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Fibromyalgia Action UK

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Worst month ever

Kurny profile image
9 Replies

Hi I am very new to thease sites but was first diagnosed with fibromyalgia in 2005, 2 years managed well then a further 2 years of very minor symptoms. The last 3 years have been hell !!!!!!!! can anyone else tell me if they have taken duloxetine and whether they had awful withdrawal symptoms.

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Kurny profile image
Kurny
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9 Replies
Katherineanne profile image
Katherineanne

I've relatively new to this forum too. I have no familiarty with that drug. The pharmacist can likely help you with information about side effects and potential withdrawal possibilities...if any. Just wanted to send some understanding your way regarding the frustration with difficulties with Fibromyalgia. Take care.

Katherine

BlueMermaid3 profile image
BlueMermaid3

Hi there

Are you coming off the Duloxetine at the moment?

I started this medication last year and had some awful side effects so I stopped taking it.

As I had only been on it for a few weeks the withdrawal was not too bad.

I am not medically trained so I don't know whether you get the same side effects when you start a medication as you do when you are coming off them.

Have you read the leaflet that comes in the box with the tablets? It should give you a list of withdrawal symptoms.

Lu x

Kurny profile image
Kurny in reply to BlueMermaid3

Hi thank you for you reply. My doctor prescribed it and I have been on it for 6 months and it hasn't helped for pain so I came off it and increased dose of pregablin but the side effects of coming off have been awful I have never felt so bad in my life xxx

TheAuthor profile image
TheAuthor

Hi Kurny

Welcome to the forum and it is wonderful to make your acquaintance. I have pasted you a link below to our mother site, FMA UK which hosts loads of useful Fibro information: fmauk.org/

I am so genuinely sorry to read that you have been suffering and struggling so much and I sincerely hope that you can find the answers that you are looking for. I have never taken Duloxetine so I cannot help you with this, sorry.

I want to genuinely and sincerely wish you all the best of luck.

All my hopes and dreams for you

Ken

Kurny profile image
Kurny in reply to TheAuthor

Thank you x

lb003 profile image
lb003

Yes I had hideous withdrawlike from Duloxetine. I wasnt advised this by my GP so it came as a real shock. I ended up taking the capsules apart and removing 10 grains for a week, then 20 grains the next week, 30 the week after etc etc. It took me about 3 months to get off them. Good luck.

Erica50 profile image
Erica50

I've been on them for 3 years now, and I've found they have helped me a bit, I've had no side effects, but I do know if I have forgotten to take it, I get a wee bit light headed but other than that I'm fine, could not take gabapenten so asked for duloxetine instead and I lost 26lbs with them as well. Now down to 10st 9lbs, best wishes x

stiltzski profile image
stiltzski

I have been on 30mg Duloxetine for over 10 years. When I started I had no side effects that I can remember, but know after a few hours if I have missed a dose as I get an almost physical feeling of despair. I would love to stop taking them as the depression for which I was prescribed them (before fibromyalgia diagnosis) was understandable as I was feeling so tired and sore. Now I am taking Nature Throid, many of those symptoms have gone but I know it will take time to stop this drug. Good luck!!

check it out on wikipedia

one of the really lovely ssri and yep they do mess with you in all sorts of unpleasant ways get your doc to give you a reducing chart and come off gradually . dont just stop

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