Unknown foot pain

Unknown foot pain

I'm extremely new to writing on forums so please bear with me. I was diagnosed with fibromyalgia when I was 20 and my pain really wasn't bad until I got into my 30's. I previously just had back spasms or tightness but recently for over a year now I've had pain in the upper part of my foot. I've gone to numerous podiatrist with nothing turning up on on X-rays or mri's. There are some days where my feet feel so inflamed j can't walk. Has anyone had this problem? 

36 Replies

  • Hi and welcome to our lovely forum.We are here to help and we have been known to have alot of fun!! I have alot of foot pai as I have plantar faciatis and bursitis. These are something you may discuss with gp.Hope it helps. Peck.😊

  • Thank you for the info! I also get bursitis off and on. Have a great night!-Christine 

  • I have planter faciatis that has eased with reflexology weekly (if you can afford), a form 303 from my chiro which is magnesium, valerian root and passionflora. Works pretty good with tightness in my back too. I get a wicked pain on the top of my left foot from time to time. I try to walk through the pain and it usually eases pretty quick. 

    I believe drs dont know a lot about where pain is coming from. I hope you feel better.

  • Thank you for your response it was nice to know I'm not alone in how I'm feeling. Some days are easier than others and some days I feel hopeless. I hope you feel better soon too! 

  • Hi there There are several videos on u tube about plantar faciitis and some exercises, hope this helps. 

  • Hi Cmb8200

    I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I have pasted you a link below to our mother site, FMA UK which hosts loads of useful Fibro information:


    I am so genuinely sorry to read that you are experiencing such horrid foot pain and I sincerely hope that you can find some resolution and relief to this issue. I suffer with Lymphedema which makes my feet / ankles swell, I do not know if this is the sort of thing that you mean? If so, it really needs to be checked out by your GP just to have Lymphedema ruled out of the equation? I have pasted you a link to the NHS Choices cache on ''Oedema'', so I hope that you find this useful:


    I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

    All my hopes and dreams for you


  • Thank you very much for the info, i'll be sure to check out the link. I have been to my gp and doing blood test now for any type of autoimmuine issues. My feet do almost feel like there inflamed most of the time. I hope you feel some relief soon! Take care!

  • Good luck :)

  • Sorry to hear you are going through all this hope you get back to feeling better.  Oh yes I know these days way too well  or it feels like your feet are ripping open every time I  step down. Sometimes  I have feelings  only in one spot and the other part is on fire or no feeling at all and when you explain these things to the doctors  they look at you like you are crazy in the head. Welcome to fibro.  Some times I walk like I have MS and I don't have control of my legs and feet and other times I walk like there is nothing wrong. Really makes you humble and grateful for these friends that really knows what you are going through when nobody else believes there is anything  really wrong with you. Hope you get to feeling better soon.

  • Hi there I am a newbie myself I too get lots of foot ache especially on my heels they are sore to touch at times and I can't stand any pressure on my heels. I tend to wear backless shoes 

    Relieved to know there is a reason for this as it drives me mad at times x🤗

  • Hi Cmb,

    Iam so relieved to hear about the pain in your feet because I have been suffering with the exact same pain and knowing that another fibro sufferer has it helps me to know that I'm not going mad. I have been to physio, my GP, a chiropractor and all are completely stumped on what is causing it. I guess I know now that there is no cure and it's just another horrible fibro symptom. 

    The pain normally is worse in the morning but after waking on it for a but the pain goes. Does your go when you walk? 

    Wishing you less pain xxxx

  • Wow you and I sound an awful lot alike! Mine is worse in the morning and eases up a bit (but still hurts) after standing/walking on it for awhile at work. Usually by the evening either it'll feel the same in pain or it'll feel like it did in the morning.

     I'm on  a few different medicines like lyrica that helped initially for joint pain in my knees but that's starting to come back. 

    I have been to so many doctors and there all stumped especially my gp so now she's doing blood tests to check for any autoimmuine diseases. It's as if there grappling at straws at this point.

    It just makes it so hard because I'm starting to feel like i'm going crazy and there's no relief in sight. 

    I really hope you find some answers and relief in your pain soon!

    Wishing you the best!

  • I too get foot pain in my heels and toes. I was given inner soles by the foot clinic to put in my shoes. They do actually work and if I wear shoes without the support the pain is bad. I was referred to the foot clinic by the rheumatologist. Hope you feel better soon

  • Hi CmB, welcome to the site, I went shopping yesterday 'i was determined to get out out of the house for a bit'. Anyway the soles of my feet were burning up, it felt like i was walking on hot coals, it didn't stop till i sat down, it was awful never had that before its a new one. Hence today i am in pain today but it was worth it just toget out. All the best.  Ann

  • At least you tried to get out for a bit! I know what it's like to be in pain and want to go out but cant. I hope you feel better soon! Christine

  • Bless you take care. Gentle hugs x

  • hi i have perifual neuropathy in my feet but you can get it any where the pain is so bad its a burning tingeling feeling as i have it on the botom of my feet its like trying to walk i hope you can find out what it is sending softest hugs ,on sharp glass 

  • Oh no that sounds horrible! Is there any relief for you? 

    Wishing you the best!

  • hi i have tried medication but have bad side affects i cant take morphine again it affects my breathing i am asmatic so just have to bear the pain .

  • I am sorry to hear that. Hopefully the pain isn't unbearable. 

  • Yes, my feet ache constantly my hands too, keeps my awake most nights, I had them scanned,  have osteoarthritis luckily not rheumatoid but still very painfull

  • Hiya, i like yourself was experiencing really really bad pain in my foot, so much that i can't put the heel of my foot to the floor now. an MRI did actually reveal i have a big cyst in my foot but i still suffer with it as they don't like operating said i might lose the use of my foot so i'm just hobbling along. they did make me some insoles for my shoes but it's really done nada. on another note sometimes the good foot feels the same as the bad foot and apparently there's nothing wrong with that one.  i hope that your foot feels better soon and sending love and healing vibes to you my lovely. 

  • Oh wow you poor thing, I am so sorry to hear of the pain your in. i hope you find some relief soon. Thanks for replying back. It helps to know i'm not alone. Hugs!

  • Nope, definitely not alone. it's okay i'm adapting to walking on my front of my foot slowly, doing the exercises that the doctor gave me etc. hope that the pain you're experiencing gets better soon x 

  • Hi

    Sorry to hear you're symptoms are progressing. Unfortunately this seems to be the case for fibro. I too get terrible foot pain and cannot walk. Sorry I have no suggestions for relief.

    I suggest you go to you dr and ask to see a consultant and get some meds to try.

    Hope you feel a little better today.

    Best wishes.

  • Thanks for replying back. I am so sorry to hear that you too are in pain. No one should have to go through what we go through!

  • Hi

    Yes I agree, hopefully some bright spark will come up with a cure soon 👍😊

    Take care.

  • My fibro started in my feet...lots of pain and hard to weight bear...that was 9 years ago and like you nothing showed on xray or MRI. 

  • my fibro started with my feet and ankles. it really helps knowing it's not "in my head". i do have a cream that i get at a compound pharmacy that has keta/keto/tetra which helps. my pcp came up with this mix so not sure if can get it compounded for you or not. worth asking though. if want further info on this cream let me know. i can forward as much info as can regarding the cream. do you also have a problem lifting your feet when they hurt? i find when i'm in rotten pain i will slide my feet along instead of lifting up a foot. anyone have same?

  • No problem lifting my feet. Besides the pain walking on them they feel like there inflamed and my ankles ache sometimes 

  •  I get the strangest foot pain, often when in bed at night, feels like its being crushed at top of my foot, l can also get spasms in my foot and hands,  always had bouts of cramp in foot leg but the crushing and spasms more recent. like a voyage of discovery, but more like Jason on the Argo, what horror next.   l read posts and learn about conditions l,d never heard of, live and learn of here.  Good luck 

  • Hi. You are not alone in this. I have agonising feet problems. My right foot and ankle are especially painful. They thought I had plantar fascitis and I underwent steroid injections, plaster and a colbation operation. None of these helped so I then had an MRI scan which showed a little inflammation but not enough to justify the pain that I am in.  Nothing helps me greatly but the following help a little so might be worth trying: my podiatrist made me special insoles; I was told to but Asics running shoes as these give a fair amount of support; I wear wooly socks in bed (very elegant!!) and nearly always wear socks at all times.

  • Thanks for the info. I have to wear house shoes at home since it's too painful on my bare feet. I've been using inserts and wearing new balance tennis shoes 

  • It really is horrible when it hurts your feet isn't it? I look really impatient if I am standing in a queue; I'm not impatient but am in agony. This part of my fibro has affected me more than any of the other symptoms. Sometimes I'd like to just cut my right foot off.

  • Yes, me! Terrible foot pain. Podiatrist has made me some inner soles. Lovely,  but still have foot pain. I walk a lot with my job. But when i get in, it's terrible  at times. But then the pain can be terrible  any time,  in any parts of my body. It's all just a joke! Xxx

  • Hi, i used to get really bad heel pain and it got so bad i ended up at the podiatrist who told me it was plantar fasciitis after many months of doing everything they told me with no relief they sent me for a quick & simple op on it. This completely resolved the problem only to find i have now got a different and severe pain in the top of foot and around ankle. Just cant win. I have been told by podiatrist it happens sometimes but i will just have to put up with it. It may go of its own accord, it may not. I have not found anything that remotely relieves the pain yet but i now wear an ankle/foot support everyday to help get through the day. Keep your chin up! x

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