Notified in the last half hour that I have been awarded PIP, very quick as assessment was last sunday 22nd, maybe the assessor decided I was a complete barnpot! Not said how much or what category yet but told to expect letter and payment in next 2 weeks. If anyone needs help on putting forward explanatory detail of how Fibro/ME/CFS affects your daily life ( I didn,t hold back) let me know I will help ou all as much as I can.
With Fondest from Nurse Gladys Emanuel (open all hours)
Congratulations! It's such a relief isn't it. Was shocked when I got it last year. I don't think I would have had the strength to appeal which I'm sure they bank on. I hope it makes life more enjoyable for you. It certainly helped me.
Fantastic - happy for you!! I'm going through a mandatory reconsideration because I was only awarded standard dlc and nothing for mobility (4 points for walking) They said I don't have anxiety and I'm not medicated for it, even though my GP has diagnosed it and I'm taking mirtazapine (which GP recently increased as I'm getting worse) Because of this they said I was able to engage face to face nd plan and follow a journey on my own... This isn't true - on my bad days (around 6/7) I can't do anything or talk to anyone. Haven't seen people since before Christmas and rarely leave the house.... I'm waiting for the evidence they used to be sent then I'm sending it all off... Hopefully they will believe that I am actually suffering!!
It is Personal Independent Payments that replaced disability living allowance (DLA) it is not means tested and so anyone with a chronic illness can apply it helps you reduce your working hours if you still manage to work and in some cases motability is given to help buy you transport.
Hello NurseGladys123 stumbled across yr post when looking for advice on preparing a daily diary for pip on how my fibro/cfs effects me coz for some reason i cant think of how to explain this...im so exhausted all the time an i just dont know what or how to do this so fort il ask the question if anyone else has done this and found your title in the list before i did how strange..i notice tho this is from 2 years ago but im hoping maybe u can still advize at all..i dont know even if doing such a diary type of thing will help but some have advized me to write one or rather id ve typing one due to the pain in my hands but i dont know where or how is there aby chance u could advize on this anything will be so appreciated but no worries if not i understand xx
Hi LaurieLee ...Was this question for me ?... if so I was searching for advice on how to write a daily diary as I'm terrible at trying explain things my brain just doesn't work anymore and I came across nursegladis post above the one I'm replying too now and she mentions if anyone's needs advice on this explaining how our fibro cigs me effects our daily lives so this is what I asked her if she could advice me with I wouldn't of asked if it didn't say this in her post but not to worry I'm sure I will get help somewhere ... thank you for your response xx
Sorry, I didn’t do a diary. But some people think they are useful. What is extremely important is saying how do x,y and z has such an effect on your pain levels and fatigue. For example, but if you walk up to 20 metres’ you cannot do it REPEATEDLY, RELIABLY and SAFELY. If you do you end up in a severe pain flare up, which can affect you for days or up to a week. You need to put that on every ANSWER to your question. Please look up my old posts from last week to 2 years ago. They really will help.
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