Fibromyalgia

Hi, I'm new on the site, and I have fibromyalgia, which i'm dealing with naturally so far, don't want to take drugs for the pain, using lots of different anti inflamatory substances, fish oils, magnesium (malate day, glycinate evening),b12, d3, mitoq(energy), resveratrol, pumpkin oil, l glutamine(for leaky gut) and some chinese herbs, eat mostly organic vegetarian, currently doing sessions of breathing oxygen under pressure in a hyperbaric chamber. Go to gym every two days and do mild aerobic excercise for 30 mins and stretch for 45 mins. Have managed to get rid of morning brain fog and general tiredness, but still have pain, although it has become localised in my shoulders and arms and neck, and is worse when I sit or lie down for a while, so feel much better during the day and worse at night. Thinking of moving to a dry warm climate, as that seems to help. Any one have any suggestions about natural pain management for connective tissue and muscle pain?

21 Replies

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  • Hi Chrisbel

    I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I have pasted you a link below to our mother site, FMA UK which hosts loads of useful Fibro information:

    fmauk.org/

    I use a TENS Machine when my pain becomes too much for me and I find this helps m somewhat. I have pasted you a link below to the NHS Choices cache on TENS:

    nhs.uk/conditions/tens/Page...

    I want to sincerely wish you all the best of luck, and please take care of yourself.

    All my hopes and dreams for you

    Ken

  • Thank you for this, will look at the tens machine, you might look at hyaluronic acid for arthritis, it certainly worked for me and 9 out of 10 of the people that I have recommended it to. They use it for horses who apparently get arthritis a lot, and a friend who keeps horses told me about it. 3X the recommended daily amount (300 mg) per day for at least 3 months,my pain in my finger joints disappeared after about three and a half months and as I now take it every day I have not had any more problems in that area. Now, if I could only find something as effective for the rest of it......

  • Hi Chrisbel

    Thanks my friend I shall have a read up on this. I already take Alendronic Acid and Acrette D3 as I also have Osteoporosis. Good luck my friend :)

  • Mornng Christabel well my doctor told me I have to keep doing everything phisicaly i do every day I stillcut bushes in the garden and still lift heavy shopping ect, because he told me once I stop doing heavy things my body will become disabled very quickly, so I suppose one thing to do is to carry on with every day life as long as you can. You seem to be doing more than enough at the moment xx

  • Hello there

    I used 1tbsp turmeric 1tbspginger a pinch black pepper bring to boil simmer 10minutes add honey to taste drink half a cup on empty stomach in morning .my shoulders been killing me for ages tried all painkillers nothing works . Tried this took a week or so to get into your system but it worked for me

    good luck

    John

  • Thanks for the reply. Maybe taking these your way is better than the way I do it i.e in a capsule in the morning with the rest of my supplements?

  • Hi. I have fibromyalgia too. For some time now I've been using natural remedies like yourself. You may find that there's not much more you can do for the pain. I use ginger, devil's claw, Vicks vapour rub, Epsom salts. That helps me. As you know, the pain is worse when one is not moving. So at night my pain is bad, but I take kalms to relax me so that I get a peaceful sleep. Then, I will function better in the day. I work full-time as a personal shopper. This provides a lot of exercise. Plus, I walk the 3 miles back home each day. I always have a positive attitude, that's a great help. If you keep away from prescription drugs and keep doing what you are doing now, you will cope with it. Don't allow it to control you. You control it.

    Have a positive day.

  • Not a fan of ginger, I know its good for you but I just don't like it! Will look at devils claw, never taken that, I find that taking magnesium bis-glycinate an hour before bed really has helped my sleeping patterns- 4 hours at a time instead of waking up every hour. I agree about the attitude aspect of things, I am determined to get rid of this and will not stop trying untill it is gone. Exercise , for me, is a major part of keeping the stiffness at bay, and i find that every two days is optimal.

  • It is great take supplements such as krill oil an resverotrol i also use DMSO Bz it works pretty well

  • I had heard about the warm dry climate but last year on holiday in Greece I ended up in a wheel chair I was so bad with the fibromyalgia mine started in my pelvis 18 years old and for the first 10yrs I coped but after 12 years I had to go on meds it does get worse sorry 😇😉

  • Going to Chile next week and it's summer there, staying fo 6 weeks, very hot and dry so guess I will see how I get on.

  • Thanks for all the replies, i forgot to mention a few other things I take, zinc picolinate, hyaluronic acid 300 mg per day (got rid of my pain from arthritis in my hands after about 3 months) and turmeric with bioperine, and I sometimes use a magnesium spray topically, how ever I seem to find that taking magnesium orally is more effective. Will check out all the other things that you have all suggested.

  • Hello Chrisbel -

    I am so impressed: you have done a lot of research, thank you for sharing!

    I have fibro as well as thyroid and pituitary problems, autoimmune issues...

    On top of what you mention (I will try the hyaluronic acid, thanks) I have finally (after three years of waking up every two hours) managed to get a good sleep pattern back after working to rebalance hormones, neurotransmitters and cortisol. The excess neck/shoulder/shoulderblade/arm pain eased within two days of proper sleep.

    Also: antiinflammatory diet.

    I was a yoga/pilates teacher and very flexible but I eased back on the depth of stretching and concentrated on a 'restrained stretch' with focus on the fascia, this helped the upper body agony but also the hip stiffness and pain.

    Have a wonderful time in Chile! I always feel almost well in very warm or very cold weather - as long as it is dry (mold or dustmite allergy?)

  • What is a restrained stretch?

  • Apologies for the late reply, Newtali, I don't know how to explain this without writing too much...

    I call it a restrained stretch when we don't try to finally reach the toes or put nose to knee. because by doing this the weakest bit of anatomy involved in the stretch bears the burden. By sticking to 70% of what's possible but doing it in good alignment, slowly and with freeflowing breath the long held tightness will ease.

    Instead of sitting and reaching for the toes this would mean lying on the back, leg at right angle towards the ceiling, softly flexed foot held gently without straining arms or shoulders with a belt. Letting the pelvis settle into its natural place while straightening not locking the leg/knee and reaching the heel away.

    I hope that makes sense.

    Stretching while gently building strength as in Pilates was all I could do while at my worst, ten minutes a day max.

  • Thanks. You explain it very well.

  • Chrisbel,

    I salute you!

    May I recommend Dr Tom O'Bryan's words on food, when he says that there are only two types of foods,, "those that cause inflammation and those that do not !"

    Best Wishes, Ray

  • My problem is that everything I like is inflammatory! Pain in the proverbial, as i have had to really change my way of eating. The surprising thing is I enjoy the new way of eating almost as much, but I still miss sugar!

  • Chrisbel

    "Like" had no part to play in any decision I made to give up *ALL* Grains, Dairy (including eggs) and Soy.

    Let me further explain that one of my major food groups used to be chocolate,,,,, Uhhh hhu,, "Computer Says NO!"

    I couldn't go back at this stage, in fact a year after starting, the very thought of just trying to eat a bit of bread is now repulsive !

    Ray

  • The heat makes me so much worse, blurred vision, dizziness, fatigue, brain fog. When it's cold my pain is much worse. Somewhere 'warm & dry' would be ideal as extremes in either direction make me ill.

    How have you found the oxygen treatments? That's next on my list to try but the nearest centre is a 3hr round trip away from home so have been putting it off.

    Thanks x

  • Definitely helped, brain fog gone, fatigue gone, there is a study done by an Israeli university showing a cure rate of 75% of fibro sufferers, after two months of breathing oxygen at twice the normal atmospheric pressure for an hour and a half a day. Where I live there is a charity that runs a chamber so I have been going there 6 times a week for an hour a day and have done 80 sessions, so far. I think you have to do them continuously, to get the best out of it, however some is better than none. At first the sessions made me tired, but after 20 or so, it started to make me more energetic. Now I have to go away for about 6 weeks so will continue when I return. Definitely recommend it.

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