So upset today: Hi my name is Denise I... - Fibromyalgia Acti...

Fibromyalgia Action UK

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So upset today

Fibrodenise profile image
β€’21 Replies

Hi my name is Denise I just joined yesterday got up this morning in total agony from head to toe fingers all swollen and the muscle in my left arm also swollen so fed up at the moment 😭

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Fibrodenise profile image
Fibrodenise
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21 Replies
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Maya23 profile image
Maya23

Hi Denise I'm sorry to hear you are in so much pain. I'm not any medical expert but it sounds to me like you've got something else going on with the swelling in your muscles? Not everything can be put down to Fibro - do you think you might be able to show your doctor? I thought Fibro was caused by a brain processing disorder so the swelling might be indicating that you have a physical problem going on too, that could be treatable. I hope you get some answers and that you feel in less pain soon. Take care today x

Steve49 profile image
Steve49

Hi Denise.

I'm so sorry that you are having a very bad day.

Are you able to see your GP for there view on your current problems.

Do you currently take any meds ???

Have you been seen in a Pain Clinic ???

Sorry for all off the questions.

Please let me know if I can help you further !!!

Steve.

Fibrodenise profile image
Fibrodenise in reply to Steve49

Hi steve49 yes I'm on a lot of meds at the moment in the morning I take 9 tablets afternoon 2 tabs 8ish another 2 tabs then before bed I take another 8 tabs then 1 or 2 during the night if needed 😳

Steve49 profile image
Steve49 in reply to Fibrodenise

Hi.

Blimey you are on a lot off meds.

Do you have a list off all of your current meds please ???

Do all of these meds help you ???

Don't feel upset, we are all here for you.

Steve.

Fibrodenise profile image
Fibrodenise in reply to Steve49

2 pregabalin,50mg of citalopram,1bucopam,1asprin,2 fultium-d3 and 1omeprazole in the morning, then lunch time 1buscopan and 1tramadol, then7.30ish 1diclofenac and 1 tramadol then 11ish I take 2 pregabalin,2 senna,1 buscopan,1simvastatin,1 zopiclone and 1dihydrocodine then 1 or 2 tramadol during the night if needed then 3injections of apidra a day and 1 injection of lantus and that's all a day 😱

Steve49 profile image
Steve49 in reply to Fibrodenise

Hi.

Sorry but do these meds make a difference ???

Have you been seen by a pain clinic in the past.

Has your GP been involved with all off your meds.

Sorry for all off the questions.

Please let me know if I can offer you more help.

Steve.

Fibrodenise profile image
Fibrodenise in reply to Steve49

Yeah they make a bit of a difference might be going on morphine but trying to wait a bit longer and yeah been to pain clinic but they couldn't help me as I'm just to sore for them to help me yeah my doctor is involved with all my care except for my diabetes that gets done at my diabetic clinic Denise .

Steve49 profile image
Steve49 in reply to Fibrodenise

Hi.

That's great if they help you pain. Yes I have been seen by pain clinics since 2005 & all they give me is more Pain not less . Yes I have exhausted the Morphine Patches, I'm now on Trans Tec Patches. Yes it will be much better to just have one Dc to deal with. What do they say about "kitchens with too may cooks " that's me at the moment.

Steve.

Fibrodenise profile image
Fibrodenise in reply to Steve49

How did you get on with the morphine patches and how are you getting on with the trans Ted patches ❓❓❓

Steve49 profile image
Steve49 in reply to Fibrodenise

Hi, I started on the lower dose then it increased to the max dose.

These as like my other meds didn't make any difference at all.

Due to this they have now given me the Trans Tec Patches to try.

These patches haven't made any real difference to be honest.

I need to restart the process off finding out which meds work & which ones don't

Steve.

Bambamsnan profile image
Bambamsnan

Hi Denise and welcome I am so sorry you are in this much pain my heart goes out to you I no about being fed up think we all feel like that but there is people on help and support you Carol xx

peck profile image
peck

Denise, Hi and welcome!! Glad you joined us hope you enjoy!!! Sorry your in pain this morning hope you get relief soon.Have a lovely evening.Peck 🐀

naturalnikki profile image
naturalnikki

I'm so sorry. Around some knots I feel it is puffy, but if you are talking about something different then that I would go get it checked out, just to be safe.

Ginger tea might help, I would add peppermint tea for flavor and I think it might have added benefits too.

Hope it gets better.

Fibrodenise profile image
Fibrodenise

Thanxs for all your comments I've got chronic fibomyalgia so I've got loads of other things going on as well on loads of meds might be going on morphine now but putting it of as long as possible

Fibrodenise profile image
Fibrodenise

Yeah I also osteoarthritis in my hands wrists and n knees also IBS,diabetic, and sticky blood syndrome got to have more blood work done the dermatologist is writing to my doctor so just need to wait on my doctor to phone me to get bloods done its just πŸ’©feeling like this all the time 😱

naturalnikki profile image
naturalnikki in reply to Fibrodenise

I'm sorry, that sucks.

rosewine profile image
rosewine

Just to say welcome to the forum. All these different symptoms really get us down sometimes especially if like you and many others including myself have other illnesses to contend with. I think waiting for tests etc doesn't help as that just stresses us out more. Do let us know how you are doing and I look forward to your future posts.x

_Esined_ profile image
_Esined_

Hi Denise (and what a fabulously, beautiful name you have, I might add!) So sorry to hear you are in so much pain, but I can assure you, you've joined the most informative, and helpful site here. It's a great site and the members on here are so kind and thoughtful, you will love it, I know! x Esined x πŸ™‹πŸ‘

Hayesider profile image
Hayesider

Hi Denise,

As all above have said, welcome to our community, here we share, comfort, help, suggest, and love. Yes, you will find that emotion kicks in sometimes when you read replies, and get to know us.

Steve has started the ball rolling for you, by asking for more details, especially the meds.

Do you have Rheumatoid Arthritis, or waiting to be diagnosed ? My fingers became swollen overnight, to the point that I couldn't get the tips to touch the palm. With the finger pain was elbow pain, another nerve Chanel that became inflamed.

I started this about 11.45am, but the time and jobs and shopping meant I couldn't reply fully till now. Now it's 9.05pm as I finish. That's how this site works there is no judgement about how long it took to reply. I have gone into posts that are three days old, and the poster read and replied the same.

Ask awkward questions, they are the best, naked people think and give better answers. Mix have been on here for two months, and have gained so much information, made so many friends, learnt so much about Fibro !

But the most important thing, has been the love, care, concern, and the support to cope. Hope you find the same as me, the best site to be on.

So, love Hayesider !

TheAuthor profile image
TheAuthor

Hi Fibrodenise

Welcome to the forum and it is wonderful to make your acquaintance. I have pasted you a link below to our mother site, FMA UK which hosts loads of useful Fibro information:

fmauk.org/

I am so genuinely sorry to read that you are suffering and struggling so much and I sincerely hope that you can find some resolution and relief to these issues. If your symptoms persist or get any worse please discuss them with your doctor just to get other medical conditions ruled out of the equation. Swellings as you have described are not usually associated with Fibro and so please take care of yourself.

All my hopes and dreams for you

Ken

Trikki profile image
Trikki

Welcome Fibrodenise.....I haven't been with the group long but I can assure you that I have learnt so much about our condition of Fibro and related diseases. They are a lovely lot of people and you can rant, rave, cry and get it all out of your system and many of the links are so good at pointing us in the right direction. I hope you get some pain relief very soon and that your day is as comfortable as it can be.

Gentle Hugs

Trikki

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