Pain

[Mikeandemma]

Hi I don’t talk about it a lot but I need to I miss my life before this and just want the pain and ibs to stop I want to walk my little girl to school and walk my dogs and have fun with my bigger kids I want to go for long walk up the mountain again can do the graden again but the pain is to much doses the pain ever go away pain kills don’t help no more I can live with being sleepy all the time and having ibs I just want my legs back

[glochessum]

I really feel for you. It must be extra hard when you have a young family. I often feel the same way as do most sufferers on here.

[fibrogirl41]

hi I feel your pain I miss my life too. I also miss going for walks and being able to do my job., going for coffee and things. Please don't give up even though it is hard. Good luck I hope you get some treatment soon or hydrotherapy.

[Mikeandemma in reply to fibrogirl41]

Thanks for you lovely words

[Midori]

I miss my former sporty life too, as do many of us. I used to rock climb,archery, fencing, Aikido, Ballroom dancing, Theatre Arts, horse riding, (sidesaddle) was a fave.

Can't even climb stairs now!

As time goes on, you will find things do ease as you get used to it. Ask your doctor to try other medications, until you find one that suits you.

Don't give up on gentle exercise, it is important to try to keep as much fitness as possible, I find Tai Chi is good; it is a slow and gentle moving excercise (technically it's a Martial Art vastly slowed down). There are Youtube videos, but it is best to join a class, for the friendship if nothing else.

Get out in the garden, even if you can't do much, your body needs the sunlight to convert Vitamin A to Vitamin D in the body. Vitamin D can help with pain.

Look up The Spoon Theory on the Net; This can help you explain to partners, friends and other folk, why you can't always socialise. It also helps you understand how your energy depletes during the day. Technically, it is possible to ' borrow' from tomorrow's energy, but resist the urge, unless it's something like a wedding or other big social occasion.

Think of your energy like a bank account, you get a certain amount of energy each day to pay for all the things you have to do, but try not to get overdrawn, because the interest rate is very high, and the eventual price is a Flareup.

When you are physically working, take it in short bursts, (15 to 20 minutes) then rest for about the same amount of time, before doing something different, then rest again, then you can get back to the first thing. Variety in your working days stops the various muscle groups acting up, because they think you are abusing them, I do understand why, I've had Fibro for many years and I'm now 74!

Hope some of this wall of text helps you,

Cheers, Midori

[ButtercupDaisy in reply to Midori]

“Think of your energy like a bank account, you get a certain amount of energy each day to pay for all the things you have to do, but try not to get overdrawn, because the interest rate is very high, and the eventual price is a Flareup”

Thank you Midori - this is the best analogy I have come across for Fibro and will be my new ‘go to’ quote!

[TeddyC in reply to Midori]

Thank you for the analogy Midori, it has served as a timely reminder for me. I have ovarian cancer and had major surgery last year. I had complications, so wasn’t able to keep up with the gentle exercise for 10 months. As things have now improved I’ve been trying to get back to my former self too quickly and I’ve caused myself to flare. Your post has come as a timely reminder that I need to be a bit kinder to myself, remember the spoon theory, and take things more slowly!

[Matrix]

Hi sweetie ,I had fibromyalgia from childhood and I feel for you with children I know how hard it is ( I had 3 ) it’s not easy .I think you have to grieve the loss then you can move forward and my biggest help is I got a hobby that I love( crafting) .Try not to keep pressing that sadness down you need to grieve it .Life is different now and it hurts a lot,but you can still have a life and most importantly pace yourself .

Go out and find a hobby it will divert your mind from the pain . I’m now a nana and look after two grandchildren a week ,it near kills me for the rest of the week but it fills my heart with so much joy and fun that although i shouldn’t I live for it .🙏🏻🙏🏻💕💕

[PenelopeClearwater]

Hi lovely

I can definitely relate. I was never a gym bunny, but I loved travel and being able to go on adventures - I feel like that’s over for me, now.

And I was training to be a teacher when I was really struck down - I just miss working with the little ones, but I can’t handle a room full of 4/5 year olds, who want me to play all day…

I get really tearful a lot lately, not least because I’m almost 37 and had to move back in with my parents a while back so I could study and now just so I can have support taking care of myself…

I really really hope there’s light at the end of this tunnel.

Sorry my message isn’t full of hope 😅

Actually, I have started making bead necklaces and will be starting an Etsy shop soon. Plus I’ve been writing some poetry again lately.

Maybe you and your children can do some craft hobbies or something like that together. I’m new to the condition and am slowly beginning to learn that I have to change my perspective and find new things to bring me joy…

This group helps so much 💕

Good luck - sending hugs 💙

[Debbs73]

I totally understand where your coming from. I'm going through the same, have suffered for over 20 years. I feel your frustration, anger, I too which I had my old life back. Most sufferers on here feel the same so your not alone there is always plenty of people to talk too.

[Lizzyear]

I feel for you. It is so hard getting used to the fibromyalgia limitations. I do think you you have to allow yourself to grieve the life you used to have. Then give your life you now have the best, positive go you can. You will be amazed how much (with a bit of tweaking ) you can do with a bit of help from grabbers, sticks, buggies etc. I wish you the best of luck. Take care. 🤗 x

[CheetieCat]

Have you ever tried a vibration plate?

I've used one for years and find it helps my legs so much, pain wise and muscle strength.

Some people can't tolerate them but might be worth trying?