Newbie from Yorkshire

Hello to everyone, my name is Lynne. I've just found this site and I'm looking forward to hearing from other people with the same condition which most people just don't understand.

I was first diagnosed with fibromyalgia 9 years ago when I was in my mid 50s and managed quite well for quite a few years. But I've been really struggling this year with numerous flare-ups of muscle weakness and especially the fibro fog and dizziness.

I'm new to forums so am a bit apprehensive about posting but will definitely be reading with interest.

Best wishes to one and all.

12 Replies

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  • Hi coops99

    Welcome to the forum :)

    I am sorry to hear that your Fibromyalgia has spiralled out of control recently. Have you been through any stress recently? That usually causes lots of flares to happen.

    If you take a look at our mother site you will find a lot of information about Fibro on there fmauk.org

    Please do not feel nervous about posting. If you need any help at all with navigating the forum please let me know and I will be more than happy to help you.

    If you take a look under Pinned Posts in Blue (you may have to click on "view 15 more") you will see some guides I have written about doing things like writing pm's (private messages) locking posts, etc.

    If you need any help click on my profile pic and then you will see an option on the top right "message". Click that and then you can write to me with any queries you may have.

    I very much hope that you enjoy the forum. You will find everyone kind, compassionate and supportive.

    The forum is fairly quiet over the weekends so don't worry if you do not get many replies today.

    Wishing you less pain and more peace

    Lu x

    Administrator

  • Hiya Lynne welcome to the gang. Sorry your having so many flares. Any idea what is causing them? Please don't be frightened to ask questions or have a rant. We're all friends together here and understand what your going through. Take care xx

  • I can't think of anything specific that could be causing flares, I've had no extra stress this year.

    I've been feeling really "doddery" in recent weeks with shaking hands and balance issues as well as the dizziness and foggy brain. I do have arthritis in my neck which may be aggravating things, so my GP has ordered x-rays of my spine to see if it could be related. Hopefully will get the results next week.

    I had to use a walking stick for the first time last week when I went out as my balance was so bad. Really down about that.

  • I remember the first day I had to use one. I felt as if I'd aged sooo much but needs must....I have dizzyness and balance issues too. I have cervical spondylosis so I understand your pain. Mine is playing me up a bit today 😬😠. Glad your getting xrays done. I will just say I don't know your circumstances but if your condition is getting worse then keep as much medical evidence as you can as you go along. It comes in extremely useful. xx

  • Hi coops99 welcome to the site, I'm sure you will like it here. Best bit is it's open 24/7 so don't sit and suffer someone will always be around.

    Take care 🤗

  • Hello and Welcome.....You have come to the right place for help, support, latest info for fibro and a giggle (at times!) I remember when I had to start using a walking stick...I felt old and decrepit! Not a good feeling when you are not yet 50.....That is a long time ago now and I am nearing 70 and now have at times to use a wheelchair...When I look back at my life I have had some wonderful times and seen some wonderful things and these I focus on and what I can accomplish in the future. I have found through this forum that I have gone back to painting due to posting one of my efforts and everyone has given me the push to try again and that is what we need to do....focus on what we can do not what we cannot!!!! Use your walking stick with pride....because without it you would be b........d! My walking stick actually causes conversation as I have a record of all the places I have travelled world wide....it was actually written up in a Canadian magazine once.....so go for it!!! xxxx

  • Hi and welcome to our friendly site, I'm sure you'll find lots of help and support on here as we're all in the same boat trying to cope with fybro, I've steadily got worse over the years too but thankfully don't use a stick, yet. I get dizzy and awful neck pain from arthritis of my spine so it could be that, hopefully the X Ray's will sort things out, good luck

  • Hi coops99

    Welcome to the forum and it is wonderful to make your acquaintance. I want to sincerely wish you all the best of luck, and please take care of yourself.

    All my hopes and dreams for you

    Ken

  • Welcome to the forum, the more you read about others the more you will learn about yourself.

    and the more you post about your problems the more we will learn about ourselves.

  • Hey Lynne welcome to the forum you will find loads of helpers on here and will be with you through thick and thin. Take care 😘😘😘

  • Thank you all very much for your warm welcome. I've had a good look around and have found some very helpful posts.

    I've no energy or "get up and go" today so have spent all morning on my iPad (I sometimes think I spend too much time on it). I've lots of Christmas cards to make but can't think about sitting at my desk.

  • Hi coops99, doesn't time fly when your enjoying yourself ( on iPad) when I'm on mine and I look up and see what the time is 😛Lol. You don't even have to engage, just reading some nice posts is all it takes. Hope you enjoy 🤗🤗

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