Pain : Hi everyone I've had chronic... - Fibromyalgia Acti...

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Pain

tophatdave profile image
9 Replies

Hi everyone I've had chronic back pain for a number of years now and i also have pain injections .Every 6 month's my vertebrae have all fused together now I'm on morphine pregabalin 300 in a morning and 300 in the evening, I'm also on sleeping tablets 10 mg in a morning and 10 mg in evening I'm also on co-proxamol and antidepressants this is never going to end and sometimes i feel my life is over I'm in a wheelchair a lot of time because of my pain i used to be very active .and holding down 2jjob's one a night and the coming home for an hour then going out to do a day job now all I do is wonder and get even more depressed .The medication I'm taking helps mildly with the pain but sadly will never end

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9 Replies
Trikki profile image
Trikki

I am sorry to hear you are in so much distress and pain....I assume with all your meds that your GP understands how you are at present. Maybe you need another chat with him/her? Have you been referred to a pain clinic yet or pain management....they can help when you really don't know which way to turn. Please don't give in to this horrid condition and talk to us whenever you need as there is always someone here to listen and give support when life gets us down..x

tophatdave profile image
tophatdave in reply to Trikki

Hi thank you for your feedback yes I go to the chronic pain clinic every 6 month's I spoke with my doctor a few weeks ago regarding my quality of life being compramized and if I could have an operation as all my dics have gone I was told I would be paralized so I'm stuck like cheque mate really

bluebell99 profile image
bluebell99

Hello tophatdave and welcome to our friendly fibro forum where you can get advice, support and help with a few lighthearted moments on the way.

Have you seen our Mother Site fmauk.org ?

Here you will find a wealth of information about all things fibro and links and guides to help.

If you look to your right, in blue you will find Related posts which give other members experiences also in Topics with Symptoms and Treatments.

Have you seen your GP recently? It may be that you need a review of your meds as they don't seem to be working satisfactorily if you are still feeling like this.

What you have written strikes a cord with many of us who have had a busy and active lifestyle in our pre fibro days.

When I had to give up work my biggest change was missing out on the banter and social life of my colleagues and I did suffer loneliness and depression. I think there are quite a few of us either going through or have been where you are now. It is like your life has no value any more. In effect it is like a period of mourning for the life we had before.

You have done right by coming here though and I hope you will become an active participant on the forum.

I do think it would be a good idea to lock your post for your own internet security and privacy. You are more likely to get replies too as an unlocked post means unlocked replies and some members are not comfortable with that.

Simple instructions for locking your post are in blue in Pinned Posts, where you will also find guides on how to make the most of this forum.

Kay

tophatdave profile image
tophatdave in reply to bluebell99

Thank you

rosewine profile image
rosewine

Welcome to the forum. Your post will have struck a chord with so many of the site as most of us had jobs that we loved, were extremely active and had a good social and family life and then our axis shifted and our world seemed to tip overnight and everything changed.

Like bluebell99 I miss my clients, my colleagues and getting out of the house to do something worthwhile as I used to be an advisor. My husband suffers with depression and epilepsy so is limited in what he wants to do and having no family and my two close friends are quite ill I too feel isolated.

We moved to a bungalow because of our health and even though in some ways it is easier, or will be when the place is sorted. I had lived within a mile of our old place all my life and am like a fish out of water here. I only share this so you can realise we can all emphasise with your situation only I am so fortunate not to be in a wheelchair but many of our members are the same as you.

I think if we are honest many if us wonder what the future will bring but i have decided not to look ahead too much but cope with whatever the day brings.

I too think a review of your meds if you haven't had one recently might help as our bodies can get used to our meds and sometimes just a simple switch can make things better. I would say with the amount of meds you are on it would drain you of energy I know in the end I had to accept more pain but a lower dose of Pregablin as I honestly felt brain dead and just wanted to sit doing nothing.

Has anyone suggested hydrotherapy or acupuncture as both can help immensely. I know my own acupuncturist has had quite a bit of success with people with spinal pain who through circumstances cannot have an operation. Mine is also versed in Chinese medicine and so takes the whole person into consideration, just talking to him and having explanations can help. He also is more knowledgeable about fibro than any medoerson I have met.

Please post as often as you want to and I look forward to your future posts.x

tophatdave profile image
tophatdave in reply to rosewine

Hi thank you for feedback yes I've had acupuncture and physio but to no avail doctor only 2 weeks ago put me on morphine .so where from this point only God knows I also moved to a bungalow life has slightly in proved and even on this medication I still try to keep motivated it's a case of pain threshold at points I feel free then all of a sudden bang back to square one its a bit like 20 time's tooth ake

rosewine profile image
rosewine in reply to tophatdave

I am not sure about your finances but lovely as she was the 8 sessions on the NHS did nothing at all but these paid for sessions have really helped me. I do wish there was something I could suggest for you that would help.x

tophatdave profile image
tophatdave in reply to rosewine

Hi rosewine thank you butthere is no magic cure i wish there was . IIt's so nice though to have some feedback on this , as people I know I think get fed up of seeing me like this I never talk about my pain cos I think people have there own problems without me adding to them again thanks rosewine I wish you well save.

TheAuthor profile image
TheAuthor

Hi tophatdave

Welcome to the forum and it is wonderful to make your acquaintance. I am so genuinely sorry to read of how you are suffering and struggling and I want to sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

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