fibro???

good morning All...can someone please assist please. Dr diagnosed me 2 months ago with fibroyalgia...it's been very pain full for more than a month and then the pain subsided. now i get stiffness in my blades of my back till my jaw and it's so draining as I feel tired. Is this normal and part of fibro.....and still get that feeling of short breath.....what do i do...Have a Blessed day all

16 Replies

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  • Morning shahieda

    Sorry to here you have diagnosed with fibroyalaga It has so many symptoms . but if your short of breath always get it checked out by your GP ,I do get stiffness in my blades and other parts of my body which wipes you out for days But we have to keep going and pace our self Well thats the advice given by everyone i.e physio,GP ect. My advice is, Keep positive/ keep smiling and keep in touch with your fibro buddys on this site. who are here for you Hope your sypmtoms gives you a break for christmas Hugs xx

  • Hi sorry you feeling crappy, we all seemed to have days even weeks when the pain is draining, the sharpness in your blades is something I suffer from daily going up my neck into my head them day can seem to last forever but it goes as quick as it comes, the shortness if breath is common in some but still best to get it checked out, you should ask about getting referee to pain clinic they really do understand, as you may also have HMS it can come hand in hand, have a great Christmas x

  • yes,I get a lot of pain in my shoulder blades. Best to do some stretching exercises for it 2-3 times a day, even when sitting down this can be done, once you get into the mode of not moving everything seizes up.

  • thank you very much for the reply Fibro10 and tiff74. atleast i dont feel alone now. It's just that it feels like my throat are closing up and the same time the tightness at the back of my neck. that's what worry me most. Thank you very much and enjoy the holidays and God Bless xxxx

  • Hi,

    Pain is no hard to cope with ongoingly. The areas you describe are similar to mine, and many others (won't make you feel better..sorry ):).

    Has the Dr given you any meds to try and help?

    Pain clinic in my area is virtually closed, it's so budget reduced, hope yours is better.

    Tiff... what is HMS?

    X

  • Hi there jelly :)

    HMS is Hypermobility Syndrome :) xx

  • hi there, I'm not sure what HMS stands for.....what also worries me is that ticklish feeling in my ears...it's constantly there.....I'm here in Cape Town South Africa and never been to a pain clinic but will surely google and see if I can get one....Many thanks and strongs with all the come and going pain as we all in the same boat Much love

  • HI SHAHIEDA WELCOME TO OUR GROUP.TRY AND FIND OUT IF YOU CAN GET ARNICA GEL IN YOUR COUNTRY IT IS COMPLETELY NATURAL I USE THIS ALL THE TIME FOR PAIN IN JOINTS AND MUSCLES I HAVE FIBROMYALGIA AS WELL.AND TRY MY FRUIT AND VEGETABLE SMOOTHIE FOR ENERGY,GREEN VEG RAW AND ADD BERRIES AND FRUIT YOU LIKE WHIZZ IT UP IN A BLENDER SMOOTHIE MAKER DESERT SPOON OF HONEY AND ADD WATER OR MILK,IT SHOULD HELP YOU.

    PINKRIBBONS.

  • Thank you very much Ribbonpink for the tip...I'm sure the chemist will have the Arnica gel...I'm def getting it...Today is just one of those days where my whole face feels stiff and it's actually paining...but I can feel everything comes from my back...it's actually scary the pain in the face....but I need to stretch alot as I am a data capturer and spend long hours infront of the pc......keep well and God Bless xxxx

  • DONT FORGET TRY THAT SMOOTHIE RECIPE IT WILL HELP YOU.XX

  • Yes Dear Thanx a mil...It's highly appreciated...

  • I am not certain, but i think that HMS probably stands for Hypermobility Syndrome. We have several people on the site with this, so they will be able to explain better than i can.

    Sue

  • You are very right my friend and also something that I was inflicted with.............. joyous little disease that affects connective tissues making my joints loose and unstable from over stretching and many injuries etc over the years :) xxx sian :)

  • thank you Sue for your reply Dear.

    xxxx

  • Hi shahieda

    I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I genuinely hope that you find the forum useful, informative and loads of fun! I am so sorry to read that you have been diagnosed with Fibro, and I genuinely hope that you can find some resolution and relief to your pain issues.

    I have pasted you a link below to our mother site, FibroAction which is packed with loads of useful Fibro information:

    FibroAction Website:

    fibroaction.org

    I want to wish you all the best of luck and I look forward to bumping into you around the forum.

    All my hopes and dreams for you

    Ken

  • Good morning Ken

    Thank you very much. This site has helped me so much and made me understand that I am not alone and that one thing for sure is that I'm not giving up. My attitude changed towards fibro since I've joined this site and I've got a much clearer understanding of what I'm dealing with. Thank you so much for your reply and to all. Keep well and be safe.

    xxxx

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