Fibro and possibly Lupus??

Fibro and possibly Lupus??

I have recently been diagnosed with Fibromyalgia about a month after this I developed a red itchy rash on the tops of my legs, side and then it went to the back of my legs! A reaction to my meds has been ruled out and I have been referred to a demotologist. The rash as subsided but has left my skin discoloured in places. Could this be Lupus??

12 Replies

  • Terrible when you have to wait for a diagnosis. I can't help unfortunately as I know on secondhand things about Lupus as a friend's daughter has it and I know she has quite nasty rashes. Did you know that Health Unlocked actually has a Lupus section I believe run by Lupus UK. It might be good to run your picture past the members on that section as I am sure if it is possible that it is Lupus originated someone might have had similar. Good lucks with it.x

  • Hello. My face used to break out in this and blister. I got tested for lupus before I finally got the diagnosis of fybromyalgia. I would ask for a lupus blood test but don't freak about it to much. X

  • hi getting diagnosed with lupus is very difficult, the main thing you need to do is insiste that you make sure your rhummatoligst is a conective tissue desease specialist, not Lyme desease etc , if you go on the lupus site here they are extremely helpful, but don't forget you need light reliefs ,so don't forget the fibro site , I have sjorgrens, fibro , and a few other things but I and my GP are convinced I have lupus , go back through your own history with a parent ask about allergies , weight gain or loss ( most think it's only weight loss but it can be fluctuations in weight to ) have you had other rashes ! Have you had thinning hair , any medication allergies , how are your monthly's ,insect bites how do react , fatigue etc , if you live in London ask to be referred to " Tommies " I am going to put a couple of links to other rashes or flushes for you ! But don't delay chase up the referral if you have to ring local hospital and make a nucence do so , but remember whatever the title of your condition if its immune syndrom linked they use all the same drugs to treat them , and it's much better not to have a lupus title when it comes to travel and life insurance policies, crazy really !

    Be back in a bit with Links


    Chris xx

  • Thank you Chirs this has all Been very helpful. There is a a few things there jumping out at me! I have always had horrendous periods but over the past few years really awful. If I get bitten by an insect it goes mega itchy bright red and takes ages to fade, infact I got one in July and you can still se the mark. Weight gain but I think that's me eating rubbish and no my hair is not thing so who knows my appointment with a dermatologist is not till 4th October!! Thank you again

  • Weight gain is not always you eating to much , it can be the body not working properly, if you are lacking vit d you can't break down body fat ! Most lupus patients are thin but if you have fibro you can't get out into sunlight the same so you don't absorb vit D if you have been misdiagnosed with IBS then you could have malabsorption issues so you don't break down down fats because you can't make your own vit D vit D breaks down fats hence you put on weight ! Take nothing for granted! One misdiagnosis leads to another etc !

    Good luck xx

  • Thank you I will certainly mention it and look into it! Thanks again xx


    Hope this helps !

    Gentle hugs


  • Looks a little bit like psoriasis to me but could be a few things. Your just gona have to go GP & get it tested to find out exactly what it is. Let us know when you find out.

    Luv Jan x

  • Hi there

    It's so hard when you don't know what's going on. I have lupus,fibro,arthritis and all the other things that go hand in hand,cold hands and feet,weight gain,rash but on my face ...called the butterfly rash,IBS....the list goes on as with lupus what you have too be aware of is that your internal organs can be attacked and damaged, not so with fibro!

    Extreme pain with both,but you really need to push to have test done for lupus. I myself have never had a rash like yours, but I'm not a doctor and I don't know if you can take a rash there . I was diagnosed with lupus first and then fibro 2 years after, as far as I'm aware you can't take lupus from fibro, but you can take fibro from lupus!

    They are both horrid horrid disorders to suffer from and I find myself fighting the corner of fibro more as people's attitude is...oh that's where you get some bad pain!!! If only you could make them feel it!!

    I don't have any trouble with travell insurance,mine is through my bank and as long as you eep them updated and disclose everything at start,you should be ok.

    I know there are companies who specialise in insurance specifically for these disorders,maybe check them out,however it is more expensive because you suffer from lupus( if indeed you do) go onto lupus uk site and they may be able to help you more,

    I hope you find out soon

    Guccigirl x

  • Hi my friend

    I am so genuinely sorry to read this, and as Janet 28 says it could be psoriasis, although the photo looks a little like Urticaria? I sincerely hope that you get a diagnosis quickly, and please take care of yourself.

    All my hopes and dreams for you


  • THanks to everyone that's has responded. I hope it's not lupus but will find out soon enough I guess!! Appointment with the dermatologist is the 4th October so will let you know X thanks again X

  • Good luck with your appointment.

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