Shoulder replacement with fibro

[Sue1955]

Fellow fibro mites has anyone had a shoulder replacement whilst having fibro if so how did you get on as I'm trying to make the decision. Of if to go ahead. I've already had both hips replaced which for me was somewhat successful but I still can't walk as far as I'd like and have been told I'm doing well for someone with fibromyalgia, as you can imagine I feel a little apprehensive but that's the only option for me they say. Would appreciate any comments.

[Sorebones]

I would think that your decision would be made on the amount of pain that you are in with your shoulder at the moment. You don't say why it would need replaced. No one can make the decision for you. I understand what you're asking, but if you are in doubt and feel it will turn out the same as your hip replacements is it worth doing just now? It's your pain. Only you know how it feels. I wish I could help 🐸

[peck]

I haven't and don't know of anyone that has.Best wishes. Peck.🐤

[Lou1062]

I had mine done because I had very little movement, still uncomfortable at times but I have full movement now. Hope that helps xxx

[Sue1955 in reply to Lou1062]

Thanks lou1062 that's exactly what I wanted to know this is the problem with mine little to no movement due to osteoarthritis pretty useless at present like my hips uncomfortable at times but better than before. Xx

[Hidden]

I'm sorry to hear that you have to make this decision, but I'm afraid I've not heard of it for fibro. I think you might have to do a lot of research on it and make your decision.

Good luck.

Best wishes.

[Sue1955 in reply to Hidden]

Sorry it's osteoarthritis which I am riddled with the fibro I've had also for 20 + years

[TheAuthor]

Hi Sue1955

I am so genuinely sorry to read that you need a shoulder replacement and I want to sincerely wish you all the best of luck with this. It is not something that I have been through myself but I have pasted you a link to a NHS Choices / Arthritis UK pdf booklet on the replacements:

nhs.uk/ipgmedia/national/ar...

All my hopes and dreams for you

Ken

[Sue1955 in reply to TheAuthor]

Thank you ken x

[ksmiles2015]

My mom had hers replaced, she had had 3 previous shoulder operations due to oesteoarthritus, her then surgeon told her that it was the least successful of replacement surgeries, because it is the least performed.

My mom had been diagnosed with Fibro, but she doesn't think she has it, although I am 100% sure she has, as myself having it for 25 years, I recognise all her symptoms.

She thought a long time before having the operation and decided to go for it, although unfortunately it hasn't helped the pain & discomfort she was having. She too had very little movement in her shoulder and while it has given her more movement, it hasn't helped the pain and discomfort in her lower arm, above elbow. It's something you should look into very carefully and then decide, but I have found with my many knee ops whilst it helped with the joint type pains, but has increased my Fibro pain.

Hope you make the discussion that's right for you and have a good response if you decide to go for it x

[Sue1955 in reply to ksmiles2015]

Thank you what you have said is exactly what I was worried about as I've had both hips replaced and I wouldn't say It's as good as someone without fibro xx

[ksmiles2015 in reply to Sue1955]

It's hard because we get so desperate. After 7 ops on both knees, I had my knee caps taken out in 1996, they had been wearing away, although it took away most of the joint bone type pain, by that point the Fibro, which I hadn't then being diagnosed with, was as bad as ever & I went through really bad depression afterwards.

Is there not any other operations they could try on your shoulder or is it replacement or nothing. After my shoulder operation which was clearing out mess left by arthritis & also removal of some calcium bone spurs, even months after I was in agony and knew it wasn't Fibro pain, the surgeon said this is why I hate operating on Fibro patients because they very rarely get full relief, I said well it wasn't a Fibro problem in the first place eventually another consultant operated again, more bone spurs he took off a small part of my collar bone which was agony at time though much better than it was before he had intervened. Sometimes I think it's just down the dr and how much they understand when we say I know my body I know what's Fibro type pain & what's not.

Hope I haven't confused you too much

Karen xx

[Sue1955 in reply to ksmiles2015]

Couldn't agree more it was after my hip replacements that the statement came up " your doing as well as you can expect for someone with fibro", I thought yeah right nobody mentioned that before they operated. I have this feeling shoulder op won't bring me much relief saw surgeon the other day replacement is all that's on offer but by the time he spent most of consultation highlighting the negatives I think I will leave well alone.

Sue x