Life with fibro

I was diagnosed in 98 with fibro and MPS at the age of 38.at that time my daughter was 4.Since diag I have had 3 major surgeries on my spine,but have inoperable damage to the sciatic nerve.Over the years I have become very proactive,as I have found it gives you some control.I cannot take any meds for fibro or my nerve damage,so it's been quite a journey of life with pain.On very bad days, I try and do a task even if it's small,that way fibro has not got me as a prisoner.I use a wheelchair but don't see this as negative,as without it I would be housebound. My car is adapted with special hand controls,and I have ramp in car.I don't like the way my life is,but try to live it the best I can.There is hope but sometimes we have to grieve to be able to move on.It took me time to get to this stage,but it's helped as I am not a prisoner to fibro.Changing the way I have to do things and giving up things,but finding alternatives to have a life is important for our well being.

Please see my message as a positive as I know only to well how fibro can bring us down, and cause disppear

Love Tink60 x

Last edited by

5 Replies

oldestnewest
  • Thanx Tink, that was a lovely positive message. Love flossy xx

  • Hi Tink60

    I think your story is one of inspiration to all of us! You are clearly a wonderful, remarkable and determined individual. Whenever I feel low I will read your post and know that if I fight back then I can achieve anything.

    Thank you so much for sharing a part of your life with all of us. I would be proud to call you my friend.

    All my hopes and dreams for you

    Ken x

  • Thank you for your replies.My life of chronic pain began at the age of 21,with unexplained pelvic pain.After numerous investigative surgeries,being treated as if it was all in my head I was finally diagnosed with Chronic Pelvic Congestion.It was an answer but the nightmare began.No amount of treatment could cure me,I had to have fertility treatment and had a very traumatic pregnancy.However despite the constant threat of premature labour and a very long stay in hospital during that time our beautiful daughter arrived. In a few months she will be turning 20.When she was 7 months I was given a complete full hysterectomy I was 34 at the time.

    Fibro had been lying low,But I had symptoms from a young age,but this time it came back to bite me big time. Looking back it was there for many yrs,but the trauma of pregnancy and hysterectomy was the trigger.So from 21 I have suffered chronic pain,I managed a career in special needs nursing for 15 yrs,but was medically retired at age 33.It was tough my spine problems followed along with several other health problems.However I started to paint a few yrs ago it has been my lifeline.Never ever think you are useless we all have something to give in our life's. My art teacher never encouraged me,but my love had never left me,and I picked up a paintbrush and have never looked back.I have been known as a nurse a wife mother and now an artist.If my spine and fibro let me I would paint every day,but it won't.I paint when I can and at times it can be weeks,before I am able to pick my brush up again.Never give up

    Love Tink60 x

  • Hi Tink60

    I sincerely hope that you are feeling as well as can be today? Thank you so much for sharing this with us all. You are not only a genuine fighter but you sound like a remarkable and accomplished person. I sincerely look forward to bumping into you around the site.

    All my hopes and dreams for you

    Ken x

  • Good on you! very positive.

You may also like...