Medicine. Help again please. - Fibromyalgia Acti...

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Medicine. Help again please.

littlejan profile image
12 Replies

I have asked before I think, but if you don't mind could you all tell me what medicines your doctors have put you on. I have had fibro for 14 years and only been offered amitrirtyline which I eventually came off months ago, but since then, he has only offered me anti depressants (Prozac) and I won't go on them, he said there is nothing else he can offer me, I would like to go to him with list of medicine I could go on, my fibro is getting worse, I'm 50

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littlejan profile image
littlejan
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12 Replies
rosewine profile image
rosewine

It is all according to which fibro symptoms are the worse for you. I have pregablin for the neuropathic pain which in my case is a shooting and a burning sensation and a terrible gnawing in my back and sometimes extremities. I am also on Butrans patches and Ibuprophen and paractemol for the pain but I can;t say that they particularly help all that well just better than nothing. I will be attending the Pain Clinic on Monday for electronic acupuncture which does help with the back pain but unfortunately the NHS in our area only offers that every 4 months which isn't enough. I am hoping that they can come up with something else I can try. I was on DHC Continus for the pain but that again only helped to a degree. I thought the Butrans patches were better as at least they didn;t give me constipation like the DHC Continus but I realised that it must have been the hot weather that was the help as as soon as it cooled down all the old symptoms came back with a vengence. I do find when i have a flare that an Epsom salts bath helps. I sincerely hope that you find something that can help youx

kauto profile image
kauto

I`m on venlafaxine for depression and have been for the last 16 years but it took time to get that right but each person is different xx

Julie63 profile image
Julie63

Hi littlejan, I'm on amitriptyline, 50mgs at night to help me sleep,, and for the pain I'm on pregabalin and co codamol. I've also just been prescribed ibufren gel, Phorpain. It takes a while to sort out your meds, and I hope you get something more than prozac! Gentle hugs, Julie x

Rosetta2014 profile image
Rosetta2014

I am on Sevilla and venlafaxine for depression it still doesn't stop the pain I have been on pregablin, cymbalta, hydrocodone, fentanyl patch,Gabapentin, butrans, Tramadol, and klonapin and trazodone for sleep and nothing works for the pain and I still only sleep 2 to 3 hrs. max.

TheAuthor profile image
TheAuthor

Hi littlejan

I sincerely hope that you are feeling as well as you possibly can be today. I am so sorry to read that you are not getting the necessary and appropriate medications from your GP, and I was wondering if there was a different GP at your surgery that you could discuss your situation with?

I have pasted a list of all my medications below, I am on quite a lot but I have other medical conditions such as Asthma, COPD, Osteoporosis, Arthritis, Migraines and Sciatic Nerve Damage just to mention the main ones! Plus I no longer have a Coccyx!

Alendronic Acid Tablets – 70 mg Tablets. One to be taken weekly

Accrete D3 Tablets – Calcium / Colecalciferol tablets. One to be taken twice daily

Lansoprazole Tablets – 30mg tablets. One to be taken daily

Prednisolone Tablets – 5 mg tablets. 10 mg to be taken daily

Ventolin Inhaler – 100 micrograms evohaler. Two inhalations to be taken as and when required

Atrevent Inhaler – 20 micrograms inhaler. Two inhalations to be taken four times a day

Symbicort Turbohaler – 200/6 inhalation powder. Four inhalations to be taken twice daily

Ranitadine Tablets – 150 mg tablets. One to be taken twice daily

Solpadol 30mg/500mg Tablets – 30/500mg tablets. Two to be taken four times a day as and when required

Metoclopramide Tablets – 10 mg tablets. One to be taken three times a day as and when required

Fenbid Gel – Ibuprofen 5% Gel. Apply up to three times daily

Nortripyline Tablets – 25 mg tablets. Two to be taken at night

Sumatriptam 50mg Tablets – One to be taken when needed. No more than 6 tablets in 24 hours

I genuinely hope that you can find a really good GP and ascertain some really satisfactory and meaningful medications that work well for you.

All my hopes and dreams for you

Ken x

teddybear7 profile image
teddybear7

I don't have a regular prescribed medication. But have cocodamol & naproxen ready for bad flare days.

Becky1970 profile image
Becky1970

Hi I have cocodamol 30/500 for pain , citalopram 40mg for depression, topiramate 25mg x 4 at night for migraines and to help to sleep they really help with migraines but not very good with sleep I drift off lovely but wake about 4am, I am on Gabapentin 3 x a day which help with pins and needles and that's it it dosnt do any thing else I to have got to see the doctor lol

Lots of gentle cuddles

Becky1970

Sesame profile image
Sesame

sorry it's so bad for you, I've just woken up and I'm weepy with pain, rotten illness.

I take 150 mg slow release Tramadol at night, or I used to, I had been trying to cut back but I think I need to be sensible and take it again. I just felt I've been taking it so long it wasn't working as well.

It was good though at night because we really do need our sleep.

shopaholic profile image
shopaholic

Hi,im on anitriptyline,tramadol with paracetamol and quinine for when i get cramps in my legs.....these drugs help a bit but im never without pain but i couldnt manage without them,i wasnt big on taking a lot of drugs but i feel iv no choice now....hope you get some relief...sending hugs xx

mitziblue profile image
mitziblue

Honey, you need to ask to be sent to a pain clinic. It's not as if this goes away. I take Opana ER 10mg. Hope you get the help you need and someone will relief your suffering!!! xxx Mitzi

lilian68 profile image
lilian68

i suffer from fibro,chronic painsyndrome,hypermobility,irritable bowei,osteoarthritis,cervical spondylosis,high bloodpressure &depression i take mebeverine 135mg one three times a day,lisinopril 5mg one daily,omeprazole20mg gastro-resistant two daily,paracetomol,pregnabalin 300mg twice a day,tramadol 50 mg one three times a day,trazadone 50mg 2 at night,amytriplyine 10mg one at night,fluoxetine 20mg one in morn,gabapentin300mg 2 a day,ibruprofen 400mg one 3 times a day,calcichew.

SusanCar profile image
SusanCar

Hi there.. I would be tempted to visit another GP... or print out the list of medicines and treatments talked about on NHS Choices.. which I think has got better over time. It used to be a little vague but is now much clearer. I have found Gapatentin helpful.. but know others find Pregabalin better... I also have a variety of meds that I use to try and manage the various symptoms that joint pain et etc... My advice is to find a doctor who is willing to listen. I am also lucky because I am under the National Neurological Pain Management Team who have put me on a home treatment that I take 2/3 weekly... which is an anaesthetic used in surgery that helps to numb the nerve endings... help is out there... I was on a waiting list for a long time but have had this for about 12 years now.. and seems a long time ago.. keep going back!

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