Sickkkk: Hi all. I'm so fed up with... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Sickkkk

1234letsgo profile image
18 Replies

Hi all. I'm so fed up with having fma. I tell myself that I don't have it. But it creeps back. Sometimes I wish I wasn't here. I'm sick of not sleeping well.im sick of the pain. I'm really sick of the medication.but then I bounce back and have a good day

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1234letsgo
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18 Replies
angiesmith50 profile image
angiesmith50

It's these rare better days when we can partake in life that keeps us going. Take care and keep your chin up

Scottish-piglet profile image
Scottish-piglet

We all feel like that but your PMA must help. I wish the rest of us could have a good day x

Kathy70 profile image
Kathy70

i go through that myself, trying to convince myself that I don't have it and its all in my head then my body makes a lier out of me by having a flareup

TheAuthor profile image
TheAuthor

Hi Sickkkk

Welcome to the forum and it is wonderful to make your acquaintance. I have pasted you a link below to our mother site, FMA UK which hosts loads of useful Fibro information:

fmauk.org/

I am so genuinely sorry to read of your suffering and struggling and I want to sincerely wish you all the best of luck.

All my hopes and dreams for you

Ken

Leonwp profile image
Leonwp

Grab those good days and focus on them, one thing i found on a bad day was to write a long email to friends i keep in touch with telling them all about the good day, that way i dragged a whole big chunk of good into the bad day and at least shone some positive light for a while, that way i shoved the bad day to one side and almost always got a positive reply from friends who probably thought "hello Leons having a s**t one, even if their replay wasnt a positive one i would concentrate on their problems for a while which took my mind away from my own worries, if you have no one to send them to send me a "great day" message cos i love to hear about anyones good day. Google a verse called DESIDERATA, i have read it over and over for the last 44 years, at different times in my life it has taken on different meaning. Hope this helps.

ShellyC23 profile image
ShellyC23

I can relate to this - since the age of 3 I've been 'collecting' medical conditions. Being diagnosed with fibro this year on top of everything else just seems so unfair. Most days I just trundle on from one lot of medication to the next but sometimes I have a pity party and spend the day on the sofa feeling sorry for myself - then I give myself a verbal 'kick up the backside' and the trundling resumes. My point is that we all have days like this but sometimes the body needs to rest so just go with it. Hope today is better x

Used2be profile image
Used2be

Hallo Sickkkk!

Just wanted to let you know you're not alone, I'm fed up too! I've been ill all my life & am now in my 50's. Feel life has slipped me by. Don't know whether that helps or not...but I thank Hod for sunshine, flowers, gentle breezes and gorgeous views. I make myself go out each day & stop and look at nature, even if it's just for a few minutes.

I hope you feel much better soon.

gemmagusjessmika profile image
gemmagusjessmika in reply toUsed2be

I second the going out and looking at nature, sunshine, flowers and gorgeous views. I live in a really poor area with the most stunning views, so I've got the best of both worlds. I just have this Hod awful condition, like you and am nearly 60. I do have dogs however, which are my reason to get up in the morning. I worry whether I'll complete a walk unscathed (and don't always) but I keep going. The night before last we saw a hedgehog and a few weeks ago a slow worm. In April there are hundreds of frogs and the birds are amazing. I can see the sea from my bedroom window and regardless of the weather, its always breath taking. I hope you didn't mind me making fun of your mistake, its what makes us human.

Used2be profile image
Used2be in reply togemmagusjessmika

God carries our burdens like a Hod?!!

gemmagusjessmika profile image
gemmagusjessmika in reply toUsed2be

That's one way to look at it......Good answer! (or is that, Hood answer) lol

Annetteb2 profile image
Annetteb2 in reply togemmagusjessmika

I like this reply. It sounds as though, like me, you find a lot of comfort in nature. I also have dogs who keep me going. There's nothing like the unconditional love they give you!

Annette xx

gemmagusjessmika profile image
gemmagusjessmika in reply toAnnetteb2

I find stroking them is quite therapeutic as well (for all concerned). My German shepherd has the longest softest fur around her ears.

My Husky is a veritable wind tunnel and I wish I could 'bottle it', to use as required, I'm sure it'd help me sleep lol.

I'm sure, if I didn't have them though, nor the ability to appreciate all the 'wildness' outside, there'd be nothing to wake up for.

I wish you and your dogs, only good days

Gemma xx

G4AUD profile image
G4AUD

Another reply that can totally relate to you. I get fed up of myself daily feeling tired and drained no energy limbs aching miserable. I beat myself up because if thats how I feel so what must people around me think of me ? Then I get my good days and I enjoy every minute be happy look at the world through appreciative eyes . It's such a hard illness to deal with as it has so many symptoms any symptoms most people don't understand. This site is invaluable .... You can talk and talk and tell people who understand how you feel and that really does make you feel better.

Grab those good days with both hands and enjoy every moment X

gemmagusjessmika profile image
gemmagusjessmika

The best part of your message was that you bounce back and have a good day and as long as you keep doing that, you're not letting it beat you. Well done you. Here's to more bouncing back, loads more good days and a happier you.

I've only had one good day and it crept up on me (probably by mistake). By lunch time I thought I must have been misdiagnosed and whatever I had, had gone. By 6pm, I felt like giving up and calling the crematorium!! Sadly, because I'd convinced myself in those few hours that I was better, it hit me really hard and the pain seemed far worse than before!

When I have my second good day, I'll know to make the most of it. That's what we need to do, make the most of the good days. I wish you millions of them.

Gemma

dawnlancaster profile image
dawnlancaster

Well i hope your having a good day today x

Great post..I've yet to be diagnosed but what ever it is and with your sentiment I'm down with that.

More so because what I Also get is hope and realness from your ....then i bounce back and have a good day..

Bounce away, much love.i

Annetteb2 profile image
Annetteb2

I'm sorry you are having a tough time at the moment. I also try and convince myself I don't have Fibro at times but of course I am often disabused of that notion with a bad day or two.... or more.

This forum helps me so much. It's really good to know others are going through really similar stuff. However low I may feel at times there are always friendly folks here with something positive in the way of advice or empathy.

On those much needed good days it's nice to be able to give back by being there for someone who is not doing so well

You say you are sick of the meds. Is there any way you could ask your doctor to review them?

I do hope you feel better soon.

Annette xx

Yes, it's so true! I want to deny it & think my thinking can think above it. Still always find out I'm stuck with Fibro, but at least not giving up...never give up hope and especially seek out nutritional ways to deal with it a sways to deal with your stress from it. I like organic sulfur twice a day & Epsom salt/ bubble baths! Hope this helps?!?! 😘

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