Fibromyalgia : Hello my name is debbie... - Fibromyalgia Acti...

Fibromyalgia Action UK
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Fibromyalgia

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Hello my name is debbie and I was diagnosed with fibromyalgia a year ago by my doctor . Since then I have tried to cope as best as I can on my own and have not been back to my doctor as the hostility I got from her concerning the condition made me scared to approach medical help . Are some doctors sceptical about the condition

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change your doctor there not all like it. good luck

Get a new doctor! Some drs. will dismiss anything they can't figure out as anxiety( and yes, anxiety can be a part of this). The neurologist I saw not only dismissed everything as anxiety but brushed off the idea of seeing my MRIs orders by my orthopedic specialist which show spine problems. I learned that I have nerve damage from that doctor- and he is sending me to a colleague in a different specialty for review - and help. getting a medical degree doesn't mean a dr knows everything and certainly means nothing about compassion or caring

Yes some are, have you seen them about any thing else? How are they generally ? My GP retired two years ago and I changed twice until I found one I could relate to. Life is too short to not get the help you need and the service you deserve. X

Hello and welcome!

Sorry that you feel that are not getting support from your doctor.

Could you ask to see a different doctor in your practice?

You may also find it useful to send an information pack to your doctor.... if you look on fmauk.org (the mother website for this forum) ... towards the bottom of the home page there is a section where you can ask for a fibromyalgia information pack to be sent anonymously to your doctor.

You can also find details of local support group s on the same website, maybe you could consider going along to a local group meeting and meeting other people might make you feel less alone with this condition.

Best wishes xx

I am fortunate to have a great forward thinking GP. However, the Rhumetologist I was referred to only paid lip service under I wrote a letter complaining did I get a diagnosis. My other half works at the hospital and found out he does not not believe in Fibro but the other Rhume does!

Ask for a second opinion or change Dr. Was she just having a bad day or has this happened on a few occasions.

You can ask your Dr to refer you to the pain clinic or be referred to a CBT course run at the hospital to help people with chronic illness come to terms with it and link you with appropriate physio. It's free and very worthwhile.

Patrick

I would also recommend a new doctor. I live in states so there are only a few who don't believe. There are many who don't know much about it though. They usually send you to a specialist though. Good luck

Hi music50

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I sincerely hope that you find the forum useful, informative and loads of fun!

I am so genuinely sorry to read of your problems with the medical community, and I would have to say that doctors are just like everybody else, in that some are okay and some are far from it! I would look around your surgery and see if there are any other doctors that may be Fibro friendly? If not, it may be beneficial to find another surgery. I have pasted you a link below to the FMA UK Fibro groups listings, as I am sure you would be able to find a member of a group in your area that knows of a good GP.

fmauk.org/component/content...

I want to genuinely and sincerely wish you all the best of luck.

All my hopes and dreams for you

Ken

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Thankyou your so supportive and kind it's taken me a while to open up and come out about my fibromyalgia even to the family I look forward to many chats to you all X X

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Hidden in reply to TheAuthor

Thankyou ken X

I have seen four GPs at my surgery and although most of them have been fairly sympathetic - one is adamant I have fibro and won't consider anything else (although my blood tests have been all over the place) their solution is just to shove higher and higher dosages of painkillers at me. This forum is the best support I've found. Sending hugs x

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Hidden in reply to achydunlin

Thankyou so nice to feel people are listening like yourself hugs to you X

Hi debbie. Yes I seen a doctor at the hospital when I said my gp had diagnosed me with fibromyalgia. He said well iv got a pain in my back does thatean iv got it then. I told him how rude he was andhad no right to speak to me like that. And u should say this to your gp or change to another one take someone with you for support. Take care sue

Hi Debbie...saddened to hear you are having such a difficult time with a GP in this day and age about Fibro. ...to an extent it was par for the course years ago but I really hoped things had got better!

I'm wondering if you could look into what lead the GP to diagnose Fibro so you are clear in your own mind . ....did you keep a record of your symptoms over time, were other conditions investigated and discounted, etc. Do you yourself feel Fibro fits with all your various symptoms? Perhaps get a copy of your GP records to double check what preceded diagnosis? No one with a long term illness should just be left to get on with it themselves. And please beware of the tendency of some of us to dismiss persistent new symptoms as just part of Fibro. ..They may, they may not, but best to be on the safe side and get them checked out.

Look for a GP who supports you and to whom you feel you can talk to. Fibro illness deserves the same respect and compassion as other debilitating chronic illnesses. Look after yourself.

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Thankyou must of admit I have tried to manage my symptoms myself but recently my bouts have practically imprisoned me can hardly walk at times I will get another doctor what held me back was that at this practice my son is a patient and he has disabilities and all his care is dealt through them but I will change as I have to be well for my son many thanks X X

stumpedok
stumpedok in reply to Hidden

They need to look after BOTH of you, not just your son. ....you are equally important. Take care.

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