On my wavelength?

Hi everyone, I'm new and just trying to get my head round my recent diagnosis and lifestyle changes like not being able to work consistently, socialise, swim and deal with all my weird symptoms, really bad nerve pain in my left hand and both feet. At the moment I've got very sore eyes, dry and feel like they've been poked, also bright lights, actually any light, is a nightmare and makes the pain flare up even worse. I've also noticed that my sense of smell is crazy! I've tried different meds but I don't think I can handle them so I'm going for anything that's natural and less side effects. At the moment I'm enjoying some physio which I'm having to pay for privately as the waiting list for me to get appointment at pain clinic will take me into September, just can't wait that long. Anyway, learning to stretch out the right way is helping and I am able to walk a decent distance. All helps to make me feel "normal" again, that's made me tearful because I'm beginning to forget who I was and now having to get used to this new Fibro me! Who knows what that will reveal! It's nice to meet you all and I look forward to many chats.

Wavelength

7 Replies

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  • Sorry to hear you have the dreaded fibro. It will take time to adapt but you seem to be taking action already which is great. Fibro throws a lot of things at you and it is hard to remain cheerful. Do anything you are able to do which you enjoy. Accept that some days will be a right-off and enjoy those that are full of achievement - unfortunately you wont know in advance which will be which. This is what I find most disconcerting - planning ahead is almost impossible. As for meds, well - it is a case of experimentation. You seem to be starting to do this already - good for you. As for who you where - well, you are still you!! Just doing things differently. Good luck and keep in touch - this place is very cheerful and informative. XX

  • Unfortunately like you I too can't take meds for fibro. I have found some antidepressants that have helped my mood though. I am taking extra vits, hemp, herbal sleeping tabs.

    Unfortunately fibro does mean thinking differently an reorganising your life, but it can be done. We have to learn to cope with the pain, pace ourselves and ride out the storms 👍😊

    It can be done, so keep fighting 😊

    Good luck and best wishes. 🌺

  • Sorry to hear your having a hard time coping with this dreadful illness.I do wish you the very best .Take care . Peck.🐤

  • Just like to say welcome to this marvellous site. Yes it takes some adjusting to a new way of life and thinking. It is like a bereavement where we have to grieve for th life we have lost and then s!owly regroup and start a new cycle of life.

    Have you had chance to look at our mother site Fibromyalgia Action UK as it has a wealth of I formation about other things you can try other th medication which as you have found out doesn't suit everyone.

    Manypeople on this forum seem to have problems with bright lights so I am sure they will come in and hopefully make some good suggestions. Look first your future posts.x

  • Hi first welcome . Second you have to listen your body. If you give it a go you will see and know how to work with.

    I am suffering from Fbm for 19 years and for IBS about 3 years. It was very hard till I found what I have,changed lots of Gp's. But now I am stil fiting with it, chaned diets and I am going to Pain team then attending a Fibromyalgia group every 2 weeks.Is at the beginning but it worted because we socialize and try to organize in the future lots of activities and events.

    My advise for you is try as much as you can everything what my help and your body wil give you the answer.

    Hope you have an arswer.😊

  • Hi Wavelength

    As the others have said it can take a bit of time to get use to this but I am so sincerely delighted that your physio is working well for you. I went to physio a couple of years ago and I am still doing my stretching exercises and I get a great deal from them.

    I want to sincerely wish you all the best of luck and please take care of yourself.

    All my hopes and dreams for you

    Ken

  • Hi love welcome this is a lovely caring group sorry you have the .monster fibromyalgia thinking of you always here if you want to chat take care hugsss jill xxx

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