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Fibromyalgia

Mooo profile image
Mooo
12 Replies

How can one describe the pain that assaults you all over ?

Does anyone know what causes it to manifest? I have a feeling

Mine started after a lung infection some 4 years ago. SInce, I may have some weeks without discomfort but as of late the last 5 months have been torturous. Any advice welcomed.

Mooo

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Mooo profile image
Mooo
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12 Replies
TheAuthor profile image
TheAuthor

Hi Mooo

I am so genuinely sorry to read that you have been suffering and struggling with your Fibro, and I sincerely want to wish you all the best of luck. I have pasted below a link to the FMA Uk website that hosts loads of useful Fibro information:

fmauk.org/

According to the NHS Choices website, it says:

In many cases, the condition appears to be triggered by a physically or emotionally stressful event, such as:

an injury or infection

giving birth

having an operation

the breakdown of a relationship

the death of a loved one

So you could be right about yours? I have pasted you the link below:

nhs.uk/conditions/Fibromyal...

I want to sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

mono3 profile image
mono3 in reply toTheAuthor

Had all of those!

ladyinpurple profile image
ladyinpurple

For me the pain feels like a constant nagging dull ache in various parts of my body but particularly my lower arms/wrists and lower legs/ankles. I dont have it all the time but I do have it a lot of the time if that makes sense? It wears me down and I feel very tired a lot of the time and can be stiff and walk like a stilted puppet, as my husband puts it! I can also feel pretty low and have to try and shake myself out of that. I can be quite withdrawn for days just because I hurt and am tired. I get RA flare ups which agrivates the fibromyalgia and visa versa so that I sometimes end up having a weep with it all.

I have always had aches and pains even as a child. The good old 'growing pains' were what the doctor called them, but when i hit the menopause time things got worse. I also had two kneee operations around that period which laid me up for almost 6 months because I just couldn't seem to get back on track, even though the recovery time was around 6 - 8 weeks. That's when i was diagnosed with RA, and recently the fibromyalgia.

I think my immune system is having a ball as I also have an underactive thyroid. I just want to be fit and well and often I dont feel like that . It's very annoying!!

There are many people on here that probably could give you advice as I am fairly new to the fibromyalgia side of things, although I am glad to put a name to what I have felt. I do understand how you feel and think maybe you should go back to your doctor for advice? I keep my trusty hot water bottle close for my legs and take my painkillers when i need them which dulls the pain, but by the sound of things you are past that and need further help. Dont be in pain.......there is help out there to ease that.

Take care. This probably hasnt helped much but I do wish you well.

Carla

Jenamey41 profile image
Jenamey41

Hi for me it's like a deep bone ache. Any bit of me I use repeatly goes into overdrive and spasms. Weather, stress and anxiety also doing to much can cause it to flare up. Pacing is important so is learning your limitation.

Gentle hugs.

deltamatrix profile image
deltamatrix in reply toJenamey41

oh yes the deep bone ache. No-one understands how that feels, except maybe you?

Jenamey41 profile image
Jenamey41 in reply todeltamatrix

I have had the condition for several years. In hot weather along with the deep bone ache I get a top layer of tingling. Also cfs and fibrofog. It's important to chat to others with the condition so that we don't feel alone in our suffering as only people with it fully understand the symptoms. Gentle hugs.

pigsty profile image
pigsty

For me there is constant pain but I have learnt to keep going at a certain level but I have to pace myself or all the other effects like foggy brain leaden limbs hot / cold extremities also come out to play.

The chronic fatigue is for me almost worse than the pain as there is nothing I can do but stop when that happens..

Talk to your GP take whatever support is offered and pace yourself....

Hope today will be a good day for you....

Sorebones profile image
Sorebones

Interesting question. Hmmmmm. I really can't be sure if I'm honest. I've had many things happen to me that could bring on Fibro if you believe that's how it happens. I'm not so sure. It may contribute but I believe it's a physical thing they have yet to discover 🐸

yvon01 profile image
yvon01

Hi Mooo, I know mine started when my Dad died suddenly in 1986 I was devastated. But b4 that I had had a very bad marriage I was unwell then but told it was Osteo Arthritis. But my health got worse after my Dad's death, then told I had Fibro as well. Hope you feel better soon, think good things do what pleases you. Good wishes. xx

denvajade profile image
denvajade

I got mine 17 years ago at the time had real stressful things happening and had just had the Hong Kong flu I think it was called. In bed for 6 weeks.it still loves me to this day and very bad currently, now my daughter has it caused thru broken marriage stress.

peck profile image
peck

I was diagnosed in 1999 after having gallbladder taken out and during surgery my bile duct was cut (not good) .Two days after surgery I was yellow and returned to gastro. who discovered what had took place. He told me I needed another surgery called ERCP it repairs bile duct down the throat. After surgery which was done ASAP I was told 1 out of 100 people die from ERCP, thanks.After this tested positive for Hep C about a yearllater dia. with FM.I lost a very kind friend to the surgery ERCP about 5 years after this.I have alot of depression most of the pain I have and I'm thankful I don't have alot is in my back, feet, hips, and ankles.

MariLiz profile image
MariLiz

I think prolonged stress and then being very ill with sinus and chest infections, needing lots of antibiotics to clear the infections, was the start of my Fibro. The stress was caused by looking after my elderly Mum in law, she was in her own home, but needed regular visits. There were late night hospital admissions after falls etc....After she died, the strain of it all just meant I seemed to get every germ going. Then the Fibro, plus Pernicious Anaemia , on top of asthma and underactive thyroid I'd already got. These illnesses like to come as a group!

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