HI GUYS,
YOU ARE ALL GOING TO HATE ME, BUT IF YOU ACCEPT WHAT YOU HAVE GOT, EVEN IF THEY ARE STILL
TRYING OUT PILLS ON YOU,
SURELY YOU MIGHT FEEL BETTER, IN A CRAZY KIND OF WAY????
I ACCEPT WHAT I HAVE GOT, I COME TO TERMS WITH IT???
I AM STILL DOING CRAZY THINGS, BUT I HAVE NO PAIN??
IF YOUR GP CAN TAKE YOUR PAIN AWAY,
IF YOU CAN ACCEPT IT?
WILL WE FEEL BETTER?
PLEASE DONT HATE ME, AM I RIGHT?? IF THE PAIN IS TAKEN AWAY?
LILLYXX
I accepted that I had fibro and would always be in pain at the age of 21. I would say I came to terms and accepted it when I was 25. I'm now 27 but the pain does not go away, it may be more manageable for a while so that you can ignore it for a little while but it always comes back. Acceptance and positive attitude may help some mentally but this is not a mental illness it's a physical one which will impact your life severely whether you accept it or not.
I believe most of us have accepted our diagnosis, we come to this forum to give and receive support. We are diagnosed by experts and all cope as best we can. Lou x
Actually there is evidence of pain. CAT scans of people's brains with fibromyalgia show a difference to stimuli than people without, there is research connecting the vagus nerve and other nerve clusters, there may be a psychological component, a process of grief follows some after diagnosis and chronic pain and disability is depressing and anxiety provoking. That is the reason for psychologists (usually CBT based) to concentrate on helping people come to terms with their new reality but accepting the diagnosis is not going to make you pain free. Im not angry or offended by the above post but feel it is misguided. If someone's pain dissapeared completely because they accepted their diagnosis of fibromyalgia maybe they should question whether their diagnosis was correct. We all live in hope of been pain free and most of us have tried everything you could think of including questioning our sanity and coming to some form of acceptance, none of which worked or we wouldn't be here.
If that is the case.. why is the only test for fibromyalgia based on trigger testing and based on symptoms.
psychosomatic factors are involved in pain.
Because the nhs cannot afford advanced testing for everyone who walks through the door complaining of chronic pain. There are psychosomatic conditions that are purely psychological as you are suggesting, e.g: somatic syndrome disorder. Fibromyalgia can cause anxiety and depression, in that sense some could argue it has a psychological conponent, i said the same earlier, however if fibromyalgia were purely a psychosomatic condition it would be a mental illness classified as such and not caused by the mind and faulty pain sensors in the brain. May i suggest you do some research and look at where your information is coming from.
Ps. DipHe counselling psychologist (I know the difference)
SORRY, I HAVE NON EPILEPTIC SEIZURES AND FUNCTIONAL DISORDER, THOUGHT THE WEBSITE WAS FOR ME ALSO, AM I WRONG?????
If your replying to the comment above it wasn't meant for you, the post I replied to was deleted. I believe This page is for people with fibromyalgia and those who support those with fibro. Its not up to me whether this is the site for you. Do you have anyone else for support or is there a health unlocked site for the conditions you've mentioned?
Hello John 9878, do you have Fibromyalgia?
Hi there,
I have had fibro since the age of seventeen, but only properly diagnosed in the last 12 or so years. I have completely accepted it, but that doesn't mean that I have given up on life, far from it, and I also have an extremely good GP who lets me to a lesser or greater degree manage my own medication according to how much I need at any one time.
Could I ask that you try to type in lower case in any replies you may make. On the internet capital letters normally represent someone shouting, which I'm sure is not the case for you !!
Sending lots of positive vibes your way 😊
Foggy x
SORRY I TYPE IN CAPS, I CANNOT HELP IT, DOES NOT MEAN I AM ANGRY, BUT FIND IT HARD TO DO OTHERWISE.
Hum I have never known anything different. I was born with it. So have I accepted it huh yea it's part of me. I have been treated by some good doctors and some bad. 🙄🤔 sorry it confused me a little. Pain is pain . I believe in mind over matter but that is only to control it not make it go away. I am lost. Sorry someone help!! I don't understand !!
Mind over matter works best for doctors when they dont mind and patients dont matter - as a general rule that is because absolutes are problematic in dealing with personal perceptions such as pain.
I think that I concur with the other members, as I feel that I have come to terms with my diagnosis and how it affects my life? I still have my life and am a fairly happy chappie!
I want to genuinely and sincerely wish you all the best of luck.
All my hopes and dreams for you
Ken
It is true to say I accept my lot although I will always fight for pain relief for myself and others.
Levels of pain are the enemies I hope we can eventually beat it together. I mind and I matter!
Ginsing
Love your reply,especially...
"I mind and I matter" ,4 words that say so very much...powerful!
Katherine
It's also thought to be a mitochondrial dysfunction. I don't accept it, and it I had just accepted it I would not have researched, found diet changes lifestyle changes and supplements that work for me.
I would say that I now admit I have it and don't try to deny that I have something wrong. I have learnt not to ignore it, and I certainly will keep trying new ways to manage my fibromyalgia.
Mindfulness has been a great help to me, I wouldn't have found this it had "accepted" and stopped trying to find the best way to live with my fibromyalgia.
This is just my way, each of us will have our own way of managing. I prefer to be informed and active about it.
I'm not really sure what you are saying here. It doesn't make sense.
I agree with deejames above. I don't understand your post. Are you saying it's just mind over matter and if you accept it, get on with life you'll have no pain? I'm probably the most optimistic cheery person you'll meet, even after my husband died I also went to work with a smile on my face, I'm one of those 'get on with it' people. I have come to terms with my diagnosis but it took me a few months. But the pain is still there, if I don't take my meds at the proper times I can barely walk or use my hands. But I've never cried over it, and I try my hardest not to let it get me down. But the pain is still there. I'm not depressed, I'm not under stress - although with this fibro I can understand those who are... so why is the pain still there?
I AM SORRY,WHAT I MEANT WAS IF IT IS ACCEPTED, SOMETIMES YOU CAM FEEL BETTER, MAYBE I AM ON A TOTALLY WRONG WAVE LENGTH,
SORRY DID NOT MEAN TO MAKE YOU FEEL BAD,
LILLYXXXX
I felt better in that I finally found out it wasn't MS, but I was still devastated in a different way - it was a chronic illness that won't go away and there is no cure and unlike MS or some of the other illnesses/conditions it doesn't get the same recognition from some of the medical professionals (my surgery nurse told me that it was a waste-bin diagnosis and I should chase it up as it was obviously a load of rubbish as she knew I wasn't a 'faker' - I was shocked tbh). No, you didn't make me feel bad.
Can I give you some advice though - don't put your comments/posts in capitals - it makes it difficult to read and it also denotes shouting on the internet.
Take care x
SORRY NOT MEAN TO BE, BUT FIND IT HARD TO DO OTHERWISE
Hello cocoferraro, if what you are taking is doing the job and you are pain free, then I wish you well, and pain free is always good for the soul,,,,and a happy soul is a comfortable soul,,,,ttfn from Karen.
I will work on that and hope for the best,,xxx
If it was all mind over matter (which I absolutely do not agree with) then how come I am awakened yelling out in pain from my body,moving during sleep,just having another part of my body touched by my very own bed,or the movements themselves awaken me in pain just as we involuntarily do throughout our sleep. If it was mind over matter, I am certain that we all would be blissfully resting fir hours in a row,to our hearts content, at our own whim and as we desire. Lacking zero restorative sleep. That is nit the case for a large majority of us. That's not logical or scientifically sound as far as cause and effect go. Once asleep, it is an unconscience act...this alone should cause you to question your Doctors thinking on how you personally can control and rid yourself of any and all of your Fibromyalgia pain with just good thoughts and action so that you can be 100 pain free. I agree with minx88x that we would all be only seeing mental health professionals for Fibro treatment if that were the case. Not only is that NOT primarily true, but as a general rule its sounds like most of us are sent to see a specialist, like a Rhuemotologist, for the treatment of our chronic pain condition where the primary symptom is Pain itself. Secondarily, widespread chronic pain us 2nd symptom and 3rd, there are four quadent areas of our body thst exoerience pain...that include in the upper teens in number value of the number of areas on our bidies, uf touched ,cause acute/severe tendor points upon pressure being applied. That's just what's indicated medically that Fibromyalgia is primarily a chronic widespread pain condition with numerous tender areas covering all four quandrants if the body. I'm hoping that someone's post on here in response to your initial post has broadened your horizons in regarding to FMS...fact verses hype and fiction.
I think I'm starting to accept this illness.
thanks very much for understanding and accepting me
How to just accept this condition.
