Newbie

[aeonturnip]

Hi,

Just come back from the docs where they said it might be fibromyalgia and have put me on amitriptyline. Basically, my blood test came back normal, but I've been having increasing headaches and pain in my shoulders and back which are waking me up many times in the night so I'm getting really worn out.

I'm having an MRI tomorrow as there's another theory that it's to do with a cycling accident two years ago when I bashed my head. That left me with word recall problems, which have persisted and I feel like my memory isn't what it was - whether that's fibromyalgia or the accident I don't know either.

Just wondered if anyone else has had a non-comittal diagnosis, has been put on amytriptyline, etc, and wanted to compare notes on the type of pain people get with this. My shoulder/back pain is very much worse overnight / in the morning, tends to ease during the day but never completely. Feels like a muscular thing - I used to do a lot of weight training and it's a bit like delayed onset muscle soreness (DOMS) that you can get a couple of days after a heavy workout, although with some sharper/stabbing component. And, of course, this isn't going away after a couple of days - it's been months now and I haven't worked out in months either.

Anyway, excuse the verbal diarrhoea, hello to you all and thanks for listening.

[YASMINTINA FMA UK Volunteer]

healthunlocked.com/fibromya... Hello there, I have read more than once that after an accident/trauma has resulted in people being diagnosed with fibro, proberly the heavy workouts might be a thing of the past now as will trigger more pain for you, could you try gentle swimming to help keep muscle tone, if doctor not sure they sometimes recommend you to a rheumatologist for diagnosis. If you would like to lock your posts there is a link above. Welcome to the forum people are pretty good here, share their thoughts, advice , tips etc so worthwhile reading some posts.

[Elf6]

Welcome!! My pain is usually worse through the night and in the morning, it feels like a cramping pain! My shoulders and hips are the worse culprits! I take amitriptyline at around 5pm, this helps me to have a more restful sleep. If I take it too late in the evening I really struggle to get out of bed! I have been diagnosed for around 8/9 years and this was through a rheumatologist. I also have joint hyper mobility syndrome so that causes me pain too! I have in the past been given multiple medications to try for my fibro but unfortunately in my case none of these helped and in fact the side effects just made me feel worse! Amitriptyline is the one thing I have consistently taken.

Hope this is of some help, all the best x

[benfica19]

hello,

My experience is very similar to your own having only been diagnosed in April 19 (first time I had even heard of the Fibromyalgia. Amitriptyline didn't work for me as i felt like a zombie all day long...have now gone on to Gabapentin which has worked a treat as now I can still work. Of course the pain never goes completely and some days are better than others. I'm still coming to terms with what FM really means. Unfortunatley I do have the mentally that I shouldn't burden GP or rather I hate going to see the GP as its always a different one and I feel like I repeating everything time and time again (so frustrating). Although its been a long journey as symptons started rougly in 2012 (i think I've had every test done even a whole body scan) and its now 2019 and the conclusion is FM with a few other problems. The recent sympton is a burning sensation on my face and rash to boot...really distressing but life goes on.

I've only started going back to the gym after not going for 1.5years (two weeks ago). I don't push myself in the same way. As you righly said the DOMS were unbarely as my body never recovered no matter how much rest I had (barely never as I couldn't sleep with the pain) so I did have to stop but I did take up pilates which even itself was sometimes unbarely but i felt that I least needed to do something once a week.

keeping going and try to stay mentally strong which is difficult but we have to try

[3panda8]

Hi there,

My doctor is at a loss with me. He did every blood tests he could think of, but they all turned out to be fine. On the yes side, I have a under active thyroid, UColitis and may be RA 9 they cannot make their mind, consultant says yes, nurses and Gp say no>>> -

Anyway, my Gp now concluded that I have fibro, on the mild side, if there is such a thing... my symptoms are: I feel very very tired all the time. Every day is an effort to do the slightest chore. I sleep very badly, used to be an 8 hr regular, but now I am lucky to get 4 or 5 hr a night. Sleep is disturbed. I get bad headaches and horrible metalic shots in my teeth. I have had them checked out but nobody can give me a reply. My body is painful at different places, never continious, comes and go. Am I just a weird speciment or is there anyone out there like this???

[Mrziggs1]

Hi I was given a low does of Amatriptyline due to the fact I wasn't sleeping this was originally thought to be because of depression. After a period of time it was upped due to pain which at the time the docs didn't know what the cause was. Since been diagnosed with fibro hypermobilaty and arthritis. The amatriptyline does help me sleep I take at about 8.30pm it no longer makes me drowsy. It helps me alot

[Hidden]

It did not help me. I have neck issues and nerve damage back of head. Work on your occipital base of skull with physio and your jaw and core and neck exercises. Try to eat clean and keep your stomach strong. Both affect my fibromyalgia a good physio will work on your neck shoulder traps that will help a lot. Watch any overhead and lifting. Use only light weights now. It’s hell. You might do better on a low dose anti psychotic it seems to help with sleep & energy but is hard on stomach. Not seraquel more like resperidone there’s a few like that. You’re probably thinking that’s crazy but it helps. I had to stop it because I have gasteoparesis but it really helped my energy and coping. Try to keep up the exercises and stress down. Put yourself first.

Try also gargling several times a day it helps the vegus nerve and placing your fingers on your tongue depressing the tongue swallowing and breathing exercises