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Fibromyalgia Action UK

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Multijo profile image
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Hello. I am new to this site. Of all the things I have (MS, RA, Sogruns), the one that most confuses me is Fibro. I am hopeful I will Learn From many of you. I don't even know for which Doctor I should expect to manage my fibro. I think it should be my rheumatoid arthritis Doctor . About 8 months ago I asked him if there is anything I should be doing for my fibro. He said that there was no need. Everything I am doing for my RA is what he would do for fibro.

Does that sound about right?

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Multijo profile image
Multijo
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11 Replies
Steve49 profile image
Steve49

Hi Multijo.

A very very big welcome to our site I do hope that we can help you.

Please please feel free too ask as many questions as you would like ???

We have a good range off personal experiences to hand.

There is also a range off informative posts for you too use 24/7.

I'm also very happy to give you help & support "as and when"

Steve.

Multijo profile image
Multijo in reply to Steve49

Thank you Steve

Steve49 profile image
Steve49 in reply to Multijo

No. Probs anytime !!!!

Hi

Welcome to the group, I'm sure you'll get lots of support helpful info and a bit of a chuckle to keep your spirits up.

I am sure that you will be pleased you joined.

The mother page and NHS web page are good sources of info.

I was diag by a pneuma consultant who wrote to my dr and told him what meds to give me etc. I've been to a pain clinic and now just see my GP.

I'm sure that you've been given the right info.

Good luck and best wishes.

rosewine profile image
rosewine

Welcome to the site. Have you had chance to have a look at the mother site Fibromyalgia Action UK and have a look at the treatments for fibro. I think from this you will see many of the treatments will overlap. Of course with fibro the symptoms are so diverse it is probably unrealistic to be able to treat all of them. Doctors therefore tend to treat the ones that are bothering the patient most so he might be right with this. Of course we don't know which symptoms are the worse for you but hopefully we can help by sharing some of our experiences I'd we know which those are. Look forward to your future posts.x

Multijo profile image
Multijo

Thank you for the re-enforcement!! I think I probably do as well. I believe in my rheumatologist. But I know docs in our health system are limited in the time they can spend with us. I appreciate comparing notes with an experienced person. Thank you, Jo

Hello and welcome the link to the mother site is fmauk.org

I am not surprised that you are confused about fibro there are poeple on here who have had it for years and are still conused

sue

Multijo profile image
Multijo in reply to

Thank you for the link!

Jo

TheAuthor profile image
TheAuthor

Hi Multijo

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I can see that you have been given the link for our mother site, FMA UK which hosts loads of useful Fibro information.

I am so genuinely sorry to read of your medical conditions, and it must be very difficult to distinguish between Fibro pain and MS pain? I want to sincerely wish you all the best of luck and please take care of yourself.

All my hopes and dreams for you

Ken

Multijo profile image
Multijo

Thank you TheAuthor.

Yes distinguishing pain is sometime confusing. My Nuro encouraging me to try. She believes we will take different approaches for different pain.

I am ok today, thank you. And you? How are you feeling today?

And I have to ask....you are a writer?

TheAuthor profile image
TheAuthor in reply to Multijo

Thank you my friend, I am not too bad tonight. I struggle in the heat but the night is much better. My wife has MS, she has the ''Primary Progressive'' so I know how debilitating it can be.

And yes, I am a professional author of 42 books.

Take care

Ken

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