Newbie and recently started Tramadol! - Fibromyalgia Acti...

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Newbie and recently started Tramadol!

Dexter927 profile image
Dexter927
โ€ข28 Replies

Hello, It truly amazed me and saddens me to see how many people worldwide are struggling with pain and chronic illnesses. I've just started (last Tuesday) Tramadol 50mg twice a day. Although I'm allowed up to four a day. I've been extremely fatigued and have a dreadful time waking up. Yet, can't sleep very well either. So, I've opted to take it earlier in the day and take my Xanax (1/2mg) at night to calm down and sleep. However, I've also been struggling with feeling Hot and cold alternatingly. Not so sure about all this but, really need a ray of hope at this point๐Ÿ˜€

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Dexter927
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Steve49 profile image
Steve49

Hi.

Welcome to the site, have you just stared Tramadol & who prescribed it in the first place ???

Sorry but have you gone to the four a day ????

Does it make a difference to your pain ????

Do you just take the Xanax as well ???

I'm very sorry, just trying to get a picture.

Steve.

Dexter927 profile image
Dexter927โ€ข in reply toSteve49

I've been on the xanax for a few years for anxiety at night. The Tramadol was prescribed by my GP and no I've stayed at 50-100mgs a day. It does seem to help with the pain and at one point even my depression. I'm probably just adjusting still. Thank you for your reply๐Ÿ˜‰

Steve49 profile image
Steve49โ€ข in reply toDexter927

Hi.

That's no problem.

Anytime.

Steve.

Wow 50 mg Tramadole ! Well your a brave girl Iv tried them I could not handle them and I'm in contact pain I take pregabalin and Ibrephen that's all now O I forgot sleeping pills at night . Yes there's a lot of us in cronic pain world wide as you say , you find there are a lot of strange illnesses out there Nice to have you around

Dexter927 profile image
Dexter927โ€ข in reply to

Thank you! It's nice to have somewhere to talk with others about similar issues. I know there are various sites but, something about this site feels right.

Dexter be carful with those Tramadole Yea the do help the pain When I came off them i got old turkey for aweek

โ€ข in reply to

Sorry I meant to say cold turkey ๐Ÿ˜Ž

โ€ข in reply to

Guess what I had cold turkey , egg, chips and beans for tea tonight ๐Ÿ˜‚๐Ÿ˜ƒ๐Ÿค“

Dexter927 profile image
Dexter927โ€ข in reply to

Yes, that's definitely not something I'm looking forward to down the line. Which is why I'm trying to stay on a low amount. Here in the U.S we don't even have the option of paracetamol or the like. At least not without a prescription.

Tabby-Cat profile image
Tabby-Catโ€ข in reply toDexter927

Paracetamol is just the British generic name for Acetaminophen. When you in the US buy Tylenol you're buying paracetamol, you just give it the generic name of acetaminophen.

You have Autoammune desease too that's horrible Well we are all here to help

Dexter927 profile image
Dexter927โ€ข in reply to

Thanks, yeah I have a lot of health issues. When my fiance died back in 2011 I found myself lost in many ways. I'd spent a lot of time and energy to get him pulled together and then when his mom passed away his sister kinda turned on him. Afterwards he spiralled downwards quickly and gave up on his own health. Last week made 5 years since he passed and I feel like if I've made it this far that maybe I'll be ok. ๐Ÿ˜ƒ

โ€ข in reply toDexter927

Blimey you had a rough time haven't you lets hope we can all cheer you up Death and illness is not good for no one , Yea I know the Us is a lot different from the uk with regard to medication , We are lucky here in the UK If you get a serious illness medication is free and we have the NHS which is all free also ๐Ÿ˜Ž

TheAuthor profile image
TheAuthor

Hi Dexter927

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I have pasted below a link to our mother site, FMA UK which hosts loads of useful Fibro information:

fmauk.org/

I am so genuinely sorry to read of how your are suffering and struggling and I sincerely hope that you can find some resolution and relief to these issues. It may be worth discussing alternative medications with your doctor or medical specialist if your current medication is not working effectively for you?

I want to sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

Dexter927 profile image
Dexter927โ€ข in reply toTheAuthor

Thanks for the link and kind words. Yes, I've always been a big health food and homeopathic medicine proponent. Honestly, in the U.S you have to look at all alternatives because, the level of health care, generics ,etc. Luckily, I am able to get Kratom here until someone finds away to pass a bill against that as well but, I try to keep some around to brew for tea on really bad days.

TheAuthor profile image
TheAuthorโ€ข in reply toDexter927

Good luck my friend!

Westiebabe profile image
Westiebabe

Ive been prescribed tramadol which I take two 50g tablets 4 times a day plus two paracetamol 4 times a day then naproxen morn and night. I've never had any side effects or any funny feelings with the tramadol at all it doesn't effect me at all other than coping with the pain yet everyone I talk to has problems with it. Is anyone else like me ? I only take them when the pain is really bad, if I'm not going out or doing anything and the pain is not too bad I try and manage without them .

Trikki profile image
Trikki

I have Tramadol 50mg and can take 1 or 2 (depending on pain) twice a day and have no problems with it. Also Amitriptyline 50mg at night, co-dydramol 20mg 4 times a day. I don't necessarily take them all if I can cope without but no side effects.....We are all so different when it comes to meds.....I really hope you get your meds sorted soon....Hugs

Trikki

Dexter927 profile image
Dexter927โ€ข in reply toTrikki

Indeed, it's one of the most unpredictable medications available it seems. I wonder how much of the various side effects have to do with the SSRI ability of it. I say that because with most SSRIs the initial adjustment period and it's difficulties is concurrent with the levels of the individuals serotonin and norepinephrine, etc. So if someone's levels are really low the adjustment is more pronounced. Hopefully mine have settled down now. Lol

weetam profile image
weetam

Hey you should ask for slow release Tramadol as they last for 12 hours and are easier to manage as the side effects are more subtle whilst giving pain relief for most of the day.

Dexter927 profile image
Dexter927โ€ข in reply toweetam

I'll try that suggestion, thanks. I have to find another doctor because, after 7 years of not relying on my GP do much. After the last appointment when I told him about my recent ER visit for a Diverticulitis attack. He announced that my case was too complex for him. "Sigh" At least he sent me off with some medications and refills to try.

Maggiefloss profile image
Maggiefloss

I have taken up.to 8 Tramadol per day for a spinal problem. I am reducing it slowly and only take 4 a day at the moment. I know when my back aches the Tramadol will relieve it, but it doesn't have any effect on the FM pain. I take two when I go to bed, back is fine but I can't sleep well because of the Fibromyalgia pains in my legs. If it isn't one thing it's another! I am finding amytriptyline is helping clear the brain fog.

Dexter927 profile image
Dexter927โ€ข in reply toMaggiefloss

I agree it's always something or some new symptom. How people manage to get through work I can't imagine and more people are being diagnosed daily and as young as 12! Something's wrong with our environment obviously. Thanks for the information๐Ÿ˜€

Maggiefloss profile image
Maggieflossโ€ข in reply toDexter927

I know we are better at diagnosis with the advancements in science, but I agree about environmental effects.

albinohedgehog profile image
albinohedgehog

Heya! Welcome to the group.

From personal experience with tramadol I would say it might be great for you, but it does sometimes come with problems. Be careful about addiction, and also your mood going up and down. Also it can be a little like caffeine in that it makes you think you've got more energy than you do! Also withdrawing from it is pretty horrendous so try to take the minimum amount incase you do want to come off it in the future.

Having said that I think the most effective painkiller for Fibro pain, so as long as your careful it might be useful for you. ๐Ÿ™‚

Best wishes.

Hedgehog. X

Dexter927 profile image
Dexter927

Thanks everyone! I'll be 52 at the end of September and yet I feel like I'm 90+! Lol.... I really feel bad for all the younger generation being diagnosed with Fibromyalgia and various chronic conditions at such young ages. I was actually diagnosed around 20 years ago but, I think I'd be really upset if I had my quality of life affected so early on. The last 3 years I've been able to stay home and take care of my boyfriend's house, cleaning, cooking, laundry, etc. I also make jewelry to sell at a couple local shops. I'd sell online but, I really couldn't keep up with it to that degree. Originally I was a clothing designer and had an actual store as well as designed for a dance/show club but, as thing's progressed and the economy sunk I had to close. Until 7+year's ago I was able to hold a full-time job but, that's become pretty impossible anymore. Hopefully I can get some help by applying for disability benefits. "Hugs"

TheAuthor profile image
TheAuthorโ€ข in reply toDexter927

I am so genuinely sorry to read that you had to close your store. The economy has been the same here and many smaller traders / business folk have needed to close their doors also. Please take care of yourself my friend.

All my hopes and dreams for you

Ken

rosewine profile image
rosewine

Welcome to the forum. We have understood from other people on this forum who live outside the UK that the health system and disability system is very different from ours. Many if the drugs we take were first developed outside the UK and only filter down to us several years later eg Pregablin.

I tried Tramadol several years back and if I remember it did help more with the pain but it gave me a really strange headache that just kept on getting worse and I felt out of it. Now I am on Pregablin for the fibro and Cocodamal (Zapain) 30/500mg and Ibuprophen for osteo arthritis.

Strangely enough when I went to my new GP a few weeks back when pain had flares he has given me Tramadol and paracetamol to try and help with flares instead of the cocodamal. For some reason many people have found that taking paracetamol with the Tramadol really helps the pain but of course some people have to be careful because of rhr other meds they are on. Fortunately the intense pain receded quite a bit whether just naturally or whether because I am paying privately for acupuncture and help with a Chinese medical practitioner I don't know so I haven't used them. Some people swear by Tramadol other people have had a horrendous time.

It seems as though you have gone through some very hard times. It must have been tough to have to give up your business and also lose your fiance. Many Including myself have had to give up jobs they loved and it is really tough.

Many people have found some success with alternative help such as hydrotherapy, physio, acupuncture and supplements so so stones they are certainly worth a go. So hope you get a new doctor who can help you. Hope you can get some disability benefits as it all takes the pressure off. Look forward to your future posts๐Ÿ˜‡

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