Feeling sorry for myself tonight so thought I would ask advice from my fellow friends.
I have had fibromyalgia along with several other problems which meant I had to take very early ill health retirement. On several medications but all for quite a length of time.
Always had bother with pain in my hands and feet but for the past few weeks I am really struggling to cope with painful feet that are mostly like blocks of ice. If I try to put a sock or slipper on I feel that my foot is trying to burst its way out. Also my feet appear to change colours from white to red and then to a bruised blue colour with lots of spider legs look and skin very dry. Difficulty in moving toes and painful trying to get about. My hands and fingers are also very painful even during the night and difficulty in getting fingers to move. I normally deal with all this but I am really struggling with pain so any advice or suggestions greatly appreciated.
Thank you for reading this.
Written by
ef59
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So sorry to read your post it is horrible when the rest of your body is warm but the extremeties are frozen I do have this and there is no way that you can seem to get them warm. When my feet are like that I pad around in overlarge very fluffy bed socks rather than normal ones as they also chsion the feet and make them seem less painful.
As it is so extreme I would urge you to have a word with your GP as it could be a side effect of the medication you are on. Often aside effect can slowly build up rather than happen suddenly. If it was just your tootsies I would say it was from lack of movement but as it is your hands as well I just think you would be wise to take some advice. Take care of yourself and let us know how you get on. Have to go now as my body is yelling for me to go to bed. Do hope you get some rest tonight. Take care.xxx
I am so genuinely sorry to read this and I sincerely hope that you can find the answers that you are looking for. I always have the opposite with having hyperhidrosis. It may be useful to have a word with your doctor about this? I want to sincerely wish you all the best of luck.
It's really important that you don't assume it's the Fibro, the fact that your feet are changing colour and have blue veins suggests a medical problem rather than a Fibro one. As a nurse I would recommend that you seek advice from your Gp sooner rather than later in case it's a circulation problem. Good luck xx
I went to my GP yesterday and she said that your mind can often make you think your feet are cold when in actual fact they are not cold to touch. I assured her that they were but no I am being referred for physio.
That feels like a bit of a cop out to me... Yes sensation certainly is a Fibro thing but the fact that your feet change colour certainly isn't in your mind. I feel there's a danger that once you have a Fibro diagnosis it's an easy option to put everything down to that!
That said, I hope things improve for you and physio can never be a bad thing 😜
Sorry to hear about your pain.You may try soaking in warm water with some type of maybe vitamin E oil in it ?? Just a thought will warm and soften up.Peck✌
From the description of your problem,the fact you are getting blue feet with spidery lines running up them, combined with the pain I would say theres every possibility that you have Raynauds Phenomenon.
I'd also be willing to bet that most mornings your hands feel stiff or even broken as mine do.
I use a soft rubber stress ball I first got from a mobility shop years ago and still use every morning at least and more often than not a few times during the day, to loosen up my hands, by rolling and squeezing the ball in each hand after my carer has used some baby oil to massage them and my feet initially.
Try holding your hands out straight one morning and look for the same dark blue or black spidery lines running down the backs of each finger,because that's one of the first clues.
Some days your hands may also darken,as if you've been reading a new paper and the inks come off.
Try not to worry because if it is RP, its very common amongst Fibromyalgia sufferers.I've had it now since 1993.The Doctors have always given me a drug called Adelat which improves blood circulation.Ask your GP what he thinks about your problem being Raynauds.
I have another friend who has Fibromyalgia and with it the Raynauds.He like a lot of people soaks his hands in a bowl of hot water to get them going.I've tried this method myself as you do,and found the experience very painful so if I were you I'd try the soft ball and baby oil method alongside whatever the Doctor recommends.
I hope this goes some way towards helping you get control of the pain.
You are spot on with your symptons as that is exactly how my hands and fingers feel daily. I am trying for a doctors appointment today but sometimes feel when you have fibromyalgia any new sympton must just be the fibromyalgia. Thank you.
You may have raynauds as this goes hand in hand with fibro. I have both and what your describing with ahnds & feet happen to me! not nice and very painful. I suggest asking to be refered to hospital to be checked for it??! You can try meds if you can tolerate it, I couldn't so suffer instead.
Hello sorry to hear you are in such distress. A visit to your GP may help to get to the bottom of it. I had the same problems with the meds I was on, Pregablin mainly. I did get tested for Reynards Syndrome though it turned out not to be it, and I am better now I am off those dreadfull pills. I did find ordinary slippers made me worse and I wore thermal slippers socks and a friend bought me a cushion with a water bottle in and that was a great help too. Also when I could manage it I massaged both hands, feet and ankles with any body lotion, as I found because of inactivity my circulation was bad. I hope you feel better soon. Sending a hug xx.
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