What can I say pain fed up with it restless legs and pains in legs ,neck bad butt bad cos of my troncheric bursitus in both my hips ,back pain making me feel πŸ˜”and stomach. Achieve pain when I go to bed at night cramps real bad,anyone else had that let me know please.Going to Dr's on Wednesday see if I can have a pain killers as lyricax2 no good on there own,perhaps amiltryptolene with my lyrica,ha wish me luck at Dr's think she thinks I'm making it up 😟. Thought writing it all down here would make me feel better πŸ€”Just so fed up like you all are being in pain 24/7! Frustrating and want to get on with my life somehow can't see that at the moment . I see a Phsycologist every 2 weeks but not sure that's helping either. Feel like I'm loosing my marbles keep forgetting things so quickly 😲😩😨. Any advice welcome thank you .x

28 Replies

oldest β€’ newest
  • Hello Thunder 1 from Nurse Gladys Emanuel (open all hours) not sure where you are but can you get yourself or someone with you; to a local swimming pool / gymn that has a Jacuzzi? a good soak a bit of stretching those tired limbs and muscles dose me the world of good, I also have hydrotherapy with a physio at local hospital this is really heaven for RLS/Fibro/ME/CFS and some mild stroke victims, they go in the water with you , there are assistants to help with dressing.. I got this via my rheumatologist but any hospital consultant can refer you if you ask them. tell them other sufferers are saying its so good.

  • Great I will talk to my dr about this on Wednesday or phone my rhematologist. Thank you 😊

  • Hi

    Sorry that you're having such a bad time of it.

    I'm afraid that I cannot give you any real help, as none of the meds have helped me either. As everyone's different it's hard to say what my get help.

    All I can say is that I find a hot water bottle helps, Volterol gel and aspirin. It doesn't go but it helps a little. I have been told that to fight it and get stressed really doesn't help, so to try to relax more. I do a little then have a rest and maybe some tablets and so it goes on. I have a gentle massage every so often too. I also have are extra vits, hemp tablets, herbal sleeping tablets. I listen to talking books during the long sleepless nights, which helps me to relax and not think of things too much.

    I really hope that you can get some help soon. Take care and best wishes.

  • Awww bless you thank you I will try that too as I am willing to try almost everything. Thank you πŸ˜™

  • Thunder1 , Sorry to hear your feeling so poorly and in so much pain today.I wish you the best at uour appt. but sounds like your Dr. may be clueless... is that a correct assumption?? I don't get it with some of these drs. that I read about.Good luck hope your dr has taken some classes since last visit lol.Peck🐀

  • Ha ha ha yes I hope she has taken some classes too. I will let u know how I get on if at all. πŸ€”

  • Thunder1 , Are you in UK or US?? Peck.🐀

  • Unfortunately in the UK 😞x

  • I know your in the US that's a shame still we can still talk hereπŸ™„x

  • Thunder1 , Yes, sure we can as our personalities are simular it seems!! I Gotta love texting , chat soon!! Peck.🐀

  • Yes definitely you take care. Text soon πŸ˜†xx

  • Aww love really feel for you I hope docs give you,some stronger pain relief I have just come off morphine and now doing tramadol and my pain is so severe so I know where you coming love always here if you want to chat big hugssss jill xxx

  • Thank you so much Jill 😚xxx

  • You are so welcome I get fed up of fighting each day but chatting on here gets me through this group gave me hope and support love xxx

  • πŸ™„πŸ˜šxx

  • Hi ,I am in agony today. My shoulder and arm is painful it's reducing me to tears. I have just gone to bed and I have taken 2 Tramadol. Nothing has touched this pain today. I feel so frustrated.

    😁😰 Jane xx

  • Hi Smiler69

    I am so genuinely sorry to read that you are suffering and struggling today, and I sincerely hope that you feel better soon. Please take care of yourself.

    All my hopes and dreams for you


  • Oh no 😯that's not good. You need to try volterol gel place on areas that give you pain pile it on see if that helps a bit. I do hope your out of so much pain soon.πŸ˜πŸ™„xx

  • Hi Thunder1

    I am so gneuinely sorry to read that you are suffering and struggling and I sincerely hope that your GP appointment goes really well for you. I do gentle daily physiotherapy to help alleviate pain and also use a TENS Machine which I find very useful. I have pasted you an excerpt and a link from a *NHS & Arthritis UK pdf file about TENS Machines below:

    *How can I try a TENS machine?

    You can ask your doctor to refer you to a physiotherapist to try a TENS machine. If

    TENS helps to relieve your pain, your physiotherapist is likely to give you between

    20 minutes and a couple of hours with the machine. It may take a few sessions to get

    used to. TENS can be used for one hour on, one hour off, throughout day.

    I also have my medication for Fibro, I have Pregabalin, Nortriptyline and Cocodamol and together they also help me. I want to sincerely wish you all the best of luck, and please take care of yourself.

    All my hopes and dreams for you


  • Thank you I will ask my dr re referral back to physio see if that helps and maybe try nortriptole. Can't have come codomol make me 😩sick. Got to keep trying 😳xx

  • Good luck x :)

  • So wish I could get some hydrotherapy still waiting after 6 months ....won't even refer me for pain clinic and says he knows nothing about pain management courses , seems no help for me accept repeat scripts, so fed up feel so alone with this pain

  • OMG! That's not on you need to be stronger with your gp there are pain management courses around its weather they can be bothered. THE MOTO IS DON'T GIVE UP. GOOD LUCK πŸ€X

  • Hi susanna555

    Do you think your GP may refer you to physiotherapy? If so, then they can send you to pain management or pain management courses if they feel you would benefit? It may be worth a try? I want to sincerely wish you all the best of luck.

    All my hopes and dreams for you


  • Hi there that could be me you was talking about in your post I suffer from exactly the same I am back to see my Gp tomorrow but have had to wait 3 weeks fit this appointment I am hoping he can help as I am at my wits end with this pain and its makes me really down I cry at the stupidest things I need to get on with my life with my pain under control I hope you get sorted with your Gp x 😒

  • I hope u do too let me know how you get on. Cheers up πŸ˜ΆπŸ˜πŸ˜† it's hard I know we are the same. πŸ‘­xx

  • Hi Icklemomma

    I want to genuinely wish you all the best of luck with your GP appointment.

    All my hopes and dreams for you


  • Thank you Ken and Thunder1 for your replies and concern I will try my gp again, if not thinking about changing doctor. X

You may also like...