Underactive thyroid: Hi i have... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,983 members67,145 posts

Underactive thyroid

cathy1110 profile image
24 Replies

Hi i have fibromalyalgia among other things i had a thyroid test it came back underactive. Then i had another blood test and it came back normal after 2 months i worried now that it could still go underactive

Written by
cathy1110 profile image
cathy1110
To view profiles and participate in discussions please or .
Read more about...
24 Replies
Trikki profile image
Trikki

I think a visit to your GP would be sensible to try to get some answers....

ryanbone10 profile image
ryanbone10

Hi Cathy, have you joined Health Unlocked Thyroid Forum.

They'd have more Info on Thyroid issues? x

cathy1110 profile image
cathy1110 in reply toryanbone10

Thankyou will look that upx

ryanbone10 profile image
ryanbone10 in reply tocathy1110

Hey cathy1110 , If you look up to MY Communitites on the top of your page, click on the up side down v.

Click on browse communities, then select Thyroid forum x

cathy1110 profile image
cathy1110 in reply toryanbone10

Thankyou

cathy1110 profile image
cathy1110 in reply toryanbone10

Hi have been to doctors he said to have another text on 6 months time seem far toolong.

cathy1110 profile image
cathy1110 in reply tocathy1110

What to know if it still gonna go up and down now and what cause it go go indeactive

I have an underactive thyroid, I have had it since i was 16, now 21. I also have lupus and tissue disease...

Iv never really noticed anything different wth having a thyroid disorder except just feeling the cold alot.

I wouldnt worry too much about it, the more info you get from your gp the better. Also look on the nhs website about it to give yourself some more info... they will usually just keep doing your bloods every 4 weeks to see how the levels go then put you on levothyroxine.

cathy1110 profile image
cathy1110 in reply to

Thankyoux

Hi cathy, yes this has happened to me recently, thyroid glands are very small but a nuisance at times, diet and pills have some effect on this, they also control some of the weight we carry, I have piled it on whilst on a diet! I have extreme fatigue-more than normal with fibro, BUT I,ve also been tested for sjorgrens syndrome and I expect that to be the culprit..I,m having mine checked again 3 monthly with B12 injections, if there are 2of the 3 showing underactive then I might have to start thyroxine-not looking forward to that really!

cathy1110 profile image
cathy1110 in reply to

Thankyou for your reply hope things turn out ok for youx

cathy1110 profile image
cathy1110 in reply to

Thankyou i have fibo and suffer a lot with exhusten so can i get vitamin b injections my doctor has not mention this and does it help you with m.e side of fibo

LtAngua52 profile image
LtAngua52

Please look at the thyroid forum too. What a doctor says is 'normal' doesn't necessarily mean your thyroid is ok, it just means it's in range. If they said you were underactive before then your tsh is over their range. Do you know what it was and if they did your t4 as well. The t3 is rarely tested yet that is the most important factor in determining if your thyroid is ok or not. 90% of people with an underactive thyroid find that it is caused by an autoimmune disease called Hashimotos. This causes flare ups, and at that time, when the thyroid is being attacked, will cause fluctuations in the thyroid results.

The test for hashimotos is the TPO and TGOB, in short hand. If your gp has done them get the result. Doctors don't tell you if you have hashimotos as the treatment is the same, although a gluten free diet can reduce attacks.

Yes, I have fibromyalgia as well as hashimotos/hypothyroidism and b12 deficiency and learnt about all this on the thyroid forum. Post your blood test results on there and members will gelp you. By the way, untreated and undiagnosed hypothyroidism is sometimes misdiagnosed as fibromyalgia. Been there done that! Good luck. :-)

cathy1110 profile image
cathy1110 in reply toLtAngua52

Thankyou so much for your replly been very helpfull

cathy1110 profile image
cathy1110 in reply toLtAngua52

Thankyoux

peck profile image
peck

cathy1110 , I have underachiever thyroid and have for 8ish years. I've been taking meds for this long as well and had my last blood work 3 weeks ago and it is still abnormal.Were you put on meds to take care of this or did it just come back normal?? I don't get it. Peck🐤

cathy1110 profile image
cathy1110 in reply topeck

No meds as second text came back normal but somethink made it go undeactive so i thinking can do it again

peck profile image
peck in reply tocathy1110

I would have it rechecked but from what I under I will probably be on meds the rest of my life. Your thyroid can make you feel horrible. I wish you the best.Peck 🐤

cathy1110 profile image
cathy1110 in reply topeck

Thankyoux

TheAuthor profile image
TheAuthor

Hi cathy1110

I think a trip back to your doctors would be best my friend? As the others have said it may also be beneficial to join the thyroid forum and see what they say as well? I want to sincerely wish you all the best of luck, and please take care of yourself.

All my hope sand dreams for you

Ken

cathy1110 profile image
cathy1110 in reply toTheAuthor

Thankyoux

TheAuthor profile image
TheAuthor in reply tocathy1110

Good luck my friend x :)

Littlestar82 profile image
Littlestar82

Hi Cathy. I'm currently going through the system for a cfs diagnosis. When I had a blood test the TSH levels were high, went back a month later, they're borderline. Got to have them tested again in 6 weeks.

cathy1110 profile image
cathy1110 in reply toLittlestar82

Hi hope you get right dignosies gos well for youx

Not what you're looking for?

You may also like...

Fibromyalgia and underactive Thyroid

Hi 👋 I was wondering how many fibromyalgia sufferers also have thyroid issues especially...
Lynn101 profile image

Weight Gain (Fibro and Underactive Thyroid)

I have Fibro and an underactive thyroid and am really struggling with weight gain. Is this common?...
catleigh profile image

Is there a link between fibromalgia and underactive thyroid ??

Hi, first time on here. Most of my adult life I have suffered from pain related illnesses ever...
Angeren14 profile image

Can you take melatonin to help with sleep if you have an underactive thyroid (Hashimoto) & fibromyalgia?

Hi, real problem sleeping, melatonin was recommended and I was delighted, thought I had found my...
Fiberno profile image

Under active thyroid blood test

Hi all wondering if anyone can help me my 15 year old daughter has fibromyalgia I asked to have a...
Hollie121 profile image

Moderation team

See all
Hazel_Angelstar profile image
Hazel_AngelstarAdministrator
Lynda_FMA_UK profile image
Lynda_FMA_UKModerator
Sarah_fmauk profile image
Sarah_fmaukModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.