Please help

Hi wonder if anyone can provide advice. I've been diagnosed with low B12, hypothyroidism and Hashimotos in April, and August this year.

I'm on Levo and b12 injections but I'm not getting better.

I ha e terrible fatigue which just won't shift and just want to sleep all the time, when I wake I feel like I've been run over. I have had a terrible pain in my shoulder for months which won't go away and I have a burning sensation on my big toes.

Can anyone advise if I should ask the GP if I have fybro?

7 Replies

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  • HI

    thyroid illness has many of the same symptoms of other autoimmune illnesses and so can low B12 .

    It can take a long time to get Thyroxine levels correct and many months to begin to feel better.

    Fibro can take many years to be diagnosed as many on this site will tell you .

    Go back to your GP its early days Thyroxin may need increasing .

    Rose

  • Yes definitely see your GP, also some fantastic advice to be had on the Thyroid UK forum. All best wishes xx

  • Me again.... I also have Hypothroiism on thiroxetine. your big toe hurting, could be a form of gout, I have just been diagnosed with puseudo gout,

  • Hi MzChapperz

    I am so genuinely sorry to read this, and I would definitely talk to your GP just to rule out other medical conditions, as uggycat says it could be a form of Gout? Or something else? Also, as Rose54 says, it can take a time to get your Thyroxine levels sorted out?

    I want to sincerely wish you all the best of luck, and please take care of yourself.

    All my hopes and dreams for you

    Ken

  • I dont have the dreaded fibro (i have RA), but the symptoms are concerning, i certainly think you should go to your gp and ask questions.

  • I have both and the syptons are very close. How long have you been on Levi? It can take 6 weeks or more to notice a change with it. The b 12 should be helping some but may take a while too. The waiting game sucks

  • Hi Mzchapperz,

    Have you been on the sister Thyroid UK site?

    If you go on to that site and provide your last two or three thyroid blood test results along with the test ranges (all of which should be provided on request at your GP surgery), there are very clever people on the site who can advise you 'what to do next' to improve the treatment you are currently receiving.

    Lots of symptoms for Fibro and hypothyroidism overlap, the more you can optimise your thyroid treatment the better. It takesa long time to optimise hypo treatment and if I read your post correctly, you were only diagnosed with Hashimotos in August - early days I'm afraid. Learn as much as you can from the super-helpful people on the Thyroid site, I wish I'd had that site when I was first diagnosed 17 years ago.

    Best wishes xx

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