an appointment to see your GP and ask what he can offer you.

    With Fibro everything is a matter of trial and error. The problem being that Fibro is tailor made to each individual and we all suffer to varying degrees. What works for one person could potentially make another very poorly.

    I don't want to swamp you with information now, but just wanted to wish you a very warm welcome to the forum :)

    If you need any help at all navigating the forum, please give me a shout and I will be more than happy to assist.

    Wishing you less pain and more peace

    Lu x

    Administrator

  • Hi Sharron13 sorry to hear you have fibro, our forum is friendly and informative so please just ask as someone is always around, day or night don't sit wondering in the dark, come on here and have a chat. 🤗🤗 gentle hugs.

  • Thank you Robbie138 I knew I wasn't alone in having fibre but it is so good to be able to talk to people with the same condition and ask questions. thank you for the gentle hugs very much appreciated :-)

  • Hi Sharron13

    Hello and welcome to our friendly fibro forum.

    I can see Lu has given you some great advice specially to find out as much as you can about fibro, its symptoms and treatments.

    It is hard to generalise what we suffer most from or which medication works because we are all so different.

    Now that you have found us I hope we will be seeing more of you around the forum. :)

    Kay

  • Hi Sharron13

    Welcome to the forum and it is wonderful to make your acquaintance. I am so genuinely sorry to read that you are suffering and struggling and I sincerely hope that you can find some relief to your pain my friend.

    Apart form my pain medication, I also use a TENS Machine, and I personally find this quite useful. I want to sincerely wish you all the best of luck, and please take care of yourself.

    All my hopes and dreams for you

    Ken

  • Morning Sharron13 I know how you feel having just been diagnosed myself. This forum is so good knowing that you are not the only one out there and sometimes you just need a chat with someone other that your doctors...

  • Hi Sharron13 and welcome to our wonderful forum ;-) I'm sure you will come to love it as we all do. It really helps to be able to interact with others that are going through or been through the same experiences as yourself.

    I'm sorry that you have been diagnosed with Fibro but I know after having for years myself, like many other members, it was a relief as well to finally know what is wrong and learn how to come to terms with it and manage it, so I do understand how you feel my friend and I look forward to chatting with you on the forum.

    I see you already have some great advise that I cant really add to but just wanted to say Hi.

    Peace, luv n light

    Jan x

    PS. We do advise members to lock their posts to prevent it being obtainable on the internet.

    Pls follow this link to simple instructions on how to do it.

    healthunlocked.com/fibromya...

  • Reckon I've had fibro for nearly 30 years..diagnosed a couple of years ago..at last a Gp who listened and sent me to a rheumatologist..

    Also sent to sleep clinic.. Have severe sleep apnoea..cpap machine has soooo helped the fatigue.

    I agree its a weight off your shoulders, I worried I had some terrible illness, it's not a great condition to have but better knowing so you can work out how to deal with it. I cope better with the pain now ,I know I'm not going to die any minute, hopefully! Haven't found anything that works, diclofenac has wrecked my kidneys, take the odd Tramadol, paracetamol. To get relief from Gabapentin I had to take 1200mg, which messed with my brain.

    Good luck on finding your best treatment!

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