I just don't know what to say anymore... - Fibromyalgia Acti...

Fibromyalgia Action UK

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I just don't know what to say anymore....

fibrosam profile image
9 Replies

Hey everyone. Hope you are keeping well...

Jokes. We have fibro, there is no such thing as "well."

Ive had about enough this week. My new doctor (changed area) doenst believe in pain killers for fibro and has cut back on all of them, including anti depressents etc cause she says i dont seem to b depressed.

Needless to say i now am. to register at another doctors gunna take about 3 weeks. EEK. So i have to deal with this until then....

Plus the cold is gettting to me. Got in the house at 5pm and was freezing till 3am, even though the house was 22c and i had a blanket and full clothing on.

as always money is tight (never take out a payday loan... honestly worst mistake of my life)

christmas is coming and i cant afford presents...

f*** the world. :(

cept you guys.. you're awesome

sam xx

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fibrosam
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9 Replies
hamble99b profile image
hamble99b

hi fibrosam, what happened to that doctors oath "first do no harm" ?

as to the cold; I was the same yesterday, it's awful isn't it?

sending you warming hug,

sandra.

klm7777 profile image
klm7777

Hello- sorry to see you are feeling pants hope things look up soon . Xmas is stressful and I sympathise with you there. Can you handmake any pressies to save on cash? I think I might make some fudge for my nans this year - it doesn't look too hard and it will save me some pennies and I'm sure they will love it- got to source some cellophane wrap tho. Tk maxx is my saviour this year for my close family ive been lucky there really .

As for the cold - I was starting to feel alone with the not warming up problem - my family don't suffer this at all - I call it 'internally cold' because it's different from your outside is just a wee bit chilly - I don't know how to conquer this at all- socks usually help a lot tho- not normal ones the 'sexy' bed socks :) not too tight usually thick clunky fabric - somehow if my feet get warmer it tends to spur the rest of me on.

Right well almost bed time for me now.

Nn all good luck with everything xxxx

Extremelygrumpy profile image
Extremelygrumpy

So sorry about the gp,,,,, isnt there another one at same practice you could see quicker....and we have cut back on Christmas drastically , basically it's a tree and plenty of cheer with very small cheap presents for a few family the rest goes on my son, and money haha, everytime I make it back into the black in my bank I get a congratulations card from the bank...... I don't have many....

Please try not to worry about Christmas your health is more important, try to get some meds from another gp, there will always be more Christmases. I too. Can sympathise with the cold it's the same for me can't get warm at all, we fibromites need warmth in the sun abroad, yes we can dream, my last holiday was in Cornwall 12 years ago in a vile self catering mouldy chalet, we came home earlier as our own house was dryer

Take care

VGx

migrembe profile image
migrembe

The problem with pain killers is that we need to take more and more and when someone disturbs the status quo we mentally cope. However being a staff nurse when i GP suggested the same as your GP did i told him he must be joking but then i went home and tried to cut the amount of pain killers i was on myself. I now take half the amount and i don't have any more pain than before and taking more didn't help either. The one thing nothing helps is the tiredness. I have upped my gabapentin (GP knows) and half the amount of solpadol and ibruprofen i am taking. I feel better, i the pain is better and i also know that if i suddenly end up with more pain i can take more because i haven't taken my maximum. Research is showing that pain relief doesn't work well for FMS. I also take a happy pill but i have been to counselling too, not sure if you have tried it but it might help you. Go back to your GP and say your pain levels have got worse since he reduced the pain pills and if he shouldn't just stop an antidepressant he will sent you into withdrawal and should reduce the amount slowly over a few days or even weeks. Good luck, hugs xxx

migrembe profile image
migrembe

sorry mentally can't cope :)

Amgb profile image
Amgb

Hi Sam, so sorry to hear that. I'm allergic to pain killers and just have anti depressants. Really bad with the weather too plus back went Tuesday.

Sending you big hugs and hope you have a Happy Christmas Anni x

NWG23 profile image
NWG23

I'm afraid it's true painkillers are not the answer for the type of pain we fibromites experience. More and more research is coming to this conclusion. Personally speaking I find they make no difference. Lack of sleep and too much physical exertion causes pain like nothing else but the pain we feel isn't pain in the true sense of the word its the brains perception of pain which is heightened. Its a fault in our central nervous system. Understanding this really helps me. This could be the reason for the phrase ''its all in your head'' but its obviously not a phrase that is understood because it is used in a mocking way. However, we fibromites know better so let be encouraged! I am.

Ozzygirl64 profile image
Ozzygirl64

Okay I am annoyed. I have just checked three sites on fibro and each one says Amitriptyline are goo for fibro!!!! So your GP is talking pants and I for one would not accept. Some GPs fail to understand or even comprehend just how much pain we actually go through. I would almost certainly change GPs. As for everything else you are going through I am sorry and I hope things pick up soon xxxxx

Hi Sam, sorry to hear about your struggles at the moment. Hopefully once you've changed your GP things should get a bit easier for you. Once your pain is well controlled and your other symptoms too, you should hopefully feel better.

I am sure the people who love you aren't worried about getting a present, I am sure they understand how difficult it is for you at the moment. If they don't, try explaining to them. If you're going through a tough time then presents aren't exactly going to be top of your list.

Please know that we are here for you at all times and we will always try to do our best to help and support you along the way.

Take care Sam, you are doing the right thing changing your Doctor, so well done there. For a GP to stop your antidepressants and pain relief when you need it seems harsh, no wonder you are finding it tough at the moment. Try to keep as warm as you can, take Co-codamol in the recommended doses for your pain (if this is compatible with you), you can buy this over the counter at any pharmacy. Ask the Pharmacist first for advice on this. (Obviously this is only until you see your new GP when hopefully your new meds will be sorted out)

(((hug))) xxx

Libs

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