Fibro/lupus crossover

[Sunsh1ne]

Hi all

Hope your Friday is going ok for you all . Has anyone heard of Fibro and lupus being mixed up . ? Similar symptoms I understand . Just wondering as I sometimes get red flashes on my face but not often . Have a good weekend everyone .😎

[phlebo123]

Hi

I am wondering if this may be the condition called rosacea. I get red flushing on my cheeks, my doctor prescribed some cream called metronidazole, which helps to reduce the redness xxx

[Hidden]

have rheumatoid arthritis and secondary fibromyalga I don't get the butterfly very often

[Sunsh1ne in reply to Hidden]

Have not heard of secondary fIbro! All a little new to me . Very hard with these 'invisible illnesses and of course the other one depression. Harsh world out there in my case doctors too so shows how strong we are . Wonder how they would feel if they got it .

[caninecrazy]

i have both lupus ( I get the classic purple rash across my face) and I have fibro too. both can give same symptoms x

[peck]

When my dt. was trying to diagnose me she 1st said lupus then changed to FM.Hope you get all taken care of. Peck.🐤

[Hidden]

Sorry don't know 😊

[BonnieSue]

I have fibro, lupus and rosacea. I don't get the butterfly rash but sometimes what looks like rosacea outbreaks mostly on my cheeks...2-3 raised red spots each and some general flat redness. As far as muscle aches, burning and what feels like worms crawling inside my muscles where they are aggravated...I attribute that to the fibro. Fatigue I attribute sometimes to the fibro and lupus but there are other causes too.

[jt68]

Hi,sorry to hear about your suffering, as a fellow sufferer, I really do sympathise. Afew years ago I was actually very convinced that I had Lupus, the nose rash, etc etc, as some of the fibro symptoms are quite similar to the experience of "lupus sfferers" but in my case I had the added bonus ofRA coupled with fibromyalgia. however, unlike fibro (my little dalek of constant pain) Lupus can actually be verified by various blood testing techniques, so my advice would be to ask your GP for the Lupus Test to either confirm or deny either way.

[TheAuthor]

Hi Sunsh1ne

I am so genuinely sorry to read that you are experiencing this issue, and I want to sincerely wish you all the best of luck. I had a blood test for Lupus a few years ago but it came back negative.

All my hopes and dreams for you

Ken

[Sunsh1ne]

Thank you everyone. It's a real eye opener to me all this! My sympathy and amazement to all those out there with these horrible illnesses . Xx

[friars126]

I was heading down the fibro route a few months ago when all my blood tests in October were normal except for low vit D. Then I developed wide spread pain and had more bloods done after vit D tablets didn't help. Now I have a positive Ana which which is indicative of an auto immune condition. I get the rash most evenings. You have to have 4 of the 11 criteria to get diagnosed with lupus but more Dr's and rheumatologist seem reluctant to diagnose it. Here's the link for the lupus UK site symptoms list:

lupusuk.org.uk/diagnosis/

Friars xx

[BonnieSue in reply to friars126]

Thank you, friars126 for the link.

[Sunsh1ne]

Why are they reluctant. ? I wonder . .

[BonnieSue in reply to Sunsh1ne]

Maybe they are afraid to be wrong. It doesn't look good or feel good for a Dr. to be wrong and have to admit it. Not to mention treating a patient for the wrong disease. The repercussions could be nasty.

[Hidden]

I was diagnosed with Lupus after I had a pulmonary embolism. I had the blood test and it came back positive. This was in 1991 and I had around 2/3 further blood tests when I was living in Africa, as they had no notes.

When I returned to UK in 2005 my new GP said he wanted to do the lupus test again...imagine my shock when it came back Negative ! I asked him what I did have and he told me to Google it, so I did a lot of research and came up with fibro., as I had the majority of the other illnesses that goes with it, eg IBS, anxiety, migraine etc. Got sent to rheumy who diagnosed fibro.

Drs are only practising and can bury their mistakes !

I'm now 62yrs and have got progressively worse since my youngest son of 24yrs, passed over, a month after a car smashed into the back of him whilst stationary, throwing him out of the car in Africa.

Blessings x