New to Fibro

So I have been having this pain for about a year. It increasing got worse and worse. I finally went to my doctor after a few visits and several tests he diagnosed me with fibromyalgia. This was only 5 months ago... Most of my pain is in my hips and legs.. Alot of days the pain is so intense I can barely walk. There are many times when I go to store that I have to use the electric scooter that the stores supply. Is this normal for fibro patients? I rarely get pain in my upper body.. it pretty much stays in my lower back, hips and legs. My doctor has ordered an EMG to be done on my leg.. is that normal?

14 Replies

oldest β€’ newest
  • Hi Fearthefibro

    I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I have pasted you a link below to our mother site, FMA UK which hosts loads of useful Fibro information:

    fmauk.org/

    I am so genuinely sorry to read that you are experiencing mobility issues, and I think there is no standard model for Fibro symptoms as we all suffer them differently. I will say that my mobility is extremely poor these days and I get a great deal of pain if I try to walk too much. I want to sincerely wish you all the best of luck my friend, and please take care of yourself.

    All my hopes and dreams for you

    Ken

  • Thank you very much ken

  • Good luck my friend.

  • Sorry to hear that Ken, is it cos the weather is colder or is it in general your getting worse. ? Hope your not in too much pain.

    I wish you and your wife all the best for 2017

    Take care

  • Hi Robbie138 thank you so much for that it is genuinely appreciated. I think I am getting worse over all, and it has significantly hampered my mobility. I want to sincerely wish you a very happy pain free new year my friend.

    All my hopes and dreams fro you

    Ken x :)

  • Sorry to here this Ken this ugly disease has a lot to answer for, I know you have other ailments and I wish next year there is something that eases your pain.

    Take care πŸ€—πŸ€—

  • Thank you my friend Robbie138 that is genuinely appreciated. Fingers crossed for all of us for 2107, and hopefully a breakthrough with one of the ongoing trials? Take care my friend. Ken x :)

  • I know exactly what you mean - I saw my rheumatologist this week as I'm getting terrible pain in my hips and down my thighs and sometimes in my back. Just a walk up the street can leave me having to stop several times because of the pain. Fibro has been named as the culprit in my case. Hope it's of comfort to know that you are not alone - fibro affects people differently but someone here will always understand exactly what you are going through. Best wishes for 2017

  • Hi and welcome. Some days are worse than others but I was told, only do what you can, don't try to do more, you'll just make it harder for yourself. I have two dogs and must walk them twice a day, but sometimes I'll walk further than others and some times I have to hold onto a fence!! The pain isn't always severe, but it is 'always'!!

    Take the advice that suits you, what suits another person, might not help. There's no real 'normal' to Fibro, it just is what it is, for each and every one of us. There's a long list of symptoms, some of which you may not even experience. The worst for me is itching!

    I wish you only pain and symptoms that you can cope with and control, I wish that for everyone, including me.

    Happy New Year

    Gemma

  • Hi Featherfibro welcome to a very welcoming and helpful forum where you will gain a lot of knowledge and help over time.

    You didn't say what your GP has given you to relieve symptoms.

    I was only diagnosed back in June doc gave me amytriptalene which is an anti depressant but it's given for Fibro too as it relaxes the nerves and muscles plus aids a good nights sleep - started me on 10mg but told me I could increase it if I felt the need to so I am now on 30mgs which I take in the evening otherwise you are groggy in the morning if you take it later in night. This has given me so much relief I don't get the pains in top of my legs now and I am sleeping much better. Take care 😘

  • My GP has given me Cymbalta 60mg and 2(300 mg) Gabapentin 3x a day.. is only helps a little.. I still always have pain

  • Sorry hun I don't take either of these but I know a lot of Fibro friends take gabapentin not heard of Cymbalta but I am sure others will know what they are and will probably give you advice about them.

    See what comes back to you once other Fibro friends see your post - I would think of asking doc about amytriptalene but then I don't know what your pain threshold is - I have been told in the past that my pain threshold is very good but my Fibro etc may not be as bad as yours - everyone I have found on Fibro forum have different levels of Fibro added into that other conditions too - so think it's a bit like finding a needle in a haystack if you get what I mean. Take care and let me know how you get on. πŸ˜˜πŸ˜˜πŸ€—πŸ€—

  • Welcome to the forum. I do have moderate osteo arthritis in my hips but the severe pain has unfortunately been out down to our dear friend fibro. Often you start out being able to walk okay and fun suddenly slam the pain gets overwhelming. Experienced it this morning half way round a large supermarket if I didn't think I would have trolleys rolling over me I would have lay down on the floor.

    I have been paying for private acupuncture every two weeks and it has certainly taken the intensity of the pain down several notches. I am glad your GP is investigating further to rule out any other causes. Let us know how you get on.

  • welcome Featherfibro.

    Lots of good stuff on this UK forum. The drugs you take are individual to you. Lots of Fibro livers have different pills as their Drs have differing ideas what helps our pain.

    I have Pregbelin which is marketed as Lyrica, also codeine to add to Paracetamol .I could not take Cymbalta as I am intolerant of it likewise Amytripline.

    What I rely upon are pain patches. They are called Versatis and they have Lidnocaine 5% which is good for localised pain relief.

    I do hope you can have less pain flares soon. A bit of distraction such as gentle exercise is recommended for Fibro.

    Best wishes for 2017

You may also like...