What method is best?


Was diagnosed with fibro new weeks ago, Drs not doing nothing at all for me just got to wait to see my rumotologist in July! Iv been ill & agony every day since October now been on all the paid meds there is as they thought I had nerve damage... 

Now there's nothing at all I can take for pain, I just want to try an get abit better or near enough normal again so I can at least try an get back to work full time.. 

My boyfriend gives me deep muscle massages every night but there so painful! All of my spine an shoulder blades are so sensitive..

don't know what else there is I can try? Not like I can actually excercise as can barley move... 

5 Replies

  • Sorry to hear that you're having such a hard time, but sadly that's life with Fibro. 

    Fibro isn't a 'one size fits all' medical delight I'm afraid, and what helps one may not help another. We all react differently to meds. I'm on amitriptylene which helps me greatly, but so many other forum members find that they feel sick or dizzy etc and can't take it. 

    I find that heat pads help a bit, others need cold, so give both a try.

    If the deep tissue massage is hurting, I suggest you stop it. You don't benefit from more pain. A lighter massage may feel better.

    I wish I could offer you a solution. I'd be very rich if I did lol. The best thing that you can do now is learn as much as possible on Fibro and how to live with it. One of our wonderful volunteer admin members will give you more info when they log in. 

    This is a great place for getting things off your chest, asking questions etc as we all suffer from Fibro, so one of us will know how to help you. We have a giggle along the way too as humour is needed to brighten our day. I hope you will enjoy our forum 😀🐸

  • Hi Leanne21bull 

    I am sorry that you are struggling at the moment. 

    As Sorebones has so rightly said there is no one "thing" that we can all do that will make us feel better. 

    If I have read your post correctly you are now unable to take any meds. Is that correct?

    As for the deep massage, again, if it is causing you pain, don't do it anymore or have a lighter pressure massage. 

    If you have a look on our mother site you will find lots of help and information on there fmauk.org

    You can get heat pads and or cooling gels that can help to take the edge off the pain a little but other than that it's a case of pacing yourself I'm afraid. 

    It's basically down to a case of trying different things and see what works for you. Will your GP refer you to a Pain Management Clinic?  You have nothing to lose by asking. 

    Wishing you less pain and more peace

    Lu x

    Admin Volunteer 

  • Thanks for getting back.

    I haven't found any pain meds which help me in any way, the only thing what worked was oral morphine but I don't want to rely on that.. 

    I saw a pain management dr in December before being diagnosed with anything an he gave me a tense machine which I don't benifit on.. 

    Honestly, I don't think I do have fibromalgia. I have all of the symptoms there is of lupus but not enough blood tests come back positive to prove that... I just hate suffering every day.

  • I have something called the "Bowen Technique" on a regular basis which helps prevent my aches and pains. Its gentle but boy does it work for me, its all about stimulating the body itself to help itself.

    The other thing I use is a TENS machine, you can get them from any pharmacy and that does help relax the muscles especially when they are spasming.

  • Hi Leanne21bull

    I am so genuinely sorry to read how you are suffering and struggling, and I sincerely hope that you can find some resolution and relief to your pain issues. I also wish I could be of more use to you, but Fibro is a very individual condition.

    If you truly believe that you do not have Fibro, and think it may be something else, it may be worth booking an appointment with a different GP to discuss your feelings on this issue? I want to sincerely wish you all the best of luck and please take care of yourself.

    All my hopes and dreams for you


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