Has anyone heard of this, Went to hospital the other day and consultant thinks I may have this?
Tea123
Pernicious anemia : Has anyone heard of... - Fibromyalgia Acti...
Pernicious anemia
Written by
Tea1234
To view profiles and participate in discussions please or .
Read more about...
18 Replies
•
Yes, I've had it for years. It's treatable. You will be given a vitamin B12 injection every 3 months and put on daily iron tablets.
Your bowel stops absorbing vitamin B12 which is why you need to jab and is in itself pernicious anaemia. Years ago it was a medical condition that killed you, but that was well in the past. You will feel tired all the time, just like Fibro and CFS.
It's nothing to worry about, believe me 🐸
Tea, there's a forum here on Healthunlocked - healthunlocked.com/pasoc 
Yes, my friend had it last year. She had to have B12 injections as someone said above. She's absolutely fine now - still on iron tablets but doing well.
Several people I know have been diagnosed with this and with the right treatment they had injections and tablets they were like new people within quite a short time. Hope you will be feeling full of beans soon.x
Pernicious anemia is a deficiency of B12, which can only be used by your body if injected or taken sublingually--meaning absorbed under the tongue. Iron pills are for an iron deficiency only and are not related to a B12 deficiency. It sounds like some people are getting the 2 confused.
A B12 deficiency used to be called scurvy and was mostly seen by sailors because they'd be at sea for long periods and didn't have access to fresh fruits and foods that had B12 in them. These days we have access to these foods and most people eat enough of them to not have a deficiency. I suppose some people could have an absorption problem while having sufficient amounts of B12; I haven't researched that. Does anyone know about that?
I have diverticular disease if the whole colon. A majority of my family have this two, plus my eldest child and my youngest one has problems with B12 too. It cannot be our diet as we have fresh vegetables and meat every day. I am so exhausted abs suffer with numbness and pins and needles in arms and legs.
Thanks so much for your kind words.
Tea123 😀
Thanks for explaining about diverticular disease. Here's what I found on WebMD: "Diverticulosis happens when pouches form in the wall of the colon. If these pouches get inflamed or infected, it is called diverticulitis." I don't understand how the disease process works but I'm sorry you and your children have to deal with this every day.
Soz should have said too! Lol self correct on my phone..
Hi Tea 123, I've also got pernicious anaemia along with the fibro. I was diagnosed with the anaemia 10 years ago.
Before I was diagnosed, the tiredness was bad, I was off sick from work for a couple of months until the injections had started to take effect.
I am so genuinely sorry to read this my friend, and I sincerely hope that the treatments are working well for you. I won't repeat what everyone has already said about it as I can see that you have had some absolutely wonderful replies to your question. I want to genuinely and sincerely wish you all the best of luck. Please take care of yourself.
All my hopes and dreams for you
Ken
I think it's pretty common with fibromyalgia.
I think I've been fob off by the Rheumatologist as he told me I can't have both!!
Tea123
Hello Tea123,
Sorry to hear you have this diagnosis too. It is common with thyroid problems, did the doctor check that for you?
If you have digestive problems you will need the B12 injections for life. I have underactive thyroid, Pernicious Anemia and fibromyalgia. I believe they are all autoimmune conditions, and they seem to come in groups. Hope you soon feel better. MariLiz x
